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Joined: Jun 2007
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I have the cutest little corn plants comin up LOL all 3 of them. Have a bout 3 beans coming too,. I bet the wet weather rotted the seeds.Tons of sun flowers tho.


Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
EzJim #95202 05-10-2009 08:07 PM
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smile How great!! The guy that farms the land around me says that he can not remember ever plnating this late. There is corn coming up on the 40 behind the house. Last night we took turns with the binoculars watching a hen and rooster pheasant chasing around in the mud and the little corn plants. I have been hearing the roosters in the morning when they get up and the bobwhite are calling each other at dusk.

I spread some more grass seed late yesterday and with the shower that we got this afteroon it may just get the chance to grow. I have a bunch of flower seeds to plant - sunflowers, Cosmos, Marigolds, and a couple of different daisies that I hope will grow.

Patty


48
SCC Floor of Mouth 7/06
9/06 Surgery, bilateral neck dissection, 58 nodes clear PT2pN0pMx
35 rad 2006
Recurred 6/08, 1 Carboplatin, 1 Cisplatin
Surgery 9/08 - Total glossectomy, free flap from pectoral muscle, left mandible replaced using fibula
35 IMRT & Erbitux 11/08
4/15/09 recurrence
6/1/09 passed away, rest in peace
Good1 #95214 05-11-2009 03:53 AM
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Posts: 5,260
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I bet they will gro and every seed will germinate. My ground is too wet and it will rot seeds. THis is the 1st time it has happened for a lot of years tho. Me and my trusty shovel both have retired fot this year from spading more ground. Can't eat what I plant anyway except for tomotoes cooked in with food or sauce. Green beans if they are cooked long and soft .My kids and ex, plus my neighbors will use it up.


Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
EzJim #95239 05-11-2009 12:28 PM
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I am still going to plant some pumkins and squash Jim. I like both of them and if I mash them up with butter I can eat them. I am planting mostly flowers this year because they make me smile.

Patty


48
SCC Floor of Mouth 7/06
9/06 Surgery, bilateral neck dissection, 58 nodes clear PT2pN0pMx
35 rad 2006
Recurred 6/08, 1 Carboplatin, 1 Cisplatin
Surgery 9/08 - Total glossectomy, free flap from pectoral muscle, left mandible replaced using fibula
35 IMRT & Erbitux 11/08
4/15/09 recurrence
6/1/09 passed away, rest in peace
Good1 #95258 05-11-2009 04:52 PM
Joined: Jun 2007
Posts: 10,507
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Hi Patty, how are you doing today? I Hope ok. Have you tried peas? I can eat them if they are meshed up. I grew some last year, easy and they dont take alot of room.

Hope your day is going ok. Have a good night.


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
Joined: Sep 2008
Posts: 489
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I usually grow peas and I have some to plant this years. This cooler weather is going to make it difficult to grow much. The farmers have not even planted the crops out here yet.

Things are not going so good for me right now. I have a lot of swelling and a lot of questions.

Patty


48
SCC Floor of Mouth 7/06
9/06 Surgery, bilateral neck dissection, 58 nodes clear PT2pN0pMx
35 rad 2006
Recurred 6/08, 1 Carboplatin, 1 Cisplatin
Surgery 9/08 - Total glossectomy, free flap from pectoral muscle, left mandible replaced using fibula
35 IMRT & Erbitux 11/08
4/15/09 recurrence
6/1/09 passed away, rest in peace
Good1 #95298 05-12-2009 03:34 PM
Joined: Sep 2008
Posts: 489
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I have sent a PM about this to a member who has a similar case to mine. I would also like to get the opinion of some more of my friends. Don't ask me why it takes me a little while to get worked up about somethimg. I don't know why it does, but I am feeling that something is not right.

I have another tumor that has appeared in my right cheek/jaw and it appeared within 4 months of my last surgery. It has been terribly confusing to me because first the doctor said that it was related to my dental work. I am wondering if my doctor really thought that or if she just told me that to keep me from worrying that it was the cancer. I intend to ask her and make sure that she remembers our deal is that no matter what I always get the truth. I would certainly rather have the truth than something that is glossed over just to keep me from being stressed out.

