| | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | OP  Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | He has one person that handles his calls and this is the 1st time I haven't gotten in thru her. Me and her are buddies as I am with the Dr and the others in there. The Director of the Cancer unit is there too and he is a friend LOL Really I am treated like family
. They treat my dauther that way too and 1 Dr aalways ask how Lori is, LOL she is 5ft10in and thin and pretty. Looks like her daddy LOL
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Mar 2008 Posts: 3,082 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Mar 2008 Posts: 3,082 | EZ JIM
I share everyone's concern but hear you loud and clear about the ER - not only is it time and $$$ wasted, in my experience, unless it is obvious trama like broken bone or garden variety illness, it turns into a bad "House" episode of repeated wrong diagnosis (RWD) after RWD, with attendant suffering.
Take the pain pills buddy, lots of them but before run out to the local drugstore and pick up a very inexpensive jar of glycerin suppositories. For me at least, they have worked as advertised: within one hour on otherwise verging on impacted constipation.(okay so that time I used two instead of one -it's not like you will overdose or even can)
Regular laxatives (and I was prescribed them all) never worked and pericolase OTC made me vomit (no snickering from over the pond please, yes I did use the right hole)
Seriously the only warning I could ever find was a generic one that if it was lower abdominal pain, don't use, you need to see a doctor, It is so Easy (bad pun)
I asked my doctors over the course of the last two years of narcotic induced constipation why they don't recommend glcerin suppositories and they all replied: patients do not know how to use them and the labels don't explain and even when we(doctors) do explain, patients don't follow the basic rules and don't go deep enough or hold long enough
Okay WARNING NOT FOR THE SQUEAMISH -AVERT YOUR EYES AND QUIT SCROLLING NOW - GRAPHIC MEDICAL S**t AHEAD LITERALLY
1. If the suppository is too soft, it may be chilled in the refrigerator or under cold running water before unwrapping. Remove the wrapping and moisten the suppository with water. Lie on your left side (if you are right handed) and draw your knees up towards your chest, with the right leg drawn up more than the left.
2. Using your index finger or middle finger, whichever you find easier, gently push the suppository into the rectum, pointed end first.
3. The suppository should be inserted as far as possible, pushing the end of the suppository sideways to ensure contact with the wall of the bowel.
4. Lower your legs to a comfortable position to help you to hold the suppository in place.
5. Retain the suppository in place for at least 15 to 20 minutes if possible. If you feel the suppository must come out immediately, it has not been inserted high enough.
6. You may feel an immediate urge to go to the toilet. Try to ignore this as the suppository will not work for at least 15 minutes.
Being a tough guy, I ignore step 1 and just shove one or two up the full length of my middle finger and sit on the toilet and read Maximum time was one hour and it saved some poor newbie resident from impaction duty
Last edited by Charm2017; 03-18-2009 11:11 PM. Reason: bolded essential tricks
65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin
Passed away 4-29-13
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Jim,
Show up in his waiting room shirtless and tell the guard dogs you're not leaving until you see the doc. Bet that will change their tune.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Sep 2007 Posts: 148 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Sep 2007 Posts: 148 | WSell after reading this I sure hope you have gone to get seen about! I hate to hear of being in pain I know its bad. I was told that if you get hooked on pain pills they can help you get unhooked and to not stay in pain take a pill! Take two if you need to. But do get to the Dr before you cant take it anymore. I will come back to check on you. Brenda
49 years young 9/2007 Squamous Cell Carcinoma 33 rad treatments. One year later, 9/17/2008 50 years old through the Grace of God. last check up all clear. Living life as it comes to me.
| | | | | Joined: Sep 2008 Posts: 489 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Sep 2008 Posts: 489 | So how is the pain today Jim?
And thank you Charm for more than I needed to know. LOL
Patty
48
SCC Floor of Mouth 7/06
9/06 Surgery, bilateral neck dissection, 58 nodes clear PT2pN0pMx
35 rad 2006
Recurred 6/08, 1 Carboplatin, 1 Cisplatin
Surgery 9/08 - Total glossectomy, free flap from pectoral muscle, left mandible replaced using fibula
35 IMRT & Erbitux 11/08
4/15/09 recurrence
6/1/09 passed away, rest in peace
| | | | | Joined: Feb 2007 Posts: 1,940 "OCF across the pond" Patient Advocate (1000+ posts) | | "OCF across the pond" Patient Advocate (1000+ posts)
Joined: Feb 2007 Posts: 1,940 | Charm have you NEVER heard of too much information.with everything you have inserted,over the pond is just about far away enough.LMAO
Liz in the UK
Husband Robin aged 44 years Dx 8th Dec 2006 poorly differentiated SCC tongue with met to neck T1N2cM0 Surgery and Radiation.Finished TX April 2007
Recurrence June/07 died July 29th/07.
Never take your eye off the ball, it may just smack you in the mouth.
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | OP Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | LOL that was good Charm. made me laugh pretty good, I use suppositories if thing get too tight . Now that i open the "door" I have the fly swatter in hand. Thanks all for the input as I read it all.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | OP Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | The pain right now is the take a perc and go to bed variety. I am just about to take a xanax, miracle mouth wash and in about 1/2 hr the percocet. Almost most forgot to answer Patty ,, sorry
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Sep 2008 Posts: 489 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Sep 2008 Posts: 489 | I am sorry that you are in so much pain. Try to relax and sleep through it. The days go faster that way and then you will have your appointment with the doctor. Sleeping through the night is my biggest problem right now. I go to sleep, but then about 2 AM I start waking up and just doze until about 7, then when it's time to get up of course I don't want to. I have not been napping because I thought that would help. It doesn't. I guess it is just a pain thing. It will go away soon I hope.
Take care Jim and sleep tight.
Patty
48
SCC Floor of Mouth 7/06
9/06 Surgery, bilateral neck dissection, 58 nodes clear PT2pN0pMx
35 rad 2006
Recurred 6/08, 1 Carboplatin, 1 Cisplatin
Surgery 9/08 - Total glossectomy, free flap from pectoral muscle, left mandible replaced using fibula
35 IMRT & Erbitux 11/08
4/15/09 recurrence
6/1/09 passed away, rest in peace
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | OP Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | I dozed off and on until 5 , then got up and hit the coffee button. Been up since cleaning strawberries and cutting them up and sweeting them some. Damn, after 8 already. Have a great day all.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
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