#94599 04-29-2009 01:13 PM | Joined: Nov 2008 Posts: 72 Supporting Member (50+ posts) | OP  Supporting Member (50+ posts)
Joined: Nov 2008 Posts: 72 | So I have been searching everywhere for Oral Cancer Awareness products and they seem to be pretty limited. In particular I am looking for a lanyward with the awareness ribbon on it. I would like to wear it at school/work with my badge on it. I can't seem to find a thing.
Anyone know where I can buy awareness products?
Thanks
*Shaylynn*
11.25.08 SCC of tongue diagnosed @ age 23 T2N2cM0
12.20.2008 Partial glossectomy & left neck dissection. Clear margins.
6.24.09-Pet Scans show 2 areas of concern
8.5.09-Recurrence-Perotid Gland and swollen node removal
9.29.09 Carboplatin & Taxol x8 Tomo x39
11.19.09 WILL COMPLETE TREATMENTS!
| | | | | Joined: Oct 2007 Posts: 71 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Oct 2007 Posts: 71 | I found this web site that has Oral Cancer products. I didn't see any lanyards but you might see something else or call them because they custom make items. I ordered several shirts and stickers and was very happy with the products. Here is the web site http://www.zazzle.com - In the search area type in Oral Cancer. Tammy
Last edited by Tammy63; 04-29-2009 06:11 PM.
Tammy 43 yr non smoker- Dx-10/11/07 Stage 4 Tongue Cancer Surg.10/17/07, 1/4 Tongue and 14 Lymph nodes 5 positive, Peg tube/Chemo port,Chemo 3 wks/Radiation 6 wks begins 11/07 end 02/08.Teeth removed prior to radiation. PetScan 05/08 CLEAR 09/09. 2011 diag. w/osteoradionecrosis.100 HBO's
| | | | | Joined: Jun 2008 Posts: 475 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Jun 2008 Posts: 475 | That is a good site, but it would be even greater if the proceeds went to oral cancer causes. I will look into that. Don't know if they do. But at least it is good to see oral cancer on something!!!
We have items in our store as well, tote bags, some shirts too. You can help OCF at the same time!
Susasn
Susan Lauria - OCF Director of Events - Always looking for volunteers to help spread the word about early detection! Contact me if you can help!
*Brother passed away from tongue cancer in 2006 at age 47, was co-caregiver, he was non-smoker/casual drinker
LETS MAKE ORAL CANCER HISTORY!
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 |
Susan, at the OCF walks will they have items to buy? If not, that might be an easy way to make some extra $$$ for OCF.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | | | | Joined: Jun 2008 Posts: 475 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Jun 2008 Posts: 475 | That is a good idea Christine. Usually the group doing the event gives away t-shirts with registration, I will pass your idea along!
See you Saturday, hope the weather holds out!
Susan Lauria - OCF Director of Events - Always looking for volunteers to help spread the word about early detection! Contact me if you can help!
*Brother passed away from tongue cancer in 2006 at age 47, was co-caregiver, he was non-smoker/casual drinker
LETS MAKE ORAL CANCER HISTORY!
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | I have seen some of their shirts, They are no way near the quality of OCF shirts. Just made from the cheapest cotton and shrink. OCF shirts hold their shape after many washings. When the 250 from the gov. comes I might have to order 2 more . They are comforatable . I wore one to Sam's club tonite and it was noticed by a lot of people. 2 of them in particular.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | My Dr has a picnic and foots the bill himself for all of the food and prizes. The hospital pays for the shirts. THere had to be at least 200 there last year. It was fun even if I had to watch the food disappear. LOL Damn pigs.. It is set for June 7th this year. Anyone want to be my date?
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Jul 2008 Posts: 228 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Jul 2008 Posts: 228 | I got a few of my cancer things from cafepress.com You can run a search and pull up lots of fun stuff. Some of them are definitely funny and entertaining.
Stephanie, 23, SCC on the right side of my tongue, surgery on 5-19-08, over half my tongue removed, free flap constructed from my forearm, bilateral neck dissection, one positive node. Radiation (32) and chemo (carboplatin) started on 6-16-08. Recurrence 4/09 in lungs.
**** Stephanie passed away 12.15.09.... RIP our dear friend****
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 |
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | | Joined: Jul 2008 Posts: 228 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Jul 2008 Posts: 228 | I'm doing alright! I got hospitalized like over a week ago (hopefully going home today) - I don't remember the first few days at all. I had my first chemo (for my recurrence) and somehow in like 2 days lost too much weight that I had two arteries that closed off my small intestines and kept me from being able to eat?! It's weird, and I don't really know all the details - but I got really sick from it - somehow lost over 20 pounds in like two days (I'm 5'10 and according to my scale at home before I was admitted I was about 125 pounds). (I'm still down about 10-15 from 2 weeks ago - 131ish) - and had to have my stomach pumped and yada yada because I could not stop vomiting bile (I forget how many liters of stuff the pumped out of my stomach that one night that was just sitting in my stomach unable to go through my intestines but I think it was like 6-8 buckets). I'm on a liquid diet for now, but I'm putting weight back on slowly and hopefully will be back to normal in a week or two. I'm just dying for solid food! I'm eating lots of broth and I have a NG tube into my jejeunam (??) and I have that running as kind of an added nutrients thing - they want me to eat as many calories by mouth as I can. So, I'm just hanging out waiting and trying to gain weight to open that passageway back up so I can eat!!!! So, as usual, no one is really sure why this happened to me. Originally they thought it was chemo related, but now they think it's unrelated! So, hopefully I'll get some answers! I don't want this to possibly happen again if I lose 5 pounds in the future. So, here I am once again being the weird one!
Stephanie, 23, SCC on the right side of my tongue, surgery on 5-19-08, over half my tongue removed, free flap constructed from my forearm, bilateral neck dissection, one positive node. Radiation (32) and chemo (carboplatin) started on 6-16-08. Recurrence 4/09 in lungs.
**** Stephanie passed away 12.15.09.... RIP our dear friend****
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