#88376 01-18-2009 08:37 PM | Joined: Nov 2007 Posts: 212 Gold Member (200+ posts) | OP  Gold Member (200+ posts)
Joined: Nov 2007 Posts: 212 | Hi All,
I guess we take our milestones wherever we find them. I'm rapidly approaching the two year mark and had my follow up earlier this week. It was the usual two day extravaganza at MDACC, but this time with a little bump. My monitoring protocol is different from most due to the final disposition of my tumor...I get ultrasounds rather than Pet scans or CT scans. Generally, they are read immediately and I'm sent on my merry way with the final reading by my doc the next day. This time, I had just escaped the clinic after the ultrasound when my cell rang and the technician was asking me back for a few more photos. She said it was "nothing worrisome" but you know, after you've heard those cancer words, any change in routine is worrisome. Didn't help either when the clerk upon my return asked if I was back for a biopsy. Turns out they just need a few more views to match pictures they had from my last visit.
Ultimately, the scans looked good. The rest of my exam went well and I've been upgraded, lol, to 6 month appointments. Means I'll miss my 2 year anniversary in April but I plan on celebrating anyway.
Susan
Last edited by Suess57; 01-18-2009 08:38 PM.
Cancer of Tongue, SCC early Stage 1, Dx 3/13/07, partial glossectomy 4/14/07 found no residual carcinoma and a granular cell tumor with pseudo epitheliomatous hyperplasia.
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Joined: Apr 2006 Posts: 794 | Sounds great! Congrats. Keep up the "good work"!
Colleen--T-2N0M0 SCC dx'd 12/28/05...Hemi-maxillectomy, partial palatectomy, neck dissection 1/4/06....clear margins, neg. nodes....no radiation, no chemo....Cancer-free at 4 years!
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 |
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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Joined: Aug 2008 Posts: 716 |
7-16-08 age 37@Dx, T3N0M0 SCC 4.778cm tumor, left side of oral tongue, non smoker, casual drinker, I am the 4th in my family to have H&N cancer
8-13-08 left neck dissection and 40% of tongue removed, submandibular salivary gland & 14 nodes clean, no chemo, IMRTx35
11-4-08 Recovering & feeling better
| | | | | Joined: Jun 2007 Posts: 595 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jun 2007 Posts: 595 | Excellant news and continued good luck. Semper-Fi Bob
Bob age 57, non smoker,non drinker, ended treatment on 11 Nov 2007 and started back to work on 29 Nov 2007. Veterans Day 2012 the Battle was lowered, folded, Taps was played and the Flag buried as I am know a 5 year survivor. Semper-FI !!!
| | | | | Joined: Dec 2008 Posts: 1,004 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Dec 2008 Posts: 1,004 | Susan,
That is awesome news!!! I think of that often, I can't wait to go every 6 months. That is simply wonderful news and I'm really happy for you!!!
Gotta love the communication in health care. Did they really need to ask you if you were back for your biopsy?!? lol They must not realize what it's like...
Suzanne
***********
T1 SCC on right side of tongue
Age 31...27 when diagnosed
4 partial glossectomies
No chemo or radiation
Biopsy on 2/2/10-Clear
Surgery needed again...no later than April 2011
Loving life and just became a mother on 11/25/10
It's not what we CAN'T do..it's what we CAN do:)
| | | | | Joined: Nov 2007 Posts: 212 Gold Member (200+ posts) | | OP Gold Member (200+ posts)
Joined: Nov 2007 Posts: 212 | Suzanne,
The clerk meant well, apparently the room is different if you are having a biopsy. My emphatic reply "No! No one told me that", most likely conveyed some iota of my feelings about being asked, lol. Looks like we had our first partial glossectomies at the same time more or less. Hopefully your next visit will bring you continued good news.
Susan
Cancer of Tongue, SCC early Stage 1, Dx 3/13/07, partial glossectomy 4/14/07 found no residual carcinoma and a granular cell tumor with pseudo epitheliomatous hyperplasia.
| | | | | Joined: Sep 2008 Posts: 489 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Sep 2008 Posts: 489 | Susan
Congratulations on your upgrade. I hope that you can go to one of those great Pappa's restaurants to celebrate - miss the seafood.
Patty
48
SCC Floor of Mouth 7/06
9/06 Surgery, bilateral neck dissection, 58 nodes clear PT2pN0pMx
35 rad 2006
Recurred 6/08, 1 Carboplatin, 1 Cisplatin
Surgery 9/08 - Total glossectomy, free flap from pectoral muscle, left mandible replaced using fibula
35 IMRT & Erbitux 11/08
4/15/09 recurrence
6/1/09 passed away, rest in peace
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