| | Joined: Aug 2008 Posts: 113 Senior Member (100+ posts) |  Senior Member (100+ posts)
Joined: Aug 2008 Posts: 113 | Thank you Geri. I was ready to jump in bed but thought I'd check the board out first, and there you were like a sweet little angel saying sweet things. Maybe now I can get some rest. God Bless ! Love, Claudia
Husband 2/3 tongue removed March 2008. Free flap. . Stage IV. Radiation and 3 chemo's (cisplatin,taxol & erbitux). .Pet scan Aug 08 showed mets to lungs .Oct 08, recurrence. - In the arms of Jesus, July 15, 2009
| | | | | Joined: Nov 2005 Posts: 1,128 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Nov 2005 Posts: 1,128 | I'm no expert, but I suspect it's quite healthy that you are in part acting like he is already gone -- Apparently you are adjusting to the reality, not just walking around in denial -- Sort of the same feelings we get where we are grieved to see someone die yet glad the ordeal is over.
Age 67 1/2
Ventral Tongue SCC T2N0M0G1 10/05
Anterior Tongue SCC T2N0M0G2 6/08
Base of Tongue SCC T2N0M0G2 12/08
Three partial glossectomy (10/05,11/05,6/08), PEG, 37 XRT 66.6 Gy 1/06
Neck dissection, trach, PEG & forearm free flap (6/08)
Total glossectomy, trach, PEG & thigh free flap (12/08)
On August 21, 2010 at 9:20 am, Pete went off to play with the ratties in the sky.
| | | | | Joined: Dec 2008 Posts: 126 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Dec 2008 Posts: 126 | Claudia, If you ever want to send a personal message, I would like to keep in touch with you. So far, we are very lucky with Richard's prognosis. We have decided that when he's through with treatment, we are going to do everything we want to and live in the moment as much as possible. All the doctors are positive about a favorable long term outlook, but I've learned from this forum that there are no guarantees. I pray everyday for the strength to handle whatever happens and for the good Lord to hold us in the palm of his hand. Also for all the others suffering with this dreaded disease.... Blessings, Geri
Geri-CG to husband Richard, 62 yrs old. Former smoker, quit 30yrs ago, light drinker. Dx after tests with BOT T1N1M0. Tx to start by end of Dec. Seven wks IMRT with 2x Cisplatin-2x Erbitux. Peg in 12/08- removed 4/21/09. Looking good so far. Clear Pet &MRI 8/2/09
| | | | | Joined: Aug 2008 Posts: 30 Contributing Member (25+ posts) | | Contributing Member (25+ posts)
Joined: Aug 2008 Posts: 30 | Claudia,
I'm so sorry your husband is not well. I talked with you a while back. Life is not fair sometimes. I hope your husband may find some peaceful days.
Rett
Rett
Father 80 y/o with BOT Stage IV/ SCC, laser surgery to remove tumor 8/08, Hemi glossectomy, reconstructed tongue, right side neck dissection, RT began 10-8-08, chemo not recommended because of age, Peg tube, non smoker/drinker.
| | | | | Joined: Dec 2008 Posts: 1,004 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Dec 2008 Posts: 1,004 | Sue,
I'm sure you know how important your role is in Neil's life. The people who support me are my saviors and I'm sure Neil feels that way about you. You sounds like a strong woman and we are all here for you. You are in my thoughts everyday.
Suzanne
Suzanne
***********
T1 SCC on right side of tongue
Age 31...27 when diagnosed
4 partial glossectomies
No chemo or radiation
Biopsy on 2/2/10-Clear
Surgery needed again...no later than April 2011
Loving life and just became a mother on 11/25/10
It's not what we CAN'T do..it's what we CAN do:)
| | | | | Joined: Aug 2008 Posts: 113 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Aug 2008 Posts: 113 | Geri. I sent you a pm and it disappeared. I can never figure anything out here. I'm not too computer savvy and I'm always doing everything wrong. I'll try again tomorrow. Claudia
Husband 2/3 tongue removed March 2008. Free flap. . Stage IV. Radiation and 3 chemo's (cisplatin,taxol & erbitux). .Pet scan Aug 08 showed mets to lungs .Oct 08, recurrence. - In the arms of Jesus, July 15, 2009
| | | | | Joined: Aug 2008 Posts: 113 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Aug 2008 Posts: 113 | Rett. Thank you. How is your dad doing these days ? I've thought of you often. I've calmed down some within the last week. I was just having an awful day.
Husband 2/3 tongue removed March 2008. Free flap. . Stage IV. Radiation and 3 chemo's (cisplatin,taxol & erbitux). .Pet scan Aug 08 showed mets to lungs .Oct 08, recurrence. - In the arms of Jesus, July 15, 2009
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