| | Joined: Sep 2008 Posts: 489 Platinum Member (300+ posts) |  Platinum Member (300+ posts)
Joined: Sep 2008 Posts: 489 | Mrs Greve,
I am so sorry for you and your family. I will keep you in my thoughts and prayers.
Patty
48
SCC Floor of Mouth 7/06
9/06 Surgery, bilateral neck dissection, 58 nodes clear PT2pN0pMx
35 rad 2006
Recurred 6/08, 1 Carboplatin, 1 Cisplatin
Surgery 9/08 - Total glossectomy, free flap from pectoral muscle, left mandible replaced using fibula
35 IMRT & Erbitux 11/08
4/15/09 recurrence
6/1/09 passed away, rest in peace
| | | | | Joined: Jul 2006 Posts: 388 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Jul 2006 Posts: 388 | Please know that no one understands what you are going thru more than this group of uplifting OCF members. You know you have us in your corner with strong and caring support thru every step. Talk to us anytime you need to, knowing we are always here for you. Warmly, JaneP
Husband: 3 SCC gum and cheek cancers 2002, 2005, 2006: surgery only. Scans clear after removal of small, well differentiated, non-invasive cancers. No radiation. 4th SCC lip diagnosed 4/13/07 - in situ, removed in biopsy. More lip removed 2/8/08 - dysplasia. 2 Biopsies 3/17/09 no cancer (lichenoids)
| | | | | Joined: Mar 2009 Posts: 23 Member | | Member
Joined: Mar 2009 Posts: 23 | My heart is heavy reading your story...my father had lymphoma over thirteen years ago, and watched him go thru that. Now i am my mom caregiver and reading all this, makes me wonder if it all worth the pain and agony....she is in rad treatments right now. 14 to go...she is getting peg tube today....hopefully releave the pressure of eating .....
my heart is heavy and my prayers are with you hun,honest to goodness for you and your family!! | | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | There really not a thing I can add except your family is in my prayers . Geez, I am tongue tied here for lack of words.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Jan 2009 Posts: 62 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Jan 2009 Posts: 62 | I am so sorry you and your boys are going through this. You guys have the toughest part of these horrible cancer situations. I'll be praying for your strength at this time. Carol
DX 6/05 Rt Tonsil SSC advanced to lymph node. Stage 4b. RND, took tonsils, strips off the back of tongue, throat and nose. 19 lymph nodes removed only 1 bad. Once healed, 7 weeks of treatment including 35 IMRT, 7 Cisplatin, 7 Erbitux and 35 nasty Amophostine. Almost 11 yrs out now. Woooo Hoooo!
| | | | | Joined: Jun 2008 Posts: 148 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Jun 2008 Posts: 148 | Our thoughts are with your family at this most difficult time.
Bill . . . SCC - originated in right tonsil, drifted into neck ( 28 lymph nodes removed - one positive ). Radical neck dissection in September 07, completed 34 radiation tx on January 4, 2008. Used Peg. Non smoker, 61, good shape, no previous health issues. Second year PET scan - "all clear".
| | | | | Joined: Jan 2008 Posts: 706 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jan 2008 Posts: 706 | I'm so sorry for what you're going through. I totally understand because I have just been through this myself. I have three teenagers who watched their father die from this horrible disease in a slow and torturous manner. Let me just say that they are probably stronger than you are right now. Someone said to me that as long as Mom holds up-the kids will also. I feel like they are getting over it faster than I am at this point. We were married for 20 years-not all peaceful but good for the most part and I feel like I lost a part of myself. Let me know if I can help in any way.
Sue
cg to husband, 48 Stage 1V head and neck SCC. First surgery 9/07. Radiation and several rounds of chemo followed. Mets to chest and lungs. "Life isn't about waiting for the storm to pass, it's about learning to dance in the rain." Went home to God on February 22, 2009.
| | | | | Joined: Feb 2007 Posts: 790 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Feb 2007 Posts: 790 | Hi there- I am so sorry that you are enduring this right now. I wish there was something that could change it.
We are here to support you and provide a shoulder to lean on.
KATE
Tongue Cancer T2 N0 M0 /
Total Glossectomy Due to Location of Tumor
Finished all treatments May 25 2007
Surviving!!!
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