| Joined: Sep 2008 Posts: 489 Platinum Member (300+ posts) | Platinum Member (300+ posts) Joined: Sep 2008 Posts: 489 | Pete I am so sorry that you have had a set back. You have the best attitude. I certainly hope that your body will now heal faster and that the flap does rejuvenate quickly. Please take care of yourself and rest. I have grown quite fond of you and the rats.
Patty
48 SCC Floor of Mouth 7/06 9/06 Surgery, bilateral neck dissection, 58 nodes clear PT2pN0pMx 35 rad 2006 Recurred 6/08, 1 Carboplatin, 1 Cisplatin Surgery 9/08 - Total glossectomy, free flap from pectoral muscle, left mandible replaced using fibula 35 IMRT & Erbitux 11/08 4/15/09 recurrence 6/1/09 passed away, rest in peace
| | | | Joined: Aug 2007 Posts: 1,301 "OCF Down Under" Patient Advocate (1000+ posts) | "OCF Down Under" Patient Advocate (1000+ posts) Joined: Aug 2007 Posts: 1,301 | Hope you heal rapidly as you predicted. Was surprised to read that the thigh flesh rejuvenates where as the flap from the wrist does not. Always learn something new here. Take care and get better soon. Gabriele
History Leukoplakia bx 8/2006 SCC floor mouth T3N0M0- Verrucous Carcinoma. 14 hour 0p SCC-Right ND/excision/marginal mandibulectomy 9/2006, 4 teeth removed, flap from wrist, trach-ng 6 days- no chemo/rad. 6 ops and debulking (flap/tongue join) + bx's 2006-2012. bx Jan 2012 Hyperkeratosis-Epithelial Dysplasia 24cm GIST tumour removed 8/2013. Indefinite Oral Chemo.
1/31/16 passed away peacefully surrounded by family
| | | | Joined: Nov 2005 Posts: 1,128 Patient Advocate (1000+ posts) | OP Patient Advocate (1000+ posts) Joined: Nov 2005 Posts: 1,128 | Rejuvenation is a conclusion on my part, based on stuf I was told, not a fact gleaned directly from what they've told me or that I have read. They used the word "granulation" a lot when talking about the now-exposed areas of flap and floor bonding with the rest.
Age 67 1/2 Ventral Tongue SCC T2N0M0G1 10/05 Anterior Tongue SCC T2N0M0G2 6/08 Base of Tongue SCC T2N0M0G2 12/08 Three partial glossectomy (10/05,11/05,6/08), PEG, 37 XRT 66.6 Gy 1/06 Neck dissection, trach, PEG & forearm free flap (6/08) Total glossectomy, trach, PEG & thigh free flap (12/08) On August 21, 2010 at 9:20 am, Pete went off to play with the ratties in the sky.
| | | | Joined: Aug 2007 Posts: 1,301 "OCF Down Under" Patient Advocate (1000+ posts) | "OCF Down Under" Patient Advocate (1000+ posts) Joined: Aug 2007 Posts: 1,301 | I also recall hearing the word granulation used for the issues I have between the tongue and flap. A few smaller operations over the last 2 years to repair with another in 2 weeks. With me it is a minor problem not like what you have been through.
History Leukoplakia bx 8/2006 SCC floor mouth T3N0M0- Verrucous Carcinoma. 14 hour 0p SCC-Right ND/excision/marginal mandibulectomy 9/2006, 4 teeth removed, flap from wrist, trach-ng 6 days- no chemo/rad. 6 ops and debulking (flap/tongue join) + bx's 2006-2012. bx Jan 2012 Hyperkeratosis-Epithelial Dysplasia 24cm GIST tumour removed 8/2013. Indefinite Oral Chemo.
1/31/16 passed away peacefully surrounded by family
| | | | Joined: Nov 2005 Posts: 1,128 Patient Advocate (1000+ posts) | OP Patient Advocate (1000+ posts) Joined: Nov 2005 Posts: 1,128 | The granulation might just mean that the surface skins all form and bond together to form one continuous skin across it all, even with the donor skin now removed.
There was one longer piece left in there trailing down my throat and annoying me when it got caught in my breathing -- Doing a juggling act with mirror, flashlight and scissors, I finally managed to cut it out -- Tough stuf, even with sharp scissors!
