| Joined: Mar 2008 Posts: 404 Likes: 2 "OCF Down Under" Platinum Member (300+ posts) | "OCF Down Under" Platinum Member (300+ posts) Joined: Mar 2008 Posts: 404 Likes: 2 | Pete
Hope you are feeling better as each day goes by. Mt first flap was also taken from my thigh.
Apologies if you have already answered this in another thread, but I was wondering how/where did the docs access your tongue to do your glossectomy and build your free flap? Was it from around your neck?
Karen
46 yrs: Apr 07-SCC 80% entire tongue removed,T4N1M0 Neck/D,Jaw Split, Trache 2 ops,PEG 3.5yrs 30 x rad,6 x Cisplatin, 30 x HBO Apr'08- flap Recon + ORN Mandibulectomy (hip bone to reconstruct jaw) Oct'08 1 Plate out-jaw Mar'09 Debulk flap Sep'09/Jan&Nov'10/Feb&Jun'11/Jan&Jul'12/Oct'13/April'14-More surgery
| | | | Joined: Nov 2005 Posts: 1,128 Patient Advocate (1000+ posts) | OP Patient Advocate (1000+ posts) Joined: Nov 2005 Posts: 1,128 | They went in with a horizontal incision on my neck front again, but also through a vertical incision through the right side of my neck -- Busy as beavers they must have been, with two portals into my throat!
Now that the failed portion of the flap has be removed, the vertical slice has healed nicely, but there are still two very small places in the horizontal slice where it occasionally still leaks. I'm getting a lot less secretion drainage at the trach and the suction machine has definitely not been having to work as hard the last few days!
I'm seeing the nurse practitioner again today (It's been weekly followups with her since the surgery) -- That's another good thing about using a CCC instead of a single Doc's office -- She is the key person regarding the followup care, taking care of home delivery of food and pump sets, trach support machinery (air moisturizer, suction, etc.) and she will be arranging stuf like swallowing test/therapy, physical therapy, speech therapy, etc., writes prescriptions, cleans out sutures, etc.
However, not all teams have the nurse practitioner -- She did a presentation recently at a conference on her role, esp in the followup after the surgery.
Age 67 1/2 Ventral Tongue SCC T2N0M0G1 10/05 Anterior Tongue SCC T2N0M0G2 6/08 Base of Tongue SCC T2N0M0G2 12/08 Three partial glossectomy (10/05,11/05,6/08), PEG, 37 XRT 66.6 Gy 1/06 Neck dissection, trach, PEG & forearm free flap (6/08) Total glossectomy, trach, PEG & thigh free flap (12/08) On August 21, 2010 at 9:20 am, Pete went off to play with the ratties in the sky.
| | | | Joined: Jul 2007 Posts: 211 Gold Member (200+ posts) | Gold Member (200+ posts) Joined: Jul 2007 Posts: 211 | Hi, Pete,
Glad to hear you're doing better. I hadn't read this thread for awhile and have really enjoyed hearing about your rats. At my first teaching job we always got baby rats for students to train in operant conditioning, etc. The standard routine was to euthanize the rats after you have finished the experiments. I couldn't bear to see them killed and actually found homes for them but ended up having to keep 2 males. They are very social, curious, entertaining, and love to be held and petted. The males do have to sort things out in terms of dominance!
Sophie T.
CG to husband: SCC Stage 4, T4, N1, M0; non-smoker and very light social drinker; HPV+ induction chemo begun 7/07; chemo/radiation ended 10/10, first cat scan clear; scan on 5/9/08 clear, scan on 10/08 clear; scan 1/09 clear; scan 1/10 clear; passed away July 2, 2016
| | | | Joined: Nov 2005 Posts: 1,128 Patient Advocate (1000+ posts) | OP Patient Advocate (1000+ posts) Joined: Nov 2005 Posts: 1,128 | Actually, taking home the "used" rats is likely the way pet rats got started -- It would be hard to work with them without becoming attached!
