Previous Thread
Next Thread
Print Thread
Page 3 of 3 1 2 3
Ray1971 #86844 12-28-2008 08:24 PM
Joined: Jun 2007
Posts: 10,507
Likes: 7
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)
Offline
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)

Joined: Jun 2007
Posts: 10,507
Likes: 7
Ryobi

Please calm down. It isnt doing you any good to get so worked up and dwell on your past. Please understand that getting all worked up isnt going to change the biopsy results one bit. Once you have the biopsy, it will then take about another week for the results to come back. At this point you need to focus on positive things in your life and not let worry steal time from you. The past is the past and cant be changed, you do have control over your future, its up to you the choices you make.

I dont mean to sound harsh at all. Many people have problems in their lives and go on to overcome it and become productive, successful individuals. Ive seen so many scared new members post here, all have been convinced they were dying only to find out they didnt have cancer at all. Lets hope thats what the biopsy results show for you, no cancer. Remember you are the one who controls how you feel.

Hang in there and relax its the holiday season. Im sure you can think of things you are greatful for or how lucky you really are. Positive thinking goes a long way.


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
Ray1971 #86845 12-28-2008 08:24 PM
Joined: Mar 2003
Posts: 1,384
Likes: 1
Patient Advocate (1000+ posts)
Offline
Patient Advocate (1000+ posts)

Joined: Mar 2003
Posts: 1,384
Likes: 1
Ryobi,

NO a video is NOT going to be helpful!!!!! There are Doctors that don't get it right by looking..... You can only get a definitive diagnosis with a tissue biopsy. We here couldn't even know if a biopsy is the correct next step. Take a moment to chill out, get to see a doctor in the morning.


Mark, 21 Year survivor, SCC right tonsil, 3 nodes positive, one with extra-capsular spread. I never asked what stage (would have scared me anyway) Right side tonsillectomy, radical neck dissection right side, maximum radiation to both sides, no chemo, no PEG, age 40 when diagnosed.
Ryobi #86852 12-28-2008 09:23 PM
Joined: Dec 2008
Posts: 9
Ryobi Offline OP
Member
OP Offline
Member

Joined: Dec 2008
Posts: 9
Thanks All,

I was trying not to be one of the people who freak out on these pages. I know you guys get that a lot.

I guess i feel really alone. I've always kind of prided myself on being a loner, but it's just tough because I know if you catch it early it isn't as big of a deal, and no one seems to believe me, or something, and I know something is going on-my throat, tongue, upper mouth(?), tonsillary arch, all at different times are numb and painful.

I know I need a biopsy but how do you get a doctor to do that. I've been to the ENT twice, and many people on these pages tell stories of having to go to several doctors, or of people going to the doctor and not being diagnosed and dying. So, I don't know

I feel like a baby and a coward. My life has been in peril many times, and I freaked out, but not like this. I guess the pictures just look so gnarly.

It's strange, so many people chew, smoke and drink around here, yet she has only seen two cases of oral cancer. Fishing, logging, and construction are the three major industries. Two of the boats on the Deadliest catch are based here, so if you've seen that show you've seen how much those guys smoke/chew/ and drink. It's like life is cheep here, or something. If I don't have cancer, I got to get out of here. It's killing me, or already has, lol.

But man i just chewed so much, one after the other, i took one even before I got out of bed. It was that bad, so if anyone should get OC it's probably me. I'm an idiot.

Ryobi #86864 12-28-2008 11:00 PM
Joined: Nov 2002
Posts: 3,552
Patient Advocate (old timer, 2000 posts)
Offline
Patient Advocate (old timer, 2000 posts)

Joined: Nov 2002
Posts: 3,552
Ryobi,
trust us - we're used to people freaking out! But we can't diagnose you over the internet. We are not doctors. You need to make an appointment with an ENT, have an evaluation made and then have your mind set at ease that it is not cancer. If there is nothing there to biopsy -they will not order one.

Stop chewing and using tobacco products if you haven't already. This is one club that you really don't want to join. Forget what all the other brain dead people in the world do - this is about your life not theirs.

By the way, most oral cancers are asymptomatic and have no pain at all. Pain usually indicates an infection.


