| | Joined: Mar 2008 Posts: 3,082 Patient Advocate (old timer, 2000 posts) |  Patient Advocate (old timer, 2000 posts)
Joined: Mar 2008 Posts: 3,082 | Mrs Grant
If you join OCF as a regular member for only $50 the first year and then only $25 renewal dues, you will get a GORGEOUS silver colored LABEL PIN that would just be perfect to put on your work/school badge. It has the usual fastener (attached pin post with cap) so just push it onto the badge laminate and cap it and there you go: oral cancer awareness in a fashionable manner.
I love mine and change it from shirt to shirt - being retired I now "don't need no stinking badges" (homage to old Westerns)
Charm
65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin
Passed away 4-29-13
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Stephanie, Im so sorry you are going thru this right now. You are such a vibrant, positive young lady that its very sad to hear of your recurrance. I had one too only 7 months after finishing tx OC came back. Now a year later Im doing much better. You can get past this and go back to your happy, health self again. Please check in from time to time to let us know how you are.
Wishing you the best with everything!
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | Geez Stephanie, it sounds as if you had a major problem going on. 6 to 8 buckets is a lot of liquid for anyone or anything . I bet you felt miserable and had a ton of worries going on. Lets hope this doesn't happen again. Blockage is worse than diarreha I would say. For me blockage was the worse of the 2. I am praying you get to go home real soon and that this doesn't occur again. Good luck and keep the spirit up and running.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Jul 2008 Posts: 228 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Jul 2008 Posts: 228 | Jim and Christine-
Thanks for the concern! I did make it home from the hospital yesterday.Woohoo! I'm still trying to gain weight - right now I'm maintaining (I THINK) - so I can get rid of my NG tube. My biggest concern right now is losing weight from the nausea of my next chemo cycle and landing my butt in the hospital again because I'm scheduled for chemo at the end of this coming week! It's a vicous cycle! They can't guarantee that it won't happen again - even if I am fixed this time - there was just a necessary fat layer that my body randomly decided to lose around my small intestines and they don't know if my body would do that again or try and lose fat from somewhere else the next time. I would LOVE to be able to put back on the 20 pounds I've lost in the last week or so, but I have a feeling it's going to take a while to put on since I have no clue how I lost it in the first place! So, I'm hoping to stay out of the hospital for a while - and get on with beating this cancer thing again!
Stephanie, 23, SCC on the right side of my tongue, surgery on 5-19-08, over half my tongue removed, free flap constructed from my forearm, bilateral neck dissection, one positive node. Radiation (32) and chemo (carboplatin) started on 6-16-08. Recurrence 4/09 in lungs.
**** Stephanie passed away 12.15.09.... RIP our dear friend****
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | Yep, it's time to put on the butt kicking clothes and whip some OC big time. Go for a KO in the 1st round. You have the spieit it takes and I'm betting on you and have you in my prayers.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
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