| Joined: Nov 2005 Posts: 1,128 Patient Advocate (1000+ posts) | OP Patient Advocate (1000+ posts) Joined: Nov 2005 Posts: 1,128 | Donna, the graft this time was different -- On the previous one, they took the tissue from my wrist and then took skin from my thigh, covering that spot with the cheese-grater snap-and-crackle gauze -- This time they sliced my thigh open for about a foot and dug deep to harvest from inside -- When they were finished, they just closed up the slice with about 40 wire staples and no snap gauze.
I'm not exactly running up and down stairs (I live on second floor), but am pleasantly surprised at how little movement restriction has resulted from that trauma. Some decades ago, I had a ladder leg fold up on me, resulting in a short fall to the ground and a broken face -- Part of the repair required cutting into my hip and harvesting some bone marrow to "seed" the egg-shell fracture in my right orbit -- That small trapdoor into my hip caused a lot more problems than this long, meaty slice.
I'd like to take this opportunity to thank all of you who posted or PM'd your support and prayers for my latest bout with OC. I found the group waaaay back when I was being nuked for the first time, so I was essentially alone in terms of actual cancer victims -- I find that it really does make a difference knowing that a whole bunch of people whom I haven't met face-to-face are behind me, as a sort of shadow Verizon <g>.
Age 67 1/2 Ventral Tongue SCC T2N0M0G1 10/05 Anterior Tongue SCC T2N0M0G2 6/08 Base of Tongue SCC T2N0M0G2 12/08 Three partial glossectomy (10/05,11/05,6/08), PEG, 37 XRT 66.6 Gy 1/06 Neck dissection, trach, PEG & forearm free flap (6/08) Total glossectomy, trach, PEG & thigh free flap (12/08) On August 21, 2010 at 9:20 am, Pete went off to play with the ratties in the sky.
| | | | Joined: Sep 2006 Posts: 1,357 Likes: 5 "OCF Canuck" Patient Advocate (1000+ posts) | "OCF Canuck" Patient Advocate (1000+ posts) Joined: Sep 2006 Posts: 1,357 Likes: 5 | My first surgery they did what you had this time - foot long harvest of tissue/veins/whatever - from my left thigh. My 2nd surgery I had the graft from my right thigh directly to my tongue - they did not use my forearm as a "middleman". I didn't find that either of those contributions from my legs bothered me much at all. My first C section I remember being soooo worried about the metal staples - but I've learned they truly are nothing at all to worry about.
Thrilled to hear you are recovering well.
Donna
Donna,69, SCC L Tongue T2N1MO Stg IV 4/04 w/partial gloss;32 radtx; T2N2M0 Stg IV; R tongue-2nd partial gloss w/graft 10/07; 30 radtx/2 cispl 2/08. 3rd Oral Cancer surgery 1/22 - Stage 1. 2022 surgery eliminated swallowing and bottom left jaw. Now a “Tubie for Life”.no food envy - Thank God! Surviving isn't easy!!!! .Proudly Canadian - YES, UNIVERSAL HEALTH CARE IS WONDERFUL! (Not perfect but definitely WONDERFUL)
| | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 | Pete:
It really does make such a huge difference having an extended family. Just knowing you have people out there who really do care is a nice feeling. Thats what I love about OCF, its even better than family cuz we are all in the same club and truly understand.
Someday I hope you have the opportunity to meet some OCF members in person. Ive had the pleasure of meeting several members and am very proud to say they are my friends.
Hope you feel alittle better everyday. ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | Joined: Jun 2007 Posts: 595 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Jun 2007 Posts: 595 | Pete,Hope all goes well in your recovery from all this and remember that we are one big happy family here. Semper-Fi Bob
Bob age 57, non smoker,non drinker, ended treatment on 11 Nov 2007 and started back to work on 29 Nov 2007. Veterans Day 2012 the Battle was lowered, folded, Taps was played and the Flag buried as I am know a 5 year survivor. Semper-FI !!!
| | | | Joined: Nov 2007 Posts: 681 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Nov 2007 Posts: 681 | Pete, I agree about the PEG. I had a nasal tube but somehow managed to pull it out in my semi delirium. I was on a soft diet and found lifting the spoon to my mouth very tiring for a while. I believe that if I had the PEG my nutrition would have been better thanfrom self feeding. I know that I did not drink as much fluid as I should have. Being home is much better especially as I am getting the royal tratment with home made food.
