#95048 05-07-2009 05:05 PM | Joined: Aug 2008 Posts: 96 Supporting Member (50+ posts) | OP Supporting Member (50+ posts) Joined: Aug 2008 Posts: 96 | After my husband's Erbitux today, stopped to get his 2 "new" prescriptions at Walgreen's. $310 for 10 Fentanyl 75 mcg. patches and $160 for Percocet tablets for breakthrough pain. He has no prescription insurance. How are we supposed to deal with this? Anyone have any ideas for medication help? Lori
Lori, cg to H Ron, age 56. Stage IV Oral SCC-T1N2. Tongue resected and right ND 8/05. Teeth removed, PORT, PEG, IMRT x33, Cisplatin x3. Tx ended 10/05. Recurrence 7/08 Stage IV. Surgery 8/30/08. 2nd recur. 11/08. 2nd surgery 2/2/09. 3rd recur. 4/9/09. Erbitux wkly. 5/09-? Ron died 6/6/09. Lori also passed away 8/20/11, colon cancer | | | | Joined: Jan 2008 Posts: 706 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Jan 2008 Posts: 706 | We got some of the more expensive meds billed through the hospital when we went for the chemo. The nurses actually suggested this. You could also try contacting the drug companies and explain your situation. Most have websites now.
Sue
cg to husband, 48 Stage 1V head and neck SCC. First surgery 9/07. Radiation and several rounds of chemo followed. Mets to chest and lungs. "Life isn't about waiting for the storm to pass, it's about learning to dance in the rain." Went home to God on February 22, 2009.
| | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 | Lori, thats just insane!!!!
If you havent called the American Cancer Society yet, please call your local chapter. They helped me with my meds by sending a voucher to the pharmacy for $300 to help with my meds. I have good insurance but the more expensive meds had a $40 co-pay which added up quickly.
Another avenue is the drug manufacuterer. Look up the meds online, most companies have something to help people in your situation.
You could also try the hospital where he is treated. Ask for help. Where I went, they asked the patients if they were ok or in need of financial assistance. Even try asking the doctor who is prescribing the meds if they have samples or have any resources you can go thru.
Even try asking a church or local organization like Lyons clubs. It doesnt hurt to ask, the worst that can happen is they say no which is where you are right now. I dont know how medical assistance works with prescriptions, but maybe your local public assistance office is worth a try too.
Your husband needs these meds to get thru tx. Just remember, its ok to ask for help. Hope you find some assistance. ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 5,260 | I have never heard of prices like that for Fentanyl patches costing so much. I just went and checked my receipt for that stuff and it shows the full price as $71.99 before my copay is deducted. Christine gave you some good advice. From our local cancer society I received 2 checks to help me. One was for $500 and the next was for $300. I had to be told to call them too by someone in the forums.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April. --- Passed away 5/14/14, will be greatly missed by everyone here
| | | | Joined: Nov 2005 Posts: 1,128 Patient Advocate (1000+ posts) | Patient Advocate (1000+ posts) Joined: Nov 2005 Posts: 1,128 | You might also check alternative pharmacies -- Last I heard, Costco was the least expensive and you don't have to be a member to get in to use the pharmacy. Wal-Mart also has good prices.
Age 67 1/2 Ventral Tongue SCC T2N0M0G1 10/05 Anterior Tongue SCC T2N0M0G2 6/08 Base of Tongue SCC T2N0M0G2 12/08 Three partial glossectomy (10/05,11/05,6/08), PEG, 37 XRT 66.6 Gy 1/06 Neck dissection, trach, PEG & forearm free flap (6/08) Total glossectomy, trach, PEG & thigh free flap (12/08) On August 21, 2010 at 9:20 am, Pete went off to play with the ratties in the sky.
| | | | Joined: Jan 2009 Posts: 225 "OCF across the pond" Gold Member (200+ posts) | "OCF across the pond" Gold Member (200+ posts) Joined: Jan 2009 Posts: 225 | I can't believe the cost of care across the pond! For all of it's faults I must say they NHS here has been fantastic. We did not pay a penny for care or meds. Cancer patients here get free prescriptions, and every week we got boxes of Ensure and scandishake free of charge.