Age 67 1/2 Ventral Tongue SCC T2N0M0G1 10/05 Anterior Tongue SCC T2N0M0G2 6/08 Base of Tongue SCC T2N0M0G2 12/08 Three partial glossectomy (10/05,11/05,6/08), PEG, 37 XRT 66.6 Gy 1/06 Neck dissection, trach, PEG & forearm free flap (6/08) Total glossectomy, trach, PEG & thigh free flap (12/08) On August 21, 2010 at 9:20 am, Pete went off to play with the ratties in the sky.
| | | | Joined: Aug 2008 Posts: 96 Supporting Member (50+ posts) | Supporting Member (50+ posts) Joined: Aug 2008 Posts: 96 | Pete, as always my good thoughts are with you. You make me laugh--2 free flaps per lifetime is my husband's goal too. #2 will be on Monday. And now you're even doing your own surgery!! Ha! Keep smiling, Pete. We have 2 little ratties at home too. They are my daughter's, so guess who usually takes care of them? Lori
Lori, cg to H Ron, age 56. Stage IV Oral SCC-T1N2. Tongue resected and right ND 8/05. Teeth removed, PORT, PEG, IMRT x33, Cisplatin x3. Tx ended 10/05. Recurrence 7/08 Stage IV. Surgery 8/30/08. 2nd recur. 11/08. 2nd surgery 2/2/09. 3rd recur. 4/9/09. Erbitux wkly. 5/09-? Ron died 6/6/09. Lori also passed away 8/20/11, colon cancer | | | | Joined: Sep 2008 Posts: 489 Platinum Member (300+ posts) | Platinum Member (300+ posts) Joined: Sep 2008 Posts: 489 | Pete hopefully you are feeling a little better today especially without the skin bothering you when you breath. Although the image of the flashlight, mirror and scissors did give me a little chill. It may be too early to tell, but do you feel any better since the part of the flap that was not successful was removed? I hope that you start to feel stronger quickly.
Thinking of you and the rats. Is the little rat still licking your hand?
Patty
48 SCC Floor of Mouth 7/06 9/06 Surgery, bilateral neck dissection, 58 nodes clear PT2pN0pMx 35 rad 2006 Recurred 6/08, 1 Carboplatin, 1 Cisplatin Surgery 9/08 - Total glossectomy, free flap from pectoral muscle, left mandible replaced using fibula 35 IMRT & Erbitux 11/08 4/15/09 recurrence 6/1/09 passed away, rest in peace
| | | | Joined: Nov 2005 Posts: 1,128 Patient Advocate (1000+ posts) | OP Patient Advocate (1000+ posts) Joined: Nov 2005 Posts: 1,128 | RatPhooey's still licking my hand, but he might also think there's food involved! Aren't they social little beasts?
Part of excess material still hanging down and it really irks me that I can't get to it -- Nasal breathing is working, so the excess stuf sort of gurgles in the wind... I did some clean-up clipping on the first flap also because it was interfering with use of my toothbrush and fluoride trays.
Age 67 1/2 Ventral Tongue SCC T2N0M0G1 10/05 Anterior Tongue SCC T2N0M0G2 6/08 Base of Tongue SCC T2N0M0G2 12/08 Three partial glossectomy (10/05,11/05,6/08), PEG, 37 XRT 66.6 Gy 1/06 Neck dissection, trach, PEG & forearm free flap (6/08) Total glossectomy, trach, PEG & thigh free flap (12/08) On August 21, 2010 at 9:20 am, Pete went off to play with the ratties in the sky.
| | | | Joined: Aug 2007 Posts: 1,301 "OCF Down Under" Patient Advocate (1000+ posts) | "OCF Down Under" Patient Advocate (1000+ posts) Joined: Aug 2007 Posts: 1,301 | Flashight & scissors !! Trying to picture you performing your own surgery. Brain surgery next ??? BTW I have found using an electric toothbrush since surgery to work better for me.
History Leukoplakia bx 8/2006 SCC floor mouth T3N0M0- Verrucous Carcinoma. 14 hour 0p SCC-Right ND/excision/marginal mandibulectomy 9/2006, 4 teeth removed, flap from wrist, trach-ng 6 days- no chemo/rad. 6 ops and debulking (flap/tongue join) + bx's 2006-2012. bx Jan 2012 Hyperkeratosis-Epithelial Dysplasia 24cm GIST tumour removed 8/2013. Indefinite Oral Chemo.
1/31/16 passed away peacefully surrounded by family
| | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 | Pete
You are as tough as nails to be clipping yourself like that. Does your doc know about your scissor habits? Please be careful, sounds pretty risky. I use a waterpik, works great to get everything out of the creavices.
You got yourself a nice pet. Sure hope he isnt licking your hand just seeing what you taste like. Heard a gruesome story a while ago about how a cat will eat their owner when they die, but a dog will lay down with the deceased owner and guard them. Sure hope that its not true, I have 2 dogs and 2 cats.
Hope you are feeling ok and doing ok with your recovery. I had wondered why you hadnt posted muhc, sorry to hear you had some problems. Please rest and be a good patient so you heal. ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | |
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