I just thank God for every minute I get to spend with my children. I go back to the Dr. July 1, and schedule the PET scan then. I guess I will not rest easy until after the PET scan.

Alright Chrsitine!! I'm ready for our roadtrip:) We can be some tough cookies!!!

Angelia, I don't know why people keep saying things to you. Do they realize what you have been through?!?!?!?! What do they expect? Try to take it easy until the PET. That is too far away to not rest.

We are always in your corner and will provide you a place to vent.

Thanks guys. I am doing rather well now. I can pretty much eat anything I want, but when I do I get a lot of swelling underneath my chin. I go to my PCP Wednesday, I will ask her about it. If she thinks I need to go back to the ENT I will.

Angelia, I just wish I could eat any one thing that doesn't need made into a mash or liquified. It's been a year and a half for solid foods with no end in site. I think I could take on a gorilla for 1 good meal that I could eat and taste. I feel for you and pray you are alright, but thank the lord I am here to even complain. LOL Wish you all the luck there is.

I know that my case could be worse. I pray for each and everyone of you on here. You all have been there for me since I made my first post. If i had not have found this place, I do not know what i would have done. I want to return the favor. Life does throw curve balls sometimes. I know that we are all strong and can hit the curve balls out of the park. Thanks for all your encouragement, JIm. You are amazing.

Hi Angelina,

I'm happy you found this site too and that we were able to help you. It has helped me a lot too. You say you know you could be worse and that is a good way to look at it. But...don't downplay what you have been through. We are all fighters here with this crappy disease:)

xoxo

Hey I have been gone a while someone mention "ROAD TRIP" Count me in too ....Please...when should week book the BUS?!

You guys are all so awesome. I actually got a chance to talk with a friend of mine yesterday about this whole ordeal. She said she would help you all kick some you know what. She actually said that the next time it happens to ask them how they would talk with part of their tongue whacked off. Maybe even to ask thm if they are an adult. Even at dinner the other day, we were eating with friends, and this "friend" began to make fun of my speech, saying "what I don't understand you" and making garbled speech sounds. Well, let me tell you she is no longer a friend of mine. She actually new about the whole ordeal as my husband is her boss.

please tell me you poured something over this "friends" head and told this "friend" "oops sorry, my coordination must have been effected too" what a jerk! count me in on the road trip!!!

Hi I'm Lyn. I still speak with a slight lisp two years later...whats worse..Im a singer. Funnily enough, the only thing I CANT do when I sing is roll my R's...so no singing in French or Italian! So yes, it does get better. As far as those who make remarks...either poke your 'now cancer free' tongue out at them, and tell them to get a life OR to watch out, as you initially injured your tongue BITING a STUDENT who gave you back talk! heheh Only you need to know the truth. Life vs Death vs Stoopid insensitive remarks from morons? I choose Life (with attitude!) heh heh! Ignore the morons!