Girlfriend to Martin 49 years old at diagnosis Diagnosed with SCC unknown primary June 2008. Cancer found in single node Stage N2A (3 to 6cm). Tonsilectomy 16th june, Radical modified neck dissection left side 30th june. 30 TX radiotherapy ended 9th October First comparative study scan came back clear
| | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | Senior Patient Advocate Patient Advocate (old timer, 2000 posts) Joined: Sep 2006 Posts: 8,311 | But you still talk funny.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | Joined: May 2007 Posts: 666 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: May 2007 Posts: 666 | David... what are you drinking?
Partial glossectomy (25%) anterior tongue. 4/6/07/. IMRT start @5/24/07 (3x) Erbitux start/end@ 5/24/07. IMRT wider field (30x) start 6/5/07. Weekly cisplatin (2x30mg/m2), then weekly carbo- (5x180mg/m2). End of Tx 19 July 07.
| | | | Joined: Aug 2008 Posts: 716 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Aug 2008 Posts: 716 | I have a friend and a couple of relatives that say UK, Canada, Japan and other countries' health care systems are in shambles because of socialized medical care. I disagree, but, since talking politics is not my thing I find it hard to get into the debate.
7-16-08 age 37@Dx, T3N0M0 SCC 4.778cm tumor, left side of oral tongue, non smoker, casual drinker, I am the 4th in my family to have H&N cancer 8-13-08 left neck dissection and 40% of tongue removed, submandibular salivary gland & 14 nodes clean, no chemo, IMRTx35 11-4-08 Recovering & feeling better | | | | Joined: Jan 2009 Posts: 225 "OCF across the pond" Gold Member (200+ posts) | "OCF across the pond" Gold Member (200+ posts) Joined: Jan 2009 Posts: 225 | haha David, I talk even funnier than you might expect! My dad is a Texan, my mum is French, i grew up in France but have been living in England for the past 15 years. I have been told I sound foreign but no one can figure out where I come from. But my dad's mate whom I visited in hopsital said :"You sound like a limey"
Girlfriend to Martin 49 years old at diagnosis Diagnosed with SCC unknown primary June 2008. Cancer found in single node Stage N2A (3 to 6cm). Tonsilectomy 16th june, Radical modified neck dissection left side 30th june. 30 TX radiotherapy ended 9th October First comparative study scan came back clear
| | | | Joined: Jan 2009 Posts: 225 "OCF across the pond" Gold Member (200+ posts) | "OCF across the pond" Gold Member (200+ posts) Joined: Jan 2009 Posts: 225 | [quote=Ray1971]I have a friend and a couple of relatives that say UK, Canada, Japan and other countries' health care systems are in shambles because of socialized medical care. I disagree, but, since talking politics is not my thing I find it hard to get into the debate. [/quote] Well there is loads to criticise about our health system, it's far from perfect and some hosptials are filthy, but I am not complaining too much, they are looking after Martin quite well. And it is free (well I give �2002.93 a month towards the National Insurance like for income tax, but everyone else who earns and pays tax pays a contribution as well). I suppose we are lucky as well that we just happened to live next to one of the best cancer hospital in the UK.
