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Ray1971 #90159 02-16-2009 05:58 PM
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yeah that's me dancing with that old bag. That was her 50th BD party. I never thought I would be dancing with a 50 yr old! Life is cruel.


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
davidcpa #90167 02-16-2009 09:10 PM
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David: It is going to cost you BIG BUCKS to keep us from printing your comment about "the old bag" and sending it to your beautiful wife - you remember her - the one in the picture who appears to be dancing with her Uncle or Grandfather?? And do my eyes deceive me or is that older guy wearing socks with sandals?? Ewwwwwwwwwwwwww

smile

Donna

Last edited by Pandora99; 02-16-2009 09:24 PM.

Donna,68, SCC L Tongue T2N1MO Stg IV 4/04 w/partial gloss;32 radtx; T2N2M0 Stg IV; R tongue-2nd partial gloss w/graft 10/07; 30 radtx/2 cispl 2/08. 3rd Oral Cancer surgery 1/22 - Stage 1. 2022 surgery eliminated swallowing mechanisms so am now a “for life” tube feeder. I am working hard to get used to that while fulfilling my dreams. Surviving isn't easy,but grateful for EVERY day.Proudly Canadian - YES, UNIVERSAL HEALTH CARE IS WONDERFUL! (Not perfect but definitely WONDERFUL)
Pandora99 #90171 02-17-2009 05:13 AM
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No tennis shoes to keep up with the 50 kids that were there chasing Buddy.

Uncle...Grandfather???? I'm just a pup. Yeah life is cruel.


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
davidcpa #90210 02-18-2009 09:27 AM
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Hey everyone i hope you are all part of the OCF Facebook group because i added all the oral cancer walks that are coming up as new events. This way you can invite all your friends to the walk super easy, or send them the link to the page that gets them to sign up.
Just one more easy way we are getting people to sign up for walks.


brittany #90227 02-18-2009 06:58 PM
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Oh Dear !!!
Last summer I restricted my 17 yr. old grandson from getting on Facebook [after my computer fixit guy rescued my machine from a bad virus that he guessed came from My Space or Facebook] So now I have to hide the fact that I may get on Facebook or back down and let him get back on. "The world is too much with" this old lady. Amy


CGtoJohn:SCC Flr of Mouth.Dx 3\05. Surg.4\05.T3NOMO.IMRTx30. Recur Dx 1\06.Surg 2\06. Chemo: 4 Cycles of Carbo\Taxol:on Erbitux for 7 mo. Lost our battle 2-23-07- But not the will to fight this disease

:
brittany #90336 02-20-2009 07:51 AM
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Is the information on facebook the same as on the main OCF site? I would prefer to send people to the main OCF website where they would be exposed to more OCF information.
I don't think I will ever go on facebook or anything like it as I don't trust these sites. Look how they changed the "terms" and then reversed when people noticed. (Sorry: internet security is a pet peeve - I don't want to start a new thread here).


SCC stage II Partial mandibulectomy w. neck dissection- July 2005. Renal cancer w. partial nephrectomy-Jan 2004. Breast cancer discovered in routine mammogram. Successful lumpectomy, sentinal nodes clear, RT only-2008 Reconstruction of mandible w fibula free flap-Jan 09. TORS removal of begnin pappiloma from esophagus-2010. Masectomy,rt breast 2013.
Support OCF
Malka #90340 02-20-2009 08:24 AM
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Nothing could ever replace the OCF website. Facebook helps to announce events and brings awareness. It is a way to put faces with names of the friends we have made here.


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
Malka #90345 02-20-2009 09:46 AM
Joined: Jun 2008
Posts: 475
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As Christine said, it is jut another way to spread awareness, expand OCF and publicize events. There are alot of pros and cons to internet access, but it is a fast way to get our walk events noticed to thousands. Using whatever means to gt our message across is so important.


Susan Lauria - OCF Director of Events - Always looking for volunteers to help spread the word about early detection! Contact me if you can help!

*Brother passed away from tongue cancer in 2006 at age 47, was co-caregiver, he was non-smoker/casual drinker

LETS MAKE ORAL CANCER HISTORY!
Susan Lauria #90558 02-23-2009 02:11 PM
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Posts: 225
"OCF across the pond"
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I'm on Facebook too. Just joined the OCF group.
Martin told his team to look at this site and recommend it (OCF not FACEBOOK) but I have no idea if they have listened or not.


Girlfriend to Martin 49 years old at diagnosis
Diagnosed with SCC unknown primary June 2008.
Cancer found in single node Stage N2A (3 to 6cm).
Tonsilectomy 16th june, Radical modified neck dissection left side 30th june.
30 TX radiotherapy ended 9th October
First comparative study scan came back clear
Cecilia #90583 02-23-2009 06:21 PM
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Thank you Cecilia! Every mention is good!! You can only do so much.


Susan Lauria - OCF Director of Events - Always looking for volunteers to help spread the word about early detection! Contact me if you can help!

*Brother passed away from tongue cancer in 2006 at age 47, was co-caregiver, he was non-smoker/casual drinker

LETS MAKE ORAL CANCER HISTORY!
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