#87869 01-11-2009 06:55 PM | Joined: Sep 2008 Posts: 489 Platinum Member (300+ posts) | OP Platinum Member (300+ posts) Joined: Sep 2008 Posts: 489 | I hope that I have this in the correct form. Has anyone had experience with the Erbitux rash on other parts of their body than their face and also a couple of weeks after the last treatment?? I'm going to call the Oncologist's office Monday and I have looked through all of the info that I have on the treatment. I can find documentation regarding the rash on the face and upper body in one article. My last treatment was 12/22 and I have what looks like the Erbitux rash on my legs increasing over the past week. Thanks Patty
48 SCC Floor of Mouth 7/06 9/06 Surgery, bilateral neck dissection, 58 nodes clear PT2pN0pMx 35 rad 2006 Recurred 6/08, 1 Carboplatin, 1 Cisplatin Surgery 9/08 - Total glossectomy, free flap from pectoral muscle, left mandible replaced using fibula 35 IMRT & Erbitux 11/08 4/15/09 recurrence 6/1/09 passed away, rest in peace
| | | | Joined: May 2008 Posts: 551 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: May 2008 Posts: 551 | That does sound strange, Patty. I got the rash on my face, chest and back but I don't think it ever spread elsewhere. Have you been taking anything for it? Erbitux does have a long half-life, so it still could be in your system, but a call to the doc sounds like a good idea. - Margaret
Stage IV SCC lt lateral tongue, surgery 5/19/08 (partial gloss/upper neck dissection left side/radial free flap reconstruction) IMRT w/weekly Cisplatin & Erbitux 6/30/08, PEG 1 6/12/08 - out 7/14 (in abdominal wall, not stomach), PEG 2 7/23/08 - out 11/20/08, Tx done 8/18/08 Second SCC tumor, Stage 1, rt mobile tongue, removed 10/18/2016, right neck dissection 12/9/2016 Third SCC tumor, diagnosed, 4/19/2108, rt submandibular mass, HPV-, IMRT w/ weekly Cisplatin, 5/9 - 6/25/2018, PEG 3 5/31/2018
| | | | Joined: Sep 2008 Posts: 489 Platinum Member (300+ posts) | OP Platinum Member (300+ posts) Joined: Sep 2008 Posts: 489 | Not taking anything right now. I do have a prescription acne cream that they gave me. I put it on some of it. It is weird I think, but I do not know how long it stays in your system.
Thanks though Margaret at least I know that some people do get the rash on places other than their face. I had it on my nose, cheeks and forehead but then it cleared up. Then this started.
Patty
48 SCC Floor of Mouth 7/06 9/06 Surgery, bilateral neck dissection, 58 nodes clear PT2pN0pMx 35 rad 2006 Recurred 6/08, 1 Carboplatin, 1 Cisplatin Surgery 9/08 - Total glossectomy, free flap from pectoral muscle, left mandible replaced using fibula 35 IMRT & Erbitux 11/08 4/15/09 recurrence 6/1/09 passed away, rest in peace
| | | | Joined: Sep 2008 Posts: 27 Contributing Member (25+ posts) | Contributing Member (25+ posts) Joined: Sep 2008 Posts: 27 | Patty - my husband had a weird break-out for a couple of weeks after his treatment ended too. It was on his legs, butt, back. He didn't go back on the acne meds (he had taken them at the beginning of treatment) and in just a little while it all disappeared. Washing the body with Head and Shoulders seemed to help. Odd, but true.
Caregiver to husband, 44, nonsmoker, nondrinker Diagnosed 7/15/08 with BOT SCC, stage IVa. Two positive nodes removed Cisplatin and erbitux ended 10/15/08 Radiation over 10/20/08 Back to work 11/24/08 PEG out 12/9/08 Scans 12/2008 and 3/2009 Clear
| | | | Joined: Sep 2008 Posts: 489 Platinum Member (300+ posts) | OP Platinum Member (300+ posts) Joined: Sep 2008 Posts: 489 | Head and Shoulders - that does sound funny but I will try it. The Dr's office says it is highly possible that is what's going on so I will just watch it. Side effects means that it's working in my pea brain.
Thanks Wendy.
Patty
48 SCC Floor of Mouth 7/06 9/06 Surgery, bilateral neck dissection, 58 nodes clear PT2pN0pMx 35 rad 2006 Recurred 6/08, 1 Carboplatin, 1 Cisplatin Surgery 9/08 - Total glossectomy, free flap from pectoral muscle, left mandible replaced using fibula 35 IMRT & Erbitux 11/08 4/15/09 recurrence 6/1/09 passed away, rest in peace
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