Girlfriend to Martin 49 years old at diagnosis Diagnosed with SCC unknown primary June 2008. Cancer found in single node Stage N2A (3 to 6cm). Tonsilectomy 16th june, Radical modified neck dissection left side 30th june. 30 TX radiotherapy ended 9th October First comparative study scan came back clear
| | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | Senior Patient Advocate Patient Advocate (old timer, 2000 posts) Joined: Sep 2006 Posts: 8,311 | Actually I love the British accent. It sounds so proper most of the time especially compared to how our language has taken many turns for the worse.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | Joined: Feb 2007 Posts: 1,940 "OCF across the pond" Patient Advocate (1000+ posts) | "OCF across the pond" Patient Advocate (1000+ posts) Joined: Feb 2007 Posts: 1,940 | David i would love to sit you in a room with half a dozen people from different regions of the uk.By the time you had heard a selection of our regional dialects you wouldn't know what a british accent sounded like lol. Scouse,Mancunian,Brum,Geordie,Tyke,Scots,Welsh,Cornish,its brilliant and gives us our fantastic diverse character.As for our healthcare system......its great and i for one won't knock it.Celia that must be one well paid job for that size of NI contribution.
Liz in the UK
Husband Robin aged 44 years Dx 8th Dec 2006 poorly differentiated SCC tongue with met to neck T1N2cM0 Surgery and Radiation.Finished TX April 2007 Recurrence June/07 died July 29th/07.
Never take your eye off the ball, it may just smack you in the mouth.
| | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | Senior Patient Advocate Patient Advocate (old timer, 2000 posts) Joined: Sep 2006 Posts: 8,311 | We have a few "different" English dialects here as well like Southern, New Yorkish, New Englandish and last but not to be left out Hoodish. They can all be a challenge depending upon where you grew up.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | Joined: Nov 2005 Posts: 1,128 Patient Advocate (1000+ posts) | Patient Advocate (1000+ posts) Joined: Nov 2005 Posts: 1,128 | At $1.65US to one pound, that's $3,305/month or $39,660 per year. That's certainly not free for people with jobs!!
Age 67 1/2 Ventral Tongue SCC T2N0M0G1 10/05 Anterior Tongue SCC T2N0M0G2 6/08 Base of Tongue SCC T2N0M0G2 12/08 Three partial glossectomy (10/05,11/05,6/08), PEG, 37 XRT 66.6 Gy 1/06 Neck dissection, trach, PEG & forearm free flap (6/08) Total glossectomy, trach, PEG & thigh free flap (12/08) On August 21, 2010 at 9:20 am, Pete went off to play with the ratties in the sky.
| | | | Joined: Feb 2007 Posts: 1,940 "OCF across the pond" Patient Advocate (1000+ posts) | "OCF across the pond" Patient Advocate (1000+ posts) Joined: Feb 2007 Posts: 1,940 | The NHS is "free" for everyone wether you have a job or not Presriptions are charged at �7.50 per item or free if you are on a low income or welfare or have a long term illness.The origonal intention was that everyone who worked would pay a percentage of their earnings in national insurance to cover the cost of dental,maternity and health care .Nowdays their isn't free dental care,just subsidised unless you are on welfare,but the NHS soldiers on.Income tax in the UK is charged at 18 pence in the pound on earnings over �5000 and national insurance is much less.I was gob smacked when i read how much Cecilia said she pays and i could only presume she is one of the UK top earners and in the super tax bracket.As a self employed man my husband paid approximately �25.00 per month and as an employee i used to pay about �60.00 per month.If i was to add up how much robs treatment, medication welfare rent allowance etc came to i would guess it would run into hundreds of thousands of pounds,and i think thats a good return for a very small investment.the bottom line really is that no matter who you are or what you earn or even if you don't earn anything,in the UK we NEVER have to worry about what we can and can't afford as regards health care,as we all get it without question and we all get the same unless we choose to opt out and insure ourselves privately in which case the waiting time is substantially reduced and you get a fancy private hospital,but the doctors are the same ones you see on the NHS.
Last edited by Cookey; 08-21-2009 11:53 PM.
Liz in the UK
Husband Robin aged 44 years Dx 8th Dec 2006 poorly differentiated SCC tongue with met to neck T1N2cM0 Surgery and Radiation.Finished TX April 2007 Recurrence June/07 died July 29th/07.
