#91019 03-03-2009 01:42 AM | Joined: Sep 2007 Posts: 60 Likes: 2 Supporting Member (50+ posts) | OP  Supporting Member (50+ posts)
Joined: Sep 2007 Posts: 60 Likes: 2 | I need some advice on what is going on with my mouth and need to know if anyone has gone through this.
I have been cancer free for 1 � years now. In the last 2 months I have done 30 HBOT, 6 implants place in on 12/30, two teeth pulled, bridge and so far 10 teeth capped.
In the last month I have noticed that my mouth is very sensitive to foods again. If I eat anything that has too much spice in it, I go into burning feeling in my mouth. I can not use ketchup, mustard, mayo and even salt. Even my tooth paste cause mouth pain.
I was talking to my sister who work for a dentist and she thinks because of the HBOT it increase my sensitive.
Or
Could it be cause by stress, found out 3 weeks ago my job is coming to end and looking at being transfer to a new state.
If anyone has any advice please let me know.
Thanks
Round 1 5/2007 - 35 Rad treatments and 6 chemo of cisplatin
TPN feeding for 5 months during treatment and after.
Tumor was on the right side of the tongue.
Round 2. Tumor on the lower back right jaw area. Surgery on 3/12/2010 to remove the tumor, rebuild the jaw and some work on the back tongue.
| | | | | Joined: Oct 2007 Posts: 71 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Oct 2007 Posts: 71 | I think you need to ask Brian Hill this is his field. He is one of the top posters here on this site. You are at the right place for advice.
Take Care
Tammy 43 yr non smoker- Dx-10/11/07 Stage 4 Tongue Cancer Surg.10/17/07, 1/4 Tongue and 14 Lymph nodes 5 positive, Peg tube/Chemo port,Chemo 3 wks/Radiation 6 wks begins 11/07 end 02/08.Teeth removed prior to radiation. PetScan 05/08 CLEAR 09/09. 2011 diag. w/osteoradionecrosis.100 HBO's
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | By your own admission your mouth has endured a lot of trauma in the past 2 1/2 months so perhaps you need to give it more time to recover before you get concerned. Heck it took all of 2 years for my mouth to recovery from my Tx so by my standards you weren't fully recovered from your cancer Tx before they attacked your mouth again.
I doubt the HBO Tx's have anything to do with it as their function is to promote faster healing by forcing more O2 into the cells but I'm not any sort of expert on that topic.
There are many on this site that have had HBO so maybe they can shed some light on that topic.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Apr 2006 Posts: 583 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Apr 2006 Posts: 583 | Another Thought? Could be THRUSH .. When I get this my mouth is very sensitive... Burns and such... So you might want to check on that.. We are prone to this due to Dry Mouth..
Hope this might help
Diane
2004 SCC R.tip 1/4 tongue Oct. 2005 R. Neck SCC cancer/Chemo Cisplatin 2x/8wks. Rad. Removed Jugular vein, Lymph gland & some neck muscle. TX finished 1/20/06... B.Cancer 3/29/07 Finished 6/07 Bi-op 7/15/09 SCC in-situ, laser surgery removed from 1st. sight. Right jaw replacement 11/3/14. 9 yrs cancer free as of Jan. 2015
| | | | | Joined: Sep 2005 Posts: 325 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Sep 2005 Posts: 325 | I have experienced the same sort of mouth symptoms you have. It got so bad that I went through the whole biopsy, CT/PET scan routine again to see if I had a recurrence. They assured me I did not, but that the biopsied pieces of tissue we sent in showed "radiation changes". I am 2 years out from my radiation therapy, and have noticed a couple of things that may play into the pain. I have some scar tissue at the back of my tongue that is very sore whenever I talk or yawn or otherwise move my tongue. I have also noticed that the numb places on my neck and ear from the surgery have become enervated again, I can feel sensation on this side my neck exactly as I can on the other side. It is possible that the tightening in the scarred area of the tongue and the renewed sensation in the area have combined to give yet another gift of oral cancer!
On the up side, I have lost 45 pounds.
You don't feel much like eating when it hurts to do so.
Yoghurt and soft boiled eggs are easiest to eat, because they coat the sore areas and give a little protection.
If you want the names of the products I use to reduce the mouth pain, rinses and ointments and sprays, e-mail me and I will pass that info on.
Live well,
Andrea
SCC L lat tongue,Dx 9/15/05 T1N0MX L MND and L lateral hemiglossectomy 10/03/05. Recurrence 11/15/06 2nd surgery 12/04/06 hemiglossectomy 3rd surgery 01/15/07 tonsillectomy Radiation 01/25/07 to 03/08/07 3-D/CRT X 30
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Diane,
I had already asked about Thrush and such and the answer was no.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | Scar tissue can interfere with eating, That I know for sure , but there can't be scra tissue everywhere that we can hurt.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
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