The doctors have said that there is nothing more that they can do for me and have offered the Erbitux. I am doing the Erbitux treatments once a week. The thing that they have not wanted to do is more scans saying that there is no need to spend the money. I say that we can not know what we are fighting without the scans. I plan to go stomp my feet and insist that I have a scan so that we can stage this cancer and know what I am dealing with on Weds when I have my next appoinment.

Right now all I know is that they cut my neck twice to relieve an abscess and it did feel much better right away. The first one has now healed, but the second one is still draining some and I can pack it with about 8 inches of packing. For a week it produced a cottage cheese type fluid, but now it is more a liquid with some color to it and a lot of bubbles from the "pathway". I do not understand the bubbles coming out of the wound at all.

The other thing that I do not understand is the swelling in my jaw/cheek and right side of my face. The swelling is very hard and I can not get any fluid from the wound by working any of the area that is swollen. The more swollen it gets the more painful it is to talk and it has reached the point on quite a few days where I will not talk at all because it hurts. The swelling also concerns me when I try to swallow. I have not had any complete blockage, but it does feel difficult to swallow when it is swollen.

I would really appreciate any opinions that you guys have about this and my doctor not wanting to do the scan right away. She says that she is not just putting me on a shelf to die and I know that she is concerned about me and she has stated that she can not do any more surgically for me because she would not put anyone through that. I feel that she has my best interest in her heart, but how can we know what we are dealing with if we don't know how big this tumor was on 4/15 when the biopsy came back positive and how big it is today May 12 almost a month later? Please tell me what you think? I can use the support and the guidance on how to be my own advocate please. I don't know how.


48
SCC Floor of Mouth 7/06
9/06 Surgery, bilateral neck dissection, 58 nodes clear PT2pN0pMx
35 rad 2006
Recurred 6/08, 1 Carboplatin, 1 Cisplatin
Surgery 9/08 - Total glossectomy, free flap from pectoral muscle, left mandible replaced using fibula
35 IMRT & Erbitux 11/08
4/15/09 recurrence
6/1/09 passed away, rest in peace
Good1 #95302 05-12-2009 05:37 PM
Joined: Jun 2007
Posts: 718
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Posts: 718
If it were me, I'd want to see the scan. And, I might want a second opinion or three.

What is the goal for the Erbitux, is it possible that the tumors could be shrinking?


Margaret
----------
C/G: Husband, 48 (at time of dx)
Dx 5/18/07 SCC, BOT, lymph node involvement. T1N2BM0. (Stage 4a, G2/3)
Tx 6/18 - 8/3/07, IMRT x 33 Cisplatin x3 (stopped after 1st dose due to hearing issues). Weekly Erbitux started 6/27/07 completed 8/6/07.
mhupe #95304 05-12-2009 05:49 PM
Joined: Jun 2007
Posts: 10,507
Likes: 6
Administrator, Director of Patient Support Services
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Oh Patty, how I wish I could come out and help you with all your appointments. Its not always easy being your own advocate. Try your best and just remember that if you dont stand up for yourself nobody else will. You are a very intelligent woman, Im sure you will be persuasive to the doctors and hopefully they will do the scan. I completely agree with you that it should be done. I also agree with Margaret, any other doctors around there for a second opinion?

Even if you dont feel like it right now, to me you are a very brave person.



Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
Joined: Jun 2007
Posts: 5,260
Patient Advocate (old timer, 2000 posts)
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Patient Advocate (old timer, 2000 posts)

Joined: Jun 2007
Posts: 5,260
Patty , the 16 lb sledge is in the mail, take it to the Dr with you and get his attention by smashing in his desktop. LOL 1 Hit should do it. Tell him his toes are next. I am like christine and wish I could come there and take care of you and go whereever you need to be taken. As for my garden. I have pumpkns started and they are up as is watermelon and cantalopes.I never thought about peas until our buddy Christine mentioned them. Do what you have to ladies but do it good, LOL Nite you all.


Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
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