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#93763 04-15-2009 10:21 PM
Joined: Nov 2005
Posts: 1,128
Pete D Offline OP
Patient Advocate (1000+ posts)
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Joined: Nov 2005
Posts: 1,128
Went to Gastro-Doc today, who installed my great 20FR PEG in December 2008, for some granulation weeding (flesh growing out around the PEG stoma), which he did with the usual silver nitrate sticks (I could be doing that at home if they'd just let me have the sticks <grinz>). A little bit of pain, but he used a topical anesthetic (Lidocaine), so it was tolerable.

He's only had one other long-term PEG'er, who needed that done every other week. Said he put replaced the usual PEG with one that was 'low profile' and the granulation quit, so we'll try that if mine becomes a long-term problem.

I showed him where Dr Haakenslash had been silver nitrating my free flap, but that doesn't hurt because there aren't any nerves.


Age 67 1/2
Ventral Tongue SCC T2N0M0G1 10/05
Anterior Tongue SCC T2N0M0G2 6/08
Base of Tongue SCC T2N0M0G2 12/08
Three partial glossectomy (10/05,11/05,6/08), PEG, 37 XRT 66.6 Gy 1/06
Neck dissection, trach, PEG & forearm free flap (6/08)
Total glossectomy, trach, PEG & thigh free flap (12/08)
On August 21, 2010 at 9:20 am, Pete went off to play with the ratties in the sky.
Pete D #93791 04-16-2009 05:36 PM
Joined: Jun 2007
Posts: 10,507
Likes: 7
Administrator, Director of Patient Support Services
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Pete, nice to see you posting. Hope you are doing ok. Next time you see the PEG doc ask him if he has something like a small clamp for it. Most people havent heard of this before. I got one from my HBO nurse. Its a tiny plastic clamp like what you would see in wood or metal shop. It keeps the PEG tube from accidently getting uncorked and having an embarrasing moment of leakage.


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
ChristineB #93816 04-16-2009 09:20 PM
Joined: Nov 2005
Posts: 1,128
Pete D Offline OP
Patient Advocate (1000+ posts)
OP Offline
Patient Advocate (1000+ posts)

Joined: Nov 2005
Posts: 1,128
I have the GOOD PEG and it came with the clamp and two ports, one small and one large! Same clamp as the kind I have on a Super Siphon hose in my garage! $2 for the clamp.

http://www.ezsiphon.com/Default.htm


Age 67 1/2
Ventral Tongue SCC T2N0M0G1 10/05
Anterior Tongue SCC T2N0M0G2 6/08
Base of Tongue SCC T2N0M0G2 12/08
Three partial glossectomy (10/05,11/05,6/08), PEG, 37 XRT 66.6 Gy 1/06
Neck dissection, trach, PEG & forearm free flap (6/08)
Total glossectomy, trach, PEG & thigh free flap (12/08)
On August 21, 2010 at 9:20 am, Pete went off to play with the ratties in the sky.
Pete D #93851 04-17-2009 04:23 PM
Joined: Jun 2007
Posts: 10,507
Likes: 7
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)
Offline
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)

Joined: Jun 2007
Posts: 10,507
Likes: 7
If your PEG tube has all that stuff then you are all set. The clamps sure came in handy for me to keep from having any embarrassing moments.


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
ChristineB #93889 04-18-2009 08:21 PM
Joined: Nov 2005
Posts: 1,128
Pete D Offline OP
Patient Advocate (1000+ posts)
OP Offline
Patient Advocate (1000+ posts)

Joined: Nov 2005
Posts: 1,128
They make it a lot less messy just doing the routine stuf. I can even tell by the noise the food pump makes if I forget to open the clamp when I hook up and start it!


Age 67 1/2
Ventral Tongue SCC T2N0M0G1 10/05
Anterior Tongue SCC T2N0M0G2 6/08
Base of Tongue SCC T2N0M0G2 12/08
Three partial glossectomy (10/05,11/05,6/08), PEG, 37 XRT 66.6 Gy 1/06
Neck dissection, trach, PEG & forearm free flap (6/08)
Total glossectomy, trach, PEG & thigh free flap (12/08)
On August 21, 2010 at 9:20 am, Pete went off to play with the ratties in the sky.

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