Age 67 1/2 Ventral Tongue SCC T2N0M0G1 10/05 Anterior Tongue SCC T2N0M0G2 6/08 Base of Tongue SCC T2N0M0G2 12/08 Three partial glossectomy (10/05,11/05,6/08), PEG, 37 XRT 66.6 Gy 1/06 Neck dissection, trach, PEG & forearm free flap (6/08) Total glossectomy, trach, PEG & thigh free flap (12/08) On August 21, 2010 at 9:20 am, Pete went off to play with the ratties in the sky.
| | | | Joined: Sep 2006 Posts: 1,357 Likes: 5 "OCF Canuck" Patient Advocate (1000+ posts) | "OCF Canuck" Patient Advocate (1000+ posts) Joined: Sep 2006 Posts: 1,357 Likes: 5 | Oh Yah? Just try me! I am POSITIVE I would not become attached!
Donna
Donna,69, SCC L Tongue T2N1MO Stg IV 4/04 w/partial gloss;32 radtx; T2N2M0 Stg IV; R tongue-2nd partial gloss w/graft 10/07; 30 radtx/2 cispl 2/08. 3rd Oral Cancer surgery 1/22 - Stage 1. 2022 surgery eliminated swallowing and bottom left jaw. Now a “Tubie for Life”.no food envy - Thank God! Surviving isn't easy!!!! .Proudly Canadian - YES, UNIVERSAL HEALTH CARE IS WONDERFUL! (Not perfect but definitely WONDERFUL)
| | | | Joined: Nov 2005 Posts: 1,128 Patient Advocate (1000+ posts) | OP Patient Advocate (1000+ posts) Joined: Nov 2005 Posts: 1,128 | Of course, there are the folks for which there is no hope, whatsoever! <grinz>
It has a lot to do with the fur-less (not hairless, just furless) tails -- Squirrels are built essentially the same but the fur on their tails makes them cute! My "hair-less" (really fur-less) RatHarriet (She wasn't 'Harry') was so ugly she was almost cute -- Same for hairless cats and dogs.
Age 67 1/2 Ventral Tongue SCC T2N0M0G1 10/05 Anterior Tongue SCC T2N0M0G2 6/08 Base of Tongue SCC T2N0M0G2 12/08 Three partial glossectomy (10/05,11/05,6/08), PEG, 37 XRT 66.6 Gy 1/06 Neck dissection, trach, PEG & forearm free flap (6/08) Total glossectomy, trach, PEG & thigh free flap (12/08) On August 21, 2010 at 9:20 am, Pete went off to play with the ratties in the sky.
| | | | Joined: Nov 2005 Posts: 1,128 Patient Advocate (1000+ posts) | OP Patient Advocate (1000+ posts) Joined: Nov 2005 Posts: 1,128 | The Quack Pack has become tame enough that I can pick them up individually without trauma, so I weighed them last night:
RatPhooey (who is still licking my hands) 9.2 ounces RatHuey 11.2 ounces RatDewey 14.6 ounces
Not going to mistake these guys for gerbils!
I never weighed my biggest rat, Ratatouille, but he had to be bigger than all three of these combined!
RatDewey is unusual because he very gently takes treats offered by hand -- RatHuey snaps at treats like they were the last ever in the world, even trying to yank on the spoon if I'm giving something like yogurt or cottage cheese -- RatPhooey is in-between, wasting no time getting his share (he often runs off immediately to stash it and come back for more) but not endangering my fingers in the process.
Age 67 1/2 Ventral Tongue SCC T2N0M0G1 10/05 Anterior Tongue SCC T2N0M0G2 6/08 Base of Tongue SCC T2N0M0G2 12/08 Three partial glossectomy (10/05,11/05,6/08), PEG, 37 XRT 66.6 Gy 1/06 Neck dissection, trach, PEG & forearm free flap (6/08) Total glossectomy, trach, PEG & thigh free flap (12/08) On August 21, 2010 at 9:20 am, Pete went off to play with the ratties in the sky.
| | | | Joined: Sep 2008 Posts: 489 Platinum Member (300+ posts) | Platinum Member (300+ posts) Joined: Sep 2008 Posts: 489 | Pete
Does RatDewey need a diet?? That's almost a pound! I think that RatPhooey just likes you and that is why he keeps licking you. You sound like you are feeling better than you were. How was the appointment with the nurse practitioner? Any new news?
