| | Joined: Sep 2008 Posts: 489 Platinum Member (300+ posts) |  Platinum Member (300+ posts)
Joined: Sep 2008 Posts: 489 | I am not too worried about being able to drink alcohol again. Although with the flap I have learned to funnel liquids and can drink quite a bit at once - just kidding. I will be happy when I can have a soda again, or some fruit drinks that currently burn my mouth.
Pete you are right - a friend of mine who owned a tavern used to say "there is nothing worse than a drunk when you are sober or a sober person when you are drunk".
Patty
48
SCC Floor of Mouth 7/06
9/06 Surgery, bilateral neck dissection, 58 nodes clear PT2pN0pMx
35 rad 2006
Recurred 6/08, 1 Carboplatin, 1 Cisplatin
Surgery 9/08 - Total glossectomy, free flap from pectoral muscle, left mandible replaced using fibula
35 IMRT & Erbitux 11/08
4/15/09 recurrence
6/1/09 passed away, rest in peace
| | | | | Joined: May 2007 Posts: 666 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: May 2007 Posts: 666 | Patty it took me a long time before I could handle carbonated drinks and even now I am not crazy about them. It is actually "easier" to drink wine (for me). What worked well was milk and soy based drinks.
M
Partial glossectomy (25%) anterior tongue. 4/6/07/. IMRT start @5/24/07 (3x) Erbitux start/end@ 5/24/07. IMRT wider field (30x) start 6/5/07. Weekly cisplatin (2x30mg/m2), then weekly carbo- (5x180mg/m2). End of Tx 19 July 07.
| | | | | Joined: May 2008 Posts: 357 Platinum Member (300+ posts) | | OP Platinum Member (300+ posts)
Joined: May 2008 Posts: 357 | With many of us getting OC without apparent risk factors, I can't imagine how anyone would come up with a blanket statement (the avacodo thing), other than, as Brian said, it's interesting, and as long as the advice is healthy, doesn't involve planting or baying at the moon at midnight and doesn't keep us from being treated, it can't hurt.
I never considered alcohol an issue, but reading about drinking got me thinking about optional behaviors and whether having an occasional drink or 2 could be damaging. My surgery wasn't as extensive as some of yours, so I don't have swallowing/taste/irritation issues (chewing is a bit of a problem). If I did, thinking about having a drink would seem trivial and frivolous.
Thanks for sharing.
Marlene
Marginal mandibulectomy 6/17/08 resulted in DX of Stage I SCC - gingiva (3 mm) right mandible, buccal side. Clear margins. Occasional social drinker. Smoked last cigarette in 1979. Clear pet: 12/08; 7/20/09. Yay!
| | | | | Joined: Nov 2005 Posts: 1,128 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Nov 2005 Posts: 1,128 | Whoa, hold it!
What exactly is wrong with "baying at the moon at midnight"!?!
It's an excellent therapy (or will be again for me when I get my voice back) and has the side effect of causing one's annoying neighbors to keep their distance because they don't know what you might do next -- Obviously, you have never given it a serious try or you wouldn't hold it in such obvious contempt -- Avocados are unproven, but a good, healthy howl has proven value!
Age 67 1/2
Ventral Tongue SCC T2N0M0G1 10/05
Anterior Tongue SCC T2N0M0G2 6/08
Base of Tongue SCC T2N0M0G2 12/08
Three partial glossectomy (10/05,11/05,6/08), PEG, 37 XRT 66.6 Gy 1/06
Neck dissection, trach, PEG & forearm free flap (6/08)
Total glossectomy, trach, PEG & thigh free flap (12/08)
On August 21, 2010 at 9:20 am, Pete went off to play with the ratties in the sky.
| | | | | Joined: Oct 2008 Posts: 251 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Oct 2008 Posts: 251 | Full Moon Tonight, Pete! I'll give it a howl for you!
I don't have to worry about the neighbors (1/4 mile away), but I'll probably scare (confuse?) my three cats.
Catherine
2mm tumor excised 09/23/2008 (floor of mouth)
SCC (superficially invasive, well-differentiated)
Stage 1, T1N0M0
01/2009 and 01/2010 - PET/CT clear
Four and 1/2 years - NED!
"Detection can be easy, treatment is not!"
| | | | | Joined: Mar 2008 Posts: 3,082 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Mar 2008 Posts: 3,082 | Keep in the alliterative spirit, lets' add Anorexia to Avacodos and Alcohol. The Excerpt from the oconology enclyclopedia in Wikipedia that I posted in the Anorexia thread had as one of the REMEDIES FOR LOSS OF APPETITE: YOUR FAVORITE ALCOHOLIC BEVERAGE
Also Blue Cross/blue Shield sent me a National Cancer Foundation pamphlet that urged me to drink alcohol if I was having appetite problems after radiation. My RO was on board, My ENT aghast.
{now both agree I can drink the next few weeks as any damaged tissue will soon be cut out and cast aside) I may just stick with the guacamole
65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin
Passed away 4-29-13
| | | | | Joined: Sep 2008 Posts: 489 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Sep 2008 Posts: 489 | Baying at the moon is right up there with dancing and singing in the yard when you see the first red winged black bird announcing that spring is almost here. Lucky for me my nearest neighbor is a mile away or I would have been hauled off by the white coats a long time ago.  Patty
48
SCC Floor of Mouth 7/06
9/06 Surgery, bilateral neck dissection, 58 nodes clear PT2pN0pMx
35 rad 2006
Recurred 6/08, 1 Carboplatin, 1 Cisplatin
Surgery 9/08 - Total glossectomy, free flap from pectoral muscle, left mandible replaced using fibula
35 IMRT & Erbitux 11/08
4/15/09 recurrence
6/1/09 passed away, rest in peace
| | | | | Joined: Oct 2008 Posts: 251 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Oct 2008 Posts: 251 | Patty,
We have red-winged blackbirds year-round, but await the arrival of the purple martins, our start to spring. This will be a corn year for our fields, and if it a good rain year, we will have a 10-foot-tall privacy buffer surrounding the house. I've been known to go out in a rainstorm with a bar of soap. Great way to feel "at one with nature"!
Glad you enjoy the country life, too!
Catherine
2mm tumor excised 09/23/2008 (floor of mouth)
SCC (superficially invasive, well-differentiated)
Stage 1, T1N0M0
01/2009 and 01/2010 - PET/CT clear
Four and 1/2 years - NED!
"Detection can be easy, treatment is not!"
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Catherine,
Is your last name Hatfield or McCoy?
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Oct 2008 Posts: 251 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Oct 2008 Posts: 251 | No, David,
But I can spread manure with the best of them!
Catherine
2mm tumor excised 09/23/2008 (floor of mouth)
SCC (superficially invasive, well-differentiated)
Stage 1, T1N0M0
01/2009 and 01/2010 - PET/CT clear
Four and 1/2 years - NED!
"Detection can be easy, treatment is not!"
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