Gary Allsebrook
***********************************
Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2
Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy)
________________________________________________________
"You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
Gary #86866 12-28-2008 11:51 PM
Joined: Dec 2008
Posts: 9
Ryobi Offline OP
Member
OP Offline
Member

Joined: Dec 2008
Posts: 9
Thanks Gary that puts my mind at eaze because whatever this is it hurts bad

I quit smoking and chewing haven't had any in a week

I'm driving my mom crazy though

Ryobi #86867 12-29-2008 01:20 AM
Joined: Jul 2008
Posts: 56
MSG Offline
Supporting Member (50+ posts)
Offline
Supporting Member (50+ posts)

Joined: Jul 2008
Posts: 56
Hey Ryobi,

See another ENT and just lie: say that you have a family history of cancer, and your mom and dad had oral cancer. That will definitely jump start the biopsy. I've had problems with lots of ENT's, and it took awhile to find one that would do a FNA biopsy on my inflammed tonsils. I just lied and said my dad had tonsilar cancer, and I want to know if that's what this is. I don't understand why some of these guys are so reluctant.

Anyways, do you surf? If you surf, get the hell out of Washington State! That place is so depressing! Move to Hawaii or California for awhile. Probably better to move to Hawaii and get away from the stress.

MSG #86872 12-29-2008 04:39 AM
Joined: Jun 2007
Posts: 10,507
Likes: 7
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)
Offline
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)

Joined: Jun 2007
Posts: 10,507
Likes: 7


Lying to doctors is NOT a good way to get them to help you. Would you want doctors lying to you?


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
ChristineB #86875 12-29-2008 06:16 AM
Joined: Aug 2008
Posts: 716
"Above & Beyond" Member (500+ posts)
Offline
"Above & Beyond" Member (500+ posts)

Joined: Aug 2008
Posts: 716
Don't lie--tell the truth and tell your doctor you need this to be fixed pronto and you need answers. Stop chewing, stop smoking. I'm a little confused by your posts. Sometimes I think your not chewing and sometimes I think you are chewing tobacco. If you are, you need to stop NOW.

Calm down and get your arse in to see a doctor.


7-16-08 age 37@Dx, T3N0M0 SCC 4.778cm tumor, left side of oral tongue, non smoker, casual drinker, I am the 4th in my family to have H&N cancer
8-13-08 left neck dissection and 40% of tongue removed, submandibular salivary gland & 14 nodes clean, no chemo, IMRTx35
11-4-08 Recovering & feeling better
Ray1971 #86883 12-29-2008 11:03 AM
Joined: Nov 2002
Posts: 3,552
Patient Advocate (old timer, 2000 posts)
Offline
Patient Advocate (old timer, 2000 posts)

Joined: Nov 2002
Posts: 3,552
Well at least once a year we have a genuine hypochondriac (or sympathy freak) on the forum. They chew up a lot of time and resources that can be better spent with other, more pressing, patient/caregiver needs. He knows what to do - the ball is in his court.

MSG - there is no scientific evidence to support that OC is passed genetically. If you found an ENT that believed your story I would question whether he actually has cancer experience or is one of those ENT's who makes a living sticking tubes in kids ears.

I am closing this thread and Ryobi feel welcome to post your status after your ENT visit. If you indeed test positive, we want to help you in any way we can.

Last edited by Gary; 12-29-2008 11:06 AM.

Gary Allsebrook
***********************************
Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2
Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy)
________________________________________________________
"You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
Page 3 of 3 1 2 3

Link Copied to Clipboard
Top Posters
ChristineB 10,507
davidcpa 8,311
Cheryld 5,264
EzJim 5,260
Brian Hill 4,918
Newest Members
Kpwin, Boost iV Miami, dcrowman, Yuka, monkeytoes
13,361 Registered Users
Forum Statistics
Forums23
Topics18,264
Posts197,178
Members13,362
Most Online1,788
Jan 23rd, 2025
OCF Awards

Great Nonprofit OCF 2023 Charity Navigator OCF Guidestar Charity OCF

Powered by UBB.threads™ PHP Forum Software 7.7.5