#94498 04-28-2009 12:19 PM | Joined: Jul 2006 Posts: 388 Platinum Member (300+ posts) | OP  Platinum Member (300+ posts)
Joined: Jul 2006 Posts: 388 | I went to the dentist today and was mentioning to her long-time hygenist about the fluoride trays that have been used by so many in here. She asked if I would pose the question as to what kind (brand name, etc.) folks used, as the ones they use in her practice are very runny. When they tried a new one, it hardened like cement, so could you help by just mentioning what kind of fluoride your dental or ENT office suggested? Thanks so much...JaneP.
Husband: 3 SCC gum and cheek cancers 2002, 2005, 2006: surgery only. Scans clear after removal of small, well differentiated, non-invasive cancers. No radiation. 4th SCC lip diagnosed 4/13/07 - in situ, removed in biopsy. More lip removed 2/8/08 - dysplasia. 2 Biopsies 3/17/09 no cancer (lichenoids)
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | I use a 1.1% sodium fluoride gel which is a prescription gel and the brand name I first started with was Prevident. It was very expensive so I have now switched to a generic brand and I can't think of it's generic name.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | Look in the bathroom on the container LOL . Sorry David but had to say that.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
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Joined: Sep 2006 Posts: 493 | Jane
Colgate Gel-Kam
0.4% Stable Stannous Fluoride Preventive Treatmnet gel
Use it every night, haven't had any dental issues...yet.
Stoj
Tim Stoj
60 yr old. Dx Jun 06 with BOT Stage IV. Neck dissesction on 19 Jun 06. Started Tx on 21 Aug 06/completed 33 IMRTs and 3 CT (2 Cisplat & 1 Carboplat) on 5 Oct 06.
| | | | | Joined: Aug 2007 Posts: 83 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Aug 2007 Posts: 83 | I use Acclean - Home Care Gel 1.1%. Neutral Sodium Fluoride.
My dentist gives me "samples" The tubes have 2 Fl. oz
Bill Van Horn-53 ex-smoker, social drinker, Biopsy 8/24, Diagnosed 8/30/07 BOT T2N2-B MX Stage IV. Started treatments 10/1/07. IMRT 35 x, Cisplatin - 3 cycles - completed treatment 11/16/07. CT Scans on 1/15/08 all clear Selective neck dissection 1/28/08. All nodes clear.
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Joined: Jul 2008 Posts: 507 | I use Neutra Maxx 5000 Gel.
It is 1.1% Sodium Fluoride and comes in a 4.3oz bottle.
I purchase it at the CCC's dental group office for $12.
It says RX only, but I just walk in and buy it.
It seem to work fine in the trays.
I used to use Omni Gel 0.4% Stannous Fluoride.
It stained my teeth, but otherwise worked fine.
They told me that Stannous Fluoride is a bit better than Sodium Fluoride but the difference is insignificant so they switch when staining is a problem.
Don
TXN2bM0 Stage IVa SCC-Occult Primary
FNA 6/6/08-SCC in node<2cm
PET/CT 6/19/08-SCC in 2nd node<1cm
HiRes CT 6/21/08
Exploratory,Tonsillectomy(benign),Right SND 6/23/08
PEG 7/3/08-11/6/08
35 TomoTherapy 7/16/08-9/04/08 No Chemo
Clear PET/CT 11/15/08, 5/15/09, 5/28/10, 7/8/11
| | | | | Joined: Jul 2006 Posts: 388 Platinum Member (300+ posts) | | OP Platinum Member (300+ posts)
Joined: Jul 2006 Posts: 388 | THANKS to all who reported - I will pass this info on to my dentist's hygenist! Warmly, JaneP. 
Husband: 3 SCC gum and cheek cancers 2002, 2005, 2006: surgery only. Scans clear after removal of small, well differentiated, non-invasive cancers. No radiation. 4th SCC lip diagnosed 4/13/07 - in situ, removed in biopsy. More lip removed 2/8/08 - dysplasia. 2 Biopsies 3/17/09 no cancer (lichenoids)
| | | | | Joined: Mar 2008 Posts: 3,082 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Mar 2008 Posts: 3,082 | Lostpassword
Hope it's not too late to chime in. I started off with the Colgate Prevident but it was too thick and didn't work well especially since it came in this bottle with a big hole in the top- it was actually labelled as a toothpaste. Very expensive also at $16 a bottle
Switched pharmacies and now I get a generic version: Cypress pharmaceutical's "SF 5000 Plus" 1.1% soldium flouride prescription dental cream. It is super cheap as it is covered by my insurance (unlike Colgate Prevident) and I get two tubes a month for $3
65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin
Passed away 4-29-13
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | That's it Cypress. That;s the generic I get. Ugh Chemo Brain.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Aug 2007 Posts: 83 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Aug 2007 Posts: 83 | Just happen to be my dentist today for my 3 month cleaning. He wanted me to try a couple of types of Prevident, one for Dry month, one for sensitive teeth. They are 3.3 oz
Also gave me my supply of Acclean - Home Care Gel 1.1%. Neutral Sodium Fluoride.
He always gives me these sample...not sure how it works. You may want to askk your Dentist for ant freebies.
Bill Van Horn-53 ex-smoker, social drinker, Biopsy 8/24, Diagnosed 8/30/07 BOT T2N2-B MX Stage IV. Started treatments 10/1/07. IMRT 35 x, Cisplatin - 3 cycles - completed treatment 11/16/07. CT Scans on 1/15/08 all clear Selective neck dissection 1/28/08. All nodes clear.
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