#88708 01-23-2009 09:41 AM | Joined: Aug 2008 Posts: 716 "Above & Beyond" Member (500+ posts) | OP  "Above & Beyond" Member (500+ posts)
Joined: Aug 2008 Posts: 716 | Hey everyone...Hope you're all doing well.
My question is...Did anyone ever have problems with sores, I finished tx on 11-4-08 and I'm on my 3rd or 4th sore...They come and go but make me nervous. One sore had gotten fairly large and lasted for about 3 weeks maybe a little longer. The last one lasted about a week but now I have a new one in the same spot. The left side of my face hurts...I really can't tell if it's my jaw or not. I was basically pain free for about 3 or 4 weeks.
I assume this is all part of the healing process...
7-16-08 age 37@Dx, T3N0M0 SCC 4.778cm tumor, left side of oral tongue, non smoker, casual drinker, I am the 4th in my family to have H&N cancer
8-13-08 left neck dissection and 40% of tongue removed, submandibular salivary gland & 14 nodes clean, no chemo, IMRTx35
11-4-08 Recovering & feeling better
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 |
What do you mean by a sore? Are they open sores like canker sores or is it a lump? Are these only around your head and neck or are they inside your mouth? You know the drill, if its there 2 weeks then get it checked, probably by the ENT.
Ive had similar problems with lumps appearing and dissappearing about a week later. None of my docs were ever concerned about it.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | | | | Joined: Aug 2008 Posts: 716 "Above & Beyond" Member (500+ posts) | | OP "Above & Beyond" Member (500+ posts)
Joined: Aug 2008 Posts: 716 | they come and go...in my mouth...they hurt like hell
7-16-08 age 37@Dx, T3N0M0 SCC 4.778cm tumor, left side of oral tongue, non smoker, casual drinker, I am the 4th in my family to have H&N cancer
8-13-08 left neck dissection and 40% of tongue removed, submandibular salivary gland & 14 nodes clean, no chemo, IMRTx35
11-4-08 Recovering & feeling better
| | | | | Joined: Dec 2008 Posts: 1,004 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Dec 2008 Posts: 1,004 | I always have sores in my mouth. On my right tongue. I actually just had it biopsied and unfortunatley I'm having surgery again in February. Mine turned out to be severe dysplasia. I hope this is not the same for you but I would have it checked if it's not gone soon. Good luck...I'll be thinking about you.
Suzanne
***********
T1 SCC on right side of tongue
Age 31...27 when diagnosed
4 partial glossectomies
No chemo or radiation
Biopsy on 2/2/10-Clear
Surgery needed again...no later than April 2011
Loving life and just became a mother on 11/25/10
It's not what we CAN'T do..it's what we CAN do:)
| | | | | Joined: Mar 2003 Posts: 1,384 Likes: 1 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Mar 2003 Posts: 1,384 Likes: 1 | Ray, Are you supplementing your intake with any other added nutrients? I took vit. E as well as a bunch of other stuff after treatments were over. After treatments are over, I think our bodies are pretty used up as far as reserves are concerned. When I took Vit. E it would help with all kinds of healing issues. (even chapped lips). I think this is even more of an issue when PEG feeding has been in place.
Mark, 21 Year survivor, SCC right tonsil, 3 nodes positive, one with extra-capsular spread. I never asked what stage (would have scared me anyway) Right side tonsillectomy, radical neck dissection right side, maximum radiation to both sides, no chemo, no PEG, age 40 when diagnosed.
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Joined: Sep 2008 Posts: 489 | Ray
I would ask you too what type of sores? Your Tx finished prior to mine, but I do not have sores in my mouth. A couple of places that are uncomfortable but I just finished radiation 1/2/09.
I know that you answered one of my questions with a list of the meds/supplements that you are taking. Could it be that one of these is irritating your mouth or did the appear prior to taking any of these?
I would have the ENT look at them just for the peace of mind anyway.
Patty
48
SCC Floor of Mouth 7/06
9/06 Surgery, bilateral neck dissection, 58 nodes clear PT2pN0pMx
35 rad 2006
Recurred 6/08, 1 Carboplatin, 1 Cisplatin
Surgery 9/08 - Total glossectomy, free flap from pectoral muscle, left mandible replaced using fibula
35 IMRT & Erbitux 11/08
4/15/09 recurrence
6/1/09 passed away, rest in peace
| | | | | Joined: Aug 2008 Posts: 716 "Above & Beyond" Member (500+ posts) | | OP "Above & Beyond" Member (500+ posts)
Joined: Aug 2008 Posts: 716 | I suppose it looks like a burn from a cigarette...I'm keeping a close eye on it...And I see my ENT in 3 weeks for my monthly checkup
7-16-08 age 37@Dx, T3N0M0 SCC 4.778cm tumor, left side of oral tongue, non smoker, casual drinker, I am the 4th in my family to have H&N cancer
8-13-08 left neck dissection and 40% of tongue removed, submandibular salivary gland & 14 nodes clean, no chemo, IMRTx35
11-4-08 Recovering & feeling better
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