#96450 06-01-2009 01:11 PM | Joined: Nov 2008 Posts: 72 Supporting Member (50+ posts) | OP  Supporting Member (50+ posts)
Joined: Nov 2008 Posts: 72 | I have noticed several knots in my neck. One very close to insision site slighly below ear. I woke up feeling as if I had slept on my neck wrong. It has been hurting now for over 2 weeks. The severity of the pain has decreased some. The knot is hard to the touch relatively large maybe the size of a quarter and is very tender to the touch. I have now felt a smaller softer knot on the other size of neck. Also I have been getting headaches on an almost everyday basis. I am scheduled to see the DR on Friday...
Just curious as to everyones thoughts. Should I be worried or am I just stressing myself?
THANKS
*Shaylynn*
11.25.08 SCC of tongue diagnosed @ age 23 T2N2cM0
12.20.2008 Partial glossectomy & left neck dissection. Clear margins.
6.24.09-Pet Scans show 2 areas of concern
8.5.09-Recurrence-Perotid Gland and swollen node removal
9.29.09 Carboplatin & Taxol x8 Tomo x39
11.19.09 WILL COMPLETE TREATMENTS!
| | | | | Joined: Jun 2008 Posts: 148 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Jun 2008 Posts: 148 | Shaylynn, your signature doesn't say if you had chemo and or radiation treatments following surgery? There's only one good answer here and that's to think positive until you can get in to have your doctor take a look. Wishing you the best.
Bill . . . SCC - originated in right tonsil, drifted into neck ( 28 lymph nodes removed - one positive ). Radical neck dissection in September 07, completed 34 radiation tx on January 4, 2008. Used Peg. Non smoker, 61, good shape, no previous health issues. Second year PET scan - "all clear".
| | | | | Joined: Nov 2008 Posts: 72 Supporting Member (50+ posts) | | OP Supporting Member (50+ posts)
Joined: Nov 2008 Posts: 72 | No...no tratment except surgery
*Shaylynn*
11.25.08 SCC of tongue diagnosed @ age 23 T2N2cM0
12.20.2008 Partial glossectomy & left neck dissection. Clear margins.
6.24.09-Pet Scans show 2 areas of concern
8.5.09-Recurrence-Perotid Gland and swollen node removal
9.29.09 Carboplatin & Taxol x8 Tomo x39
11.19.09 WILL COMPLETE TREATMENTS!
| | | | | Joined: Sep 2008 Posts: 130 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Sep 2008 Posts: 130 | Shaylynn,
It could be nothing. But I think its a good thing you have a Dr appt on Friday. I would have him take a look for sure.
If I told you not to worry would it work?
Amy
40 yr old. Stage IV SCC found left tonsil. PET/CT shows cancer on base of tongue, floor of mouth, lymph nodes on both sides. HPV 16 pos. 6 weeks of cisplatin, 43 days of radiation. 73gy on each side.
ND March 2, 2009
reoccurance dx'd Aug 19, 2009
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | My cancerous nodes were never painful if that helps but your doctor is the only person you need to listen to right now. After he examines it(them)let us know what he plans to do next.
Where were you treated?
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Aug 2008 Posts: 531 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Aug 2008 Posts: 531 | Hi I don't know if this will help but I too seemed to worry about spots and as it turns out the people here are right it is a doctor's call but if it helps at all due to swelling (lymphodemia) I had extra pressure and caused earaches and headaches. For me theriputic massage helped relieve some of the pressure. This is just a thought mind you...
Dianne..treatment at cc at Victoria Hospital, London, Ontario...insulin dependant, Surgery Sept 8/08 Tracheotomy,composite resection and bilateral neck dissection, left radial forearm free flap... T2N0 squamous cell carcinoma. No radiation A little over 2 yrs clear YAY
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | I have been thru this not too long ago,. After some biopsies, I was told it is scar tissue. Yes scar tissue hurs pretty bad and I still have it goimg on. Even in both ars wheere it seems to rotate from right to left and back.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Jun 2009 Posts: 64 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Jun 2009 Posts: 64 | My husband had swollen lymph nodes and the dr. didn't think anything of it because he had a cold for about a month and thought that it just from the cold.
He is having treatments now
Radiation and chemo
Crgvr to Husband 55-yrs, surgery to remove cyst-diagnosed as SCC, 4/3/09 CT & Pet Scan showed more cancer in left lymph node and primary at the base of the tongue.TX Radiation 7 weeks 5 days a week last day is 6/25/09
Chemo completed 6/19/09
Peg Tube 5/22/09
| | | | | Joined: Nov 2008 Posts: 72 Supporting Member (50+ posts) | | OP Supporting Member (50+ posts)
Joined: Nov 2008 Posts: 72 | I have had Pet scans done and have viewed the report. I am still waiting to get in with the dr but on both sides the nodes are getting larger. Some of the report is posted on my blog. www.remissionorbust.blogspot.comThanks for all the thoughts!
*Shaylynn*
11.25.08 SCC of tongue diagnosed @ age 23 T2N2cM0
12.20.2008 Partial glossectomy & left neck dissection. Clear margins.
6.24.09-Pet Scans show 2 areas of concern
8.5.09-Recurrence-Perotid Gland and swollen node removal
9.29.09 Carboplatin & Taxol x8 Tomo x39
11.19.09 WILL COMPLETE TREATMENTS!
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | I see you have added a Signature Line which helps a great deal and I read your site and while I am not anything close to a doctor I do think that the reading does indicate dead cells in at least 2 swollen lymph nodes with rather high glucose uptakes which can mean cancer so you do need to get with your doctor ASAP and get his/her opinion.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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