| Joined: Mar 2002 Posts: 4,916 Likes: 63 OCF Founder Patient Advocate (old timer, 2000 posts) | OP OCF Founder Patient Advocate (old timer, 2000 posts) Joined: Mar 2002 Posts: 4,916 Likes: 63 | Bottom right hand pages have a edit date on them. All pages are minimum reviewed on a 6 month time period, pages that have constantly updating information, facts page, HPV page, etc. have this date as it is something that we recently started doing for our advisory doctor board more than the public. Pages in which information is less dynamic we have not done this to. You will not find an more up to date site on this disease on the web. Please note that the NCI oral cancer page has not been updated in two years, the CDC site has not been updated in three. The expenditures for these trusted government sites are at the bottom of their priority lists of things to spend money on, especial with the budget cuts they are all operating under. If there is a doubt in your mind that the information is current, please contact me directly and I have a master list of updates and schedule for review. THe science advisory board in the about us section of the OCF site will tell who is updating and / or reviewing our pages. If you are not conversant in how computers cache pages so they view quickly and let you sometimes see a page with is out of date, but has been updated please ask. Remember to dump the cache on your web browser on a regular basis to be sure you are seeing the most current version of the page, and not one from a previous visit to it that it has cached. Note bottom right hind corner of this page http://www.oralcancerfoundation.org/dental/dental-complications.htm
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant. | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 |
Brian, you are very good writing medical articles. The article was well written and informative. Im sure many more people understood it more than didnt. Personally, I am not the best at reading anything too complex, not just medical things. If it was written any other way then you are correct, there wouldnt be such valuable info included inside the article.
Thanks for everything you do. ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 5,260 | Seems I am walking behind you Christine. LOL Not a bad type view either..{~~} yahoooooo LOL
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April. --- Passed away 5/14/14, will be greatly missed by everyone here
| | | | Joined: Mar 2008 Posts: 3,082 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Mar 2008 Posts: 3,082 | Brian and John
Just to clarify: my comments were about mucositis not mucous. I never developed a viable coping strategy for the gagging mucous unless you count vomiting. That did work but I don't recommend it. Actually, one of the unexpected benefits of the traechestomy this time around is that huge gobs of mucous get expelled out of the stoma. Otherwise, it's still upchuck for relief. 65 yr Old Frack Stage IV BOT T3N2M0 HPV 16+ 2007:72GY IMRT(40) 8 ERBITUX No PEG 2008:CANCER BACK Salvage Surgery 25GY-CyberKnife(5) 3 Carboplatin Apaghia /G button 2012: CANCER BACK -left tonsilar fossa 40GY-CyberKnife(5) 3 Carboplatin Passed away 4-29-13
| | | | Joined: Mar 2008 Posts: 3,082 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Mar 2008 Posts: 3,082 | Brian and John I know this comment should await: [quote]We will start another treatment complication page on excess mucous production which is NOT mucositis.[/quote] but having just been woken up again by mucous, I should add that vomiting was reserved for those really thick semi solid mucous "plugs" that hang in the back of your throat and got more prevalent as the radiation GY total grew. They were the ones that made me vomit up my Ensure and cry over the lost calories or had me retching in the hospital. For the old run of the mill [quote]all the crud that is constantly draining and clogging up things that is a result of the sinus irritation from the treatments[/quote] my beloved SELTZER did indeed work as swish and spit. I never had a suction machine until this surgery - both the hospital built in and home portable - and it only works on the latter no former mucous, When you start up that page, I'd suggest noting there are these two types (or maybe it was just me lucky enough to have thick and thinner) Kudos to DebandBill for pointing it out here where technical accuracy is important. I have often seen this confusion in threads here but since I knew from the context whether they meant mucositis or mucous, I did not "correct" the posters. I only put this in so those to whom I recommended SELTZER for both, do not get confused. Another reason why I love what our over the pond friends call "soda" but I don't use that for fear of people using Coca Cola. 65 yr Old Frack Stage IV BOT T3N2M0 HPV 16+ 2007:72GY IMRT(40) 8 ERBITUX No PEG 2008:CANCER BACK Salvage Surgery 25GY-CyberKnife(5) 3 Carboplatin Apaghia /G button 2012: CANCER BACK -left tonsilar fossa 40GY-CyberKnife(5) 3 Carboplatin Passed away 4-29-13
| | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 5,260 | I am still looking for Seltzer Water. Where is the best store to find it?
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April. --- Passed away 5/14/14, will be greatly missed by everyone here
| | | | Joined: Sep 2008 Posts: 489 Platinum Member (300+ posts) | Platinum Member (300+ posts) Joined: Sep 2008 Posts: 489 | Jim
I would think that a liquor store would carry it as it is used as a mixer. Or possibly Walgreens?? Just no buying the stuff that they mix with it ok?
Patty
48 SCC Floor of Mouth 7/06 9/06 Surgery, bilateral neck dissection, 58 nodes clear PT2pN0pMx 35 rad 2006 Recurred 6/08, 1 Carboplatin, 1 Cisplatin Surgery 9/08 - Total glossectomy, free flap from pectoral muscle, left mandible replaced using fibula 35 IMRT & Erbitux 11/08 4/15/09 recurrence 6/1/09 passed away, rest in peace
| | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 5,260 | Got ya Patty. I haven't drank anything for years and forgot about Liquor stores, I will do as instructed and not buy anything premixed. There are no Walgreens open in this area yet but one is due to pop it's doors soon.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April. --- Passed away 5/14/14, will be greatly missed by everyone here
| | | | Joined: Sep 2008 Posts: 489 Platinum Member (300+ posts) | Platinum Member (300+ posts) Joined: Sep 2008 Posts: 489 | I have not tried it because I still have trouble with anything carbonated. I have a Pepsi sometimes, but I have to open it two days before I want to drink it and that just takes a lot of pre-planning. LOL Selzter water is different from club soda too so don't be tricked by some well meaning sales person. You do sound like you are feeling a little better. Must be the DQ. Patty
48 SCC Floor of Mouth 7/06 9/06 Surgery, bilateral neck dissection, 58 nodes clear PT2pN0pMx 35 rad 2006 Recurred 6/08, 1 Carboplatin, 1 Cisplatin Surgery 9/08 - Total glossectomy, free flap from pectoral muscle, left mandible replaced using fibula 35 IMRT & Erbitux 11/08 4/15/09 recurrence 6/1/09 passed away, rest in peace
| | | | Joined: Nov 2005 Posts: 1,128 Patient Advocate (1000+ posts) | Patient Advocate (1000+ posts) Joined: Nov 2005 Posts: 1,128 | Safeway has selzer water in cans and bottles.
Age 67 1/2 Ventral Tongue SCC T2N0M0G1 10/05 Anterior Tongue SCC T2N0M0G2 6/08 Base of Tongue SCC T2N0M0G2 12/08 Three partial glossectomy (10/05,11/05,6/08), PEG, 37 XRT 66.6 Gy 1/06 Neck dissection, trach, PEG & forearm free flap (6/08) Total glossectomy, trach, PEG & thigh free flap (12/08) On August 21, 2010 at 9:20 am, Pete went off to play with the ratties in the sky.
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