| | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) |  Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | You have pills that work for a cold!!! Man that's a blessing.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Nov 2005 Posts: 1,128 Patient Advocate (1000+ posts) | | OP Patient Advocate (1000+ posts)
Joined: Nov 2005 Posts: 1,128 | I spoke (wrote) obscurely -- The pills that work are for the cancer pain (biopsy site and ear); the cold pills are not working! However, the cold seems to be getting better.
Last edited by Pete D; 12-22-2008 05:43 PM.
Age 67 1/2
Ventral Tongue SCC T2N0M0G1 10/05
Anterior Tongue SCC T2N0M0G2 6/08
Base of Tongue SCC T2N0M0G2 12/08
Three partial glossectomy (10/05,11/05,6/08), PEG, 37 XRT 66.6 Gy 1/06
Neck dissection, trach, PEG & forearm free flap (6/08)
Total glossectomy, trach, PEG & thigh free flap (12/08)
On August 21, 2010 at 9:20 am, Pete went off to play with the ratties in the sky.
| | | | | Joined: Aug 2008 Posts: 531 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Aug 2008 Posts: 531 | If it would help and I know alternative or holistic approaches are taken with a grain of salt but I urge you to try echinacea in liquid form. I attribute my good health post surgery and pre surgery reguarding colds to taking this gem. It really builds the immune system. That in connection with my little bottle of waterless hand soap was a winning combination...
Dianne..treatment at cc at Victoria Hospital, London, Ontario...insulin dependant, Surgery Sept 8/08 Tracheotomy,composite resection and bilateral neck dissection, left radial forearm free flap... T2N0 squamous cell carcinoma. No radiation A little over 2 yrs clear YAY
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Darn it Pete, I thought WE were on to something. You notice how I inserted me into that potentially lucrative equation?
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Nov 2005 Posts: 1,128 Patient Advocate (1000+ posts) | | OP Patient Advocate (1000+ posts)
Joined: Nov 2005 Posts: 1,128 |
David, if I had a cure for the common cold, I'd be glad to let the whole forum in!
Actually, RatPhooey had a sneeze and liquid echinacea was one of the non-prescription remedies recommended by various on-line rat groups -- Couldn't find the liquid stuf, but I didn't look very hard.
Age 67 1/2
Ventral Tongue SCC T2N0M0G1 10/05
Anterior Tongue SCC T2N0M0G2 6/08
Base of Tongue SCC T2N0M0G2 12/08
Three partial glossectomy (10/05,11/05,6/08), PEG, 37 XRT 66.6 Gy 1/06
Neck dissection, trach, PEG & forearm free flap (6/08)
Total glossectomy, trach, PEG & thigh free flap (12/08)
On August 21, 2010 at 9:20 am, Pete went off to play with the ratties in the sky.
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | The common cold starts to break up after 72 hours.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Jun 2008 Posts: 309 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Jun 2008 Posts: 309 | i was gonna try echinacea for something or other i heard it was good for ... cannot remember what it was now ... but anyways ... then i read it is not recommended for those with high bp or was it those with arthritis ... lol i do not know now but it wasn't one recommended for me LOL, so i never ended up takin it... my case in point is even if it is a supplement or vitamin type of thing, always check if you should take it, in regards to other conditions you may have or other meds you may be taking. some are great - others can cause problems more than help, depending on you and your condition.
Rita - Age 44
wife, mother of 4 - ages 3,16,21,24 & grandma to 1
(R upper) Maxillectomy 8/8/08 - UW / Seattle, WA.
===============================
"Those who think by the inch and speak by the yard, should be kicked by the foot."
| | | | | Joined: Nov 2005 Posts: 1,128 Patient Advocate (1000+ posts) | | OP Patient Advocate (1000+ posts)
Joined: Nov 2005 Posts: 1,128 | I went for my pre-surgery prep yesterday and nurse told me that lady with similar case to mine had worked very hard on her speech and after eight weeks had gotten into speech therapy, so I guess it will be a longer time before I start making phone calls! Good thing my cell has texting!
Dr Haakenslash wrote "Total Glossectomy" on the sign-away-your-life papers, although what we discussed sounded like a partial glossectomy, albeit perhaps large, on BOT -- I presume he is covering all the bases in case he finds more that he expects from the MRI (This didn't stand out on the CT, so who knows?). I suppose I'll know more when I wake up.
My GI Doc will install a decent PEG on Friday or Saturday, depending on hospital scheduling, using full sedation. Be nice to have a good one this time!
Got my sister lined up to come out if needed to get me home from hospital with trach -- Gotta satisfy the rules (Reading between the lines, they must be at serious risk if they send patient home with trach), but I *know* from many other surgeries that I do lots better at home than in hospital and I don't want the intermediate step of a Skilled Nursing Facility (aka sniff to the profession) and ones with respiratory techs are apparently rare). Plus, I wouldn't have the QuackPack Ratz to keep me company.
Stopped by my pharmacy to alert them to keep the lockers full of Oxycodone <grinz>.
Age 67 1/2
Ventral Tongue SCC T2N0M0G1 10/05
Anterior Tongue SCC T2N0M0G2 6/08
Base of Tongue SCC T2N0M0G2 12/08
Three partial glossectomy (10/05,11/05,6/08), PEG, 37 XRT 66.6 Gy 1/06
Neck dissection, trach, PEG & forearm free flap (6/08)
Total glossectomy, trach, PEG & thigh free flap (12/08)
On August 21, 2010 at 9:20 am, Pete went off to play with the ratties in the sky.
| | | | | Joined: Nov 2002 Posts: 3,552 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Nov 2002 Posts: 3,552 | Pete,
I am saddened that you have to go through this yet a third time. Life just isn't fair - it's one of our greatest childhood lies, I have found out, as I have gotten older.
Sometimes a sense of humor is all you can cling too and you have been remarkably blessd with that.
I pray that they get this thing once and for all and that you have a successful and lasting recovery this time.
Gary Allsebrook
***********************************
Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2
Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy)
________________________________________________________
"You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
| | | | | Joined: Nov 2005 Posts: 1,128 Patient Advocate (1000+ posts) | | OP Patient Advocate (1000+ posts)
Joined: Nov 2005 Posts: 1,128 | Gary, I consider myself lucky, three bouts (or even more in future) is nothing compared to what some on this group have gone through. Life doesn't come with guarantees, but I feel that I have had a good one and this stuf is just part of it. Heck, after all this I will still have two eyes, two lungs, two arms and two legs, just to name some useful stuf that many don't have!
A hundred years ago I would already have been dead from serious burns or a fall that broke my face, so cancer's maybe just the fare I pay for a longer ride on the mortal coil.
My ex-wife's second husband has pulmonary fibrosis, plus he's had serious heart problems -- I was talking to a childhood friend who had helped nurse her mother with PF, and she said that if he was lucky, he would die of heart problems first -- Apparently, PF is a long, painful process with only one ending.
Age 67 1/2
Ventral Tongue SCC T2N0M0G1 10/05
Anterior Tongue SCC T2N0M0G2 6/08
Base of Tongue SCC T2N0M0G2 12/08
Three partial glossectomy (10/05,11/05,6/08), PEG, 37 XRT 66.6 Gy 1/06
Neck dissection, trach, PEG & forearm free flap (6/08)
Total glossectomy, trach, PEG & thigh free flap (12/08)
On August 21, 2010 at 9:20 am, Pete went off to play with the ratties in the sky.
| | |
| Forums23 Topics18,220 Posts197,069 Members13,255 | | Most Online875
Dec 21st, 2024 | | |
|