Never take your eye off the ball, it may just smack you in the mouth.
| | | | Joined: Aug 2006 Posts: 294 Gold Member (200+ posts) | Gold Member (200+ posts) Joined: Aug 2006 Posts: 294 | Sounds like you need an accountant to figure out just where you stand. My wife and I pay $1,497.40 per month for top quality, no specialist referral needed, family medical and dental coverage with Aetna. Actually, the dental is with MetLife and is about $110 of the monthly total. My total tab to date for the BOT Tx is just over 300K and we have been out of pocket maybe 3K.
Bill D.
Dx 4/27/06, SCC, BOT, Stage III/IV, Tx 5/25/06 through 7/12/06 - 33 IMRT and 4 chemo, radical right side neck dissection 9/20/06.
| | | | Joined: Jan 2009 Posts: 216 Gold Member (200+ posts) | Gold Member (200+ posts) Joined: Jan 2009 Posts: 216 | Unfortunately our insurance coverage is thru husband's employer. When he exhausts all medical leave the company will let him go and with that the end to our insurance. Since our income has dropped by over 50% since diagnosis it's fair to say we're bankrupt and can't file in case of a recurrence. Creditors are screaming and I've explained until I just don't answer the phone anymore. So...to add insult to injury, here we are. The kicker is that even with the lowered income, when his insurance goes, we won't qualify for state aid without a big pay down. Nothing like falling in the cracks where I'm guessing most of the middle class lands.
CG to H with SCC BOT T4N2cM0 dx 12/19/08, teeth removed pre-tx; Erbitux & RT-done 3/12/09, PEG 2/9/09-7/14/09; ND 6/16. Pet 6/12-no mets except lymph node in neck removed on 6/16. Chyle leak,2nd surg to repair. Dilate esophagus 4/15/10. Clear PET 12/17/10
| | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 | Cheryl Im sorry to hear of your troubles. That really stinks!!!!! Its one thing to be sick, then to have financial burdens on top of it. Your household must be really struggling thru a rough time. We all struggle with different things once a brush with this disease.
This may sound like a dumb question, is there any way your husband is able to do light duty at his former job? Its a darn shame his employer will fire him. What kind of work did he do?
Best wishes with everything.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | Joined: Jan 2009 Posts: 216 Gold Member (200+ posts) | Gold Member (200+ posts) Joined: Jan 2009 Posts: 216 | ahhhh Christine! How did I know you'd be right here with words of support! You are a gem!!! My husband does factory work. When he left he was driving a tow motor which was ok as he has major trouble with varicose veins in his legs. However, he has been off long enough for his job to be bid and he would go back to work in the factory - on the line. Not enough stamina to be on his feet 8 hours a day (and this place works 12 hours a lot) and if he did, he would get an ulcer on his foot. Has happened 3 times in 10 years. We've tried to look from every angle and it's just not going to work out. We got lucky that the company had already let a couple of others be off longer than FMLA and medical leave as usual and now they will have to let him off that long too. Guess my point was that there's got to be something better than the health care system we have now....
CG to H with SCC BOT T4N2cM0 dx 12/19/08, teeth removed pre-tx; Erbitux & RT-done 3/12/09, PEG 2/9/09-7/14/09; ND 6/16. Pet 6/12-no mets except lymph node in neck removed on 6/16. Chyle leak,2nd surg to repair. Dilate esophagus 4/15/10. Clear PET 12/17/10
| | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 | Sounds like the short end of the stick. Is there such a thing as going back with limitations or light duty? Is this a union job? It sure isnt like he was calling out sick to play cards. I was a former union steward and know how big companies skirt around doing the right thing for their employees sometimes. I hate to see the underdog get the shaft. Im going to think up something to help you guys with this. Soon I will have way too much time on my hands so I will come up with something ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | Joined: Jan 2009 Posts: 216 Gold Member (200+ posts) | Gold Member (200+ posts) Joined: Jan 2009 Posts: 216 | No union at his shop. We will be ok...I'm one of those push, pull or drag yourself thru it gals...you know the type He's been approved for Social Security and will get long term disability for awhile. I'll still work part time and we will be ok. It will be a big change from what we had income wise before but then this whole thing is a big change from before isn't it? This too will be part of the new normal and we will get thru it. (Doesn't mean I have to be in a good mood while I wrangle with creditors, insurance companies, etc. tho does it?!?!)