Is it more normal for the to snatch the treats? or to stash the treats? If one would bite you are there any health risks for you?? They sound similar to my dogs - I have one that is very much the gentleman, one that almost takes fingers if you are not careful but is learning that also tries to bite the spoon. All of my dogs can eat from a spoon, know what ice cream is and the most fun of all - will let you squirt Reddi Whip in their mouths. LOL
Patty
48 SCC Floor of Mouth 7/06 9/06 Surgery, bilateral neck dissection, 58 nodes clear PT2pN0pMx 35 rad 2006 Recurred 6/08, 1 Carboplatin, 1 Cisplatin Surgery 9/08 - Total glossectomy, free flap from pectoral muscle, left mandible replaced using fibula 35 IMRT & Erbitux 11/08 4/15/09 recurrence 6/1/09 passed away, rest in peace
| | | | Joined: Nov 2005 Posts: 1,128 Patient Advocate (1000+ posts) | OP Patient Advocate (1000+ posts) Joined: Nov 2005 Posts: 1,128 | They will get bigger -- RatDewey looks fat and lazy when he is sprawled out sleeping, but you should see him move when he wants to -- Rats can be faaaasst!!
Have to be careful with something like a spray because rats (and horses) can't vomit...
They are competitive, so it is natural for them to snatch, but one trains them at first by letting them sniff and examine fingers for a while -- Feeding from an open hand, like with a horse, is safer, but harder to control. I have only been bitten once and that was when I stepped on a rat with bare feet when living in my tiny RV (6' x 10' inside; a 13' Scamp trailer) -- My son made the mistake of opening the cage door before cutting some meat into small pieces and one of my previous RatLadies accidentally bit him -- Not really any different than any animal bite.
Not sure yet if RatPhooey senses I'm sick or if licking is his way of greeting -- Rats groom each other, so they do the same with human buddies -- They also 'barber', chewing off hair, but that's more of a dominance thing.
So far, no bruxing, where they rub the outer incisors sideways against each other to wear them down and keep them sharp -- When rats do it, they are generally content, so it's nice to have a bruxing rat sitting on your shoulder -- OTOH, when Guinea Pigs do that, they are angry!
Pretty soon, I will start taking them out of the cage and tossing them onto my bed pillow, then catching them and doing it again -- After a while, they will run down to be thrown again -- Then I will graduate to all of them doing it, racing each other to my hands -- They really like games like that.
Age 67 1/2 Ventral Tongue SCC T2N0M0G1 10/05 Anterior Tongue SCC T2N0M0G2 6/08 Base of Tongue SCC T2N0M0G2 12/08 Three partial glossectomy (10/05,11/05,6/08), PEG, 37 XRT 66.6 Gy 1/06 Neck dissection, trach, PEG & forearm free flap (6/08) Total glossectomy, trach, PEG & thigh free flap (12/08) On August 21, 2010 at 9:20 am, Pete went off to play with the ratties in the sky.
| | | | Joined: Sep 2008 Posts: 489 Platinum Member (300+ posts) | Platinum Member (300+ posts) Joined: Sep 2008 Posts: 489 | Pete that sounds too funny. Now do you have to reward them with a treat to get them to come back for more or do they actually enjoy it?
Patty
48 SCC Floor of Mouth 7/06 9/06 Surgery, bilateral neck dissection, 58 nodes clear PT2pN0pMx 35 rad 2006 Recurred 6/08, 1 Carboplatin, 1 Cisplatin Surgery 9/08 - Total glossectomy, free flap from pectoral muscle, left mandible replaced using fibula 35 IMRT & Erbitux 11/08 4/15/09 recurrence 6/1/09 passed away, rest in peace
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