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| | Joined: Sep 2008 Posts: 489 Platinum Member (300+ posts) |  Platinum Member (300+ posts)
Joined: Sep 2008 Posts: 489 | I have never felt more supported and understood than I do here. I feel safe here - safe to ask questions or to share experiences or a laugh or two. People that have had cancer are more understanding, but people that have had the same cancer as you can relate more to what you are going through and have more similar experiences. I am very grateful that I found OCF and all of you.
Patty
48
SCC Floor of Mouth 7/06
9/06 Surgery, bilateral neck dissection, 58 nodes clear PT2pN0pMx
35 rad 2006
Recurred 6/08, 1 Carboplatin, 1 Cisplatin
Surgery 9/08 - Total glossectomy, free flap from pectoral muscle, left mandible replaced using fibula
35 IMRT & Erbitux 11/08
4/15/09 recurrence
6/1/09 passed away, rest in peace
| | | | | Joined: Jan 2009 Posts: 62 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Jan 2009 Posts: 62 | [quote=Pete D]One way to get their attention would be to say "I hit all the risk factors; I smoked, drank and had sex!" and give them a little guilt feedback to chew on!
[/quote]
I LOVE this! That will be my answer from now on. Not only is it true but it leaves them thinking. I think alot of people think this cancer is caused just by smoking so by informing them of the other risks, it'll give them something else to think about. Thanks Pete!! Carol
DX 6/05 Rt Tonsil SSC advanced to lymph node. Stage 4b. RND, took tonsils, strips off the back of tongue, throat and nose. 19 lymph nodes removed only 1 bad. Once healed, 7 weeks of treatment including 35 IMRT, 7 Cisplatin, 7 Erbitux and 35 nasty Amophostine. Almost 11 yrs out now. Woooo Hoooo!
| | | | | Joined: Dec 2008 Posts: 1,004 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Dec 2008 Posts: 1,004 | Patty,
I agree. Finding this site makes me feel so good.
Suzanne
***********
T1 SCC on right side of tongue
Age 31...27 when diagnosed
4 partial glossectomies
No chemo or radiation
Biopsy on 2/2/10-Clear
Surgery needed again...no later than April 2011
Loving life and just became a mother on 11/25/10
It's not what we CAN'T do..it's what we CAN do:)
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