SCC stage II Partial mandibulectomy w. neck dissection- July 2005. Renal cancer w. partial nephrectomy-Jan 2004. Breast cancer discovered in routine mammogram. Successful lumpectomy, sentinal nodes clear, RT only-2008 Reconstruction of mandible w fibula free flap-Jan 09. TORS removal of begnin pappiloma from esophagus-2010. Masectomy,rt breast 2013. Support OCF
| | | | Joined: Aug 2008 Posts: 716 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Aug 2008 Posts: 716 | you sound like you are in good spirits...keep up the good work Pete...keep up the good work
7-16-08 age 37@Dx, T3N0M0 SCC 4.778cm tumor, left side of oral tongue, non smoker, casual drinker, I am the 4th in my family to have H&N cancer 8-13-08 left neck dissection and 40% of tongue removed, submandibular salivary gland & 14 nodes clean, no chemo, IMRTx35 11-4-08 Recovering & feeling better | | | | Joined: Sep 2008 Posts: 489 Platinum Member (300+ posts) | Platinum Member (300+ posts) Joined: Sep 2008 Posts: 489 | Pete you sound like you are doing well. I am happy that I can be part of the network supporting you.
Patty
48 SCC Floor of Mouth 7/06 9/06 Surgery, bilateral neck dissection, 58 nodes clear PT2pN0pMx 35 rad 2006 Recurred 6/08, 1 Carboplatin, 1 Cisplatin Surgery 9/08 - Total glossectomy, free flap from pectoral muscle, left mandible replaced using fibula 35 IMRT & Erbitux 11/08 4/15/09 recurrence 6/1/09 passed away, rest in peace
| | | | Joined: Aug 2008 Posts: 96 Supporting Member (50+ posts) | Supporting Member (50+ posts) Joined: Aug 2008 Posts: 96 | Pete, I'm so glad you're back home and doing as well as you are. You are always a font of info and entertaining, to boot! Your outlook on life is an inspiration. Lori
Lori, cg to H Ron, age 56. Stage IV Oral SCC-T1N2. Tongue resected and right ND 8/05. Teeth removed, PORT, PEG, IMRT x33, Cisplatin x3. Tx ended 10/05. Recurrence 7/08 Stage IV. Surgery 8/30/08. 2nd recur. 11/08. 2nd surgery 2/2/09. 3rd recur. 4/9/09. Erbitux wkly. 5/09-? Ron died 6/6/09. Lori also passed away 8/20/11, colon cancer | | | | Joined: Nov 2005 Posts: 1,128 Patient Advocate (1000+ posts) | OP Patient Advocate (1000+ posts) Joined: Nov 2005 Posts: 1,128 | Thanks, Lori -- I try to be useful in a number of ways -- Life is a participation sport and the more info we spread around, esp about stuf like OC, the better off we all are.
Age 67 1/2 Ventral Tongue SCC T2N0M0G1 10/05 Anterior Tongue SCC T2N0M0G2 6/08 Base of Tongue SCC T2N0M0G2 12/08 Three partial glossectomy (10/05,11/05,6/08), PEG, 37 XRT 66.6 Gy 1/06 Neck dissection, trach, PEG & forearm free flap (6/08) Total glossectomy, trach, PEG & thigh free flap (12/08) On August 21, 2010 at 9:20 am, Pete went off to play with the ratties in the sky.
| | | | Joined: Aug 2007 Posts: 1,301 "OCF Down Under" Patient Advocate (1000+ posts) | "OCF Down Under" Patient Advocate (1000+ posts) Joined: Aug 2007 Posts: 1,301 | Just a quick note to say hi as I have not been online this last week.
Wondering how you are progressing with all your healing. Still attached to all that white noisy machinery??
Gabriele
History Leukoplakia bx 8/2006 SCC floor mouth T3N0M0- Verrucous Carcinoma. 14 hour 0p SCC-Right ND/excision/marginal mandibulectomy 9/2006, 4 teeth removed, flap from wrist, trach-ng 6 days- no chemo/rad. 6 ops and debulking (flap/tongue join) + bx's 2006-2012. bx Jan 2012 Hyperkeratosis-Epithelial Dysplasia 24cm GIST tumour removed 8/2013. Indefinite Oral Chemo.
1/31/16 passed away peacefully surrounded by family
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