| | Joined: Jan 2009 Posts: 1,844 Patient Advocate (1000+ posts) | OP  Patient Advocate (1000+ posts)
Joined: Jan 2009 Posts: 1,844 | Ok so I was found to have half the level of testosterone I should. I started going to a "wound care" dr for my HBO treatments and he's got me on Androgel now. I've been on it the last two days and had two days where I actually felt "normal" I don't know if that's the steroids if they've "taken effect" that quickly or if it's the HBO or the beautiful weather. Any which way it is I hope it stays, the fatigue syndrome is driving me crazy.
Young Frack, SCC T4N2M0, Cisplatin,35+ rads,ND, RT Mandiblectomy w fibular free flap, facial paralysis, "He who has a "why" to live can bear with almost any "how"." -Nietzche "WARNING" PG-13 due to Sarcasm & WAY too much attitude, interact at your own risk.
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Good luck Eric. It sucks to feel unbalanced.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | Eric, My son put me onto drinking Muscle Milk a couple of times a day about an hour before exercising. He alkso gave me one of the heavy rubber bands that you stand on and pull up tp at least your ears. I do it to the top of those things. LOL,, At 1st I only did ten, when I found out it isn't as easy as it looks, but hard to do. NOw I do 20 repetitions at a time and do them no less than 4 times a day. I do 25 to 30 one time each daily too. It works and builds you up. As you can see by my posts, I have to keep usy all day bt after awhile, your body gets into the routine. My arm muscle is coming back and the hangin fat has almost disappeared too. LOL if I had teeth, I owuld look human again. Try it and I bet you will feel better and have more go power.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Jul 2006 Posts: 388 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Jul 2006 Posts: 388 | Jim - What's the name of that "giant rubber band" and where did you (or your son?) get it? THANKS!
Husband: 3 SCC gum and cheek cancers 2002, 2005, 2006: surgery only. Scans clear after removal of small, well differentiated, non-invasive cancers. No radiation. 4th SCC lip diagnosed 4/13/07 - in situ, removed in biopsy. More lip removed 2/8/08 - dysplasia. 2 Biopsies 3/17/09 no cancer (lichenoids)
| | | | | Joined: Jan 2009 Posts: 1,844 Patient Advocate (1000+ posts) | | OP Patient Advocate (1000+ posts)
Joined: Jan 2009 Posts: 1,844 | Lost,they are just resistance bands and walmart or a local sports store should carry them. I have a set and I'm seeing if I can bring them into my hbo tx with me as they are just plastic, foam and rubber. Issue is I just haven't had the umpf even to do those...like today it's all I can do to get out of bed and I'm too nauseous to swallow my egcg and ginseng.
Young Frack, SCC T4N2M0, Cisplatin,35+ rads,ND, RT Mandiblectomy w fibular free flap, facial paralysis, "He who has a "why" to live can bear with almost any "how"." -Nietzche "WARNING" PG-13 due to Sarcasm & WAY too much attitude, interact at your own risk.
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | It took me a few tries Eric, but after the 1st success it's no problem now and I do feel much better. Good luck fellow, you can do it.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
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