CG to H with SCC BOT T4N2cM0 dx 12/19/08, teeth removed pre-tx; Erbitux & RT-done 3/12/09, PEG 2/9/09-7/14/09; ND 6/16. Pet 6/12-no mets except lymph node in neck removed on 6/16. Chyle leak,2nd surg to repair. Dilate esophagus 4/15/10. Clear PET 12/17/10
| | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | Senior Patient Advocate Patient Advocate (old timer, 2000 posts) Joined: Sep 2006 Posts: 8,311 | Why doesn't he go back to work on the line and then develop his leg or foot problems due to the working conditions and then file for work related disability? Two can play this game.
Re the creditors calling. get their name and address and write a quick "do not call me" letter and by law they are required to stop. If they continue to call you, write down the time and hire an atty as there are big fines that can be imposed federally.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | Joined: Jul 2008 Posts: 507 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Jul 2008 Posts: 507 | Cheryl, Since your husbands has qualified for SSD benefits, I believe he also qualifies for Medicare after receiving SSD for two years.
To help bridge those two years of medical coverage you might want to looking into COBRA. If you husband is fired the Federal Government has currently been covering up to 60% of COBRA cost for fired and laid-off workers.
Your husband's employer is required to provide you all of the details of COBRA and allow him to keep his policy for a minimum of 18 months, basically at the 'group rate' his employer is paying less anything the Federal Government will currently pick up under the 'Recovery Act'.
In some states, under certain conditions (including disability) COBRA coverage can last for more than 18 months. For Example, in California it can last up to 36 months (Federal COBRA - 18 + State COBRA - 18).
Good Luck
Don TXN2bM0 Stage IVa SCC-Occult Primary FNA 6/6/08-SCC in node<2cm PET/CT 6/19/08-SCC in 2nd node<1cm HiRes CT 6/21/08 Exploratory,Tonsillectomy(benign),Right SND 6/23/08 PEG 7/3/08-11/6/08 35 TomoTherapy 7/16/08-9/04/08 No Chemo Clear PET/CT 11/15/08, 5/15/09, 5/28/10, 7/8/11
| | | | Joined: Jan 2009 Posts: 216 Gold Member (200+ posts) | Gold Member (200+ posts) Joined: Jan 2009 Posts: 216 | I think the "do not call" thing only applies after a debt is turned over to a collection agent - that's when the Fair Debt Collection Practices Act kicks in. As long as it's the creditor themselves calling from in-house they can get by with a lot. On bad days I pick up the phone and chew some butt since I've told them all before - I ask them to go back and read their notes they should have for the past 3 months at least....anyhow, as soon as the FDCPA kicks in, they will get a letter. They already have emails and phone notes. I even had one hang up on me - I consider that to be an accomplishment!
CG to H with SCC BOT T4N2cM0 dx 12/19/08, teeth removed pre-tx; Erbitux & RT-done 3/12/09, PEG 2/9/09-7/14/09; ND 6/16. Pet 6/12-no mets except lymph node in neck removed on 6/16. Chyle leak,2nd surg to repair. Dilate esophagus 4/15/10. Clear PET 12/17/10
| | | | Joined: Jan 2009 Posts: 216 Gold Member (200+ posts) | Gold Member (200+ posts) Joined: Jan 2009 Posts: 216 | Thanks for the info on COBRA. I will look into that as soon as the time comes.
CG to H with SCC BOT T4N2cM0 dx 12/19/08, teeth removed pre-tx; Erbitux & RT-done 3/12/09, PEG 2/9/09-7/14/09; ND 6/16. Pet 6/12-no mets except lymph node in neck removed on 6/16. Chyle leak,2nd surg to repair. Dilate esophagus 4/15/10. Clear PET 12/17/10
| | | | Joined: Jan 2009 Posts: 225 "OCF across the pond" Gold Member (200+ posts) | "OCF across the pond" Gold Member (200+ posts) Joined: Jan 2009 Posts: 225 | Ooops, my finger must have stuttered, I pay �202.93 a month. Wow, �2002 a month, I don't even earn that. Anyway, i think it's good value for money, at the �202/month not the previous amount.
Girlfriend to Martin 49 years old at diagnosis Diagnosed with SCC unknown primary June 2008. Cancer found in single node Stage N2A (3 to 6cm). Tonsilectomy 16th june, Radical modified neck dissection left side 30th june. 30 TX radiotherapy ended 9th October First comparative study scan came back clear
| | | | Joined: Feb 2007 Posts: 1,940 "OCF across the pond" Patient Advocate (1000+ posts) | "OCF across the pond" Patient Advocate (1000+ posts) Joined: Feb 2007 Posts: 1,940 | i thought you must have made a typo lol.Either that or you are very very rich!!!
Liz in the UK
Husband Robin aged 44 years Dx 8th Dec 2006 poorly differentiated SCC tongue with met to neck T1N2cM0 Surgery and Radiation.Finished TX April 2007 Recurrence June/07 died July 29th/07.
Never take your eye off the ball, it may just smack you in the mouth.
| | | | Joined: Jan 2009 Posts: 225 "OCF across the pond" Gold Member (200+ posts) | "OCF across the pond" Gold Member (200+ posts) Joined: Jan 2009 Posts: 225 | Maybe when I win the Euromillions!
Girlfriend to Martin 49 years old at diagnosis Diagnosed with SCC unknown primary June 2008. Cancer found in single node Stage N2A (3 to 6cm). Tonsilectomy 16th june, Radical modified neck dissection left side 30th june. 30 TX radiotherapy ended 9th October First comparative study scan came back clear
| | | | Joined: Aug 2008 Posts: 96 Supporting Member (50+ posts) | OP Supporting Member (50+ posts) Joined: Aug 2008 Posts: 96 | I was surprised to see this post still getting replies after all this time. The ironic thing is, I am left with a $310 Fentanyl precription that I filled 2 days before Ron died. I called the pharmacy and told them I had not even unstapled the bag, but they "could not" take it back. They told me to wait for one of the special disposal days to come so I could throw them away. Yeah.....Just another thing that makes me want to scream! Lori
Lori, cg to H Ron, age 56. Stage IV Oral SCC-T1N2. Tongue resected and right ND 8/05. Teeth removed, PORT, PEG, IMRT x33, Cisplatin x3. Tx ended 10/05. Recurrence 7/08 Stage IV. Surgery 8/30/08. 2nd recur. 11/08. 2nd surgery 2/2/09. 3rd recur. 4/9/09. Erbitux wkly. 5/09-? Ron died 6/6/09. Lori also passed away 8/20/11, colon cancer | | | | Joined: Jan 2009 Posts: 216 Gold Member (200+ posts) | Gold Member (200+ posts) Joined: Jan 2009 Posts: 216 | yep, that would make me want to scream too.....it's endless
CG to H with SCC BOT T4N2cM0 dx 12/19/08, teeth removed pre-tx; Erbitux & RT-done 3/12/09, PEG 2/9/09-7/14/09; ND 6/16. Pet 6/12-no mets except lymph node in neck removed on 6/16. Chyle leak,2nd surg to repair. Dilate esophagus 4/15/10. Clear PET 12/17/10
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