#86749 12-27-2008 03:05 PM | Joined: Aug 2008 Posts: 716 "Above & Beyond" Member (500+ posts) | OP  "Above & Beyond" Member (500+ posts)
Joined: Aug 2008 Posts: 716 | I keep on forgetting to post this...every so often I mention my Nanny...My mothers mother...She was diagnosed with SCC tongue cancer when she was 80 years old. She had about 10% of her tongue removed with clean margins with no other tx. She will be 91 this coming March. She smoked only one cigarette in her life at the age of 17 and doesn't drink alcohol. Nanny religiously takes her vitamins and goes to Church. She'll be an eleven year survivor with no recurrences or complications in 2009.
7-16-08 age 37@Dx, T3N0M0 SCC 4.778cm tumor, left side of oral tongue, non smoker, casual drinker, I am the 4th in my family to have H&N cancer
8-13-08 left neck dissection and 40% of tongue removed, submandibular salivary gland & 14 nodes clean, no chemo, IMRTx35
11-4-08 Recovering & feeling better
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | My great grandmothers lived a full life too. One that smoked her corn cob lived to be 96 and the one that didn't made 108. I'm going for the family record. LOL Neither were ever sick either. I think all of the bad things were saved for me so I could take the punishment for them, I can handle it. I was just old enough to remember them pretty good.I have one of their hearing aids. It's like a sweeper hose with an earpiece and a small megaphone looking mouth piece where you speak. The hose is about 3 ft long.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Aug 2008 Posts: 716 "Above & Beyond" Member (500+ posts) | | OP "Above & Beyond" Member (500+ posts)
Joined: Aug 2008 Posts: 716 | Jim,
You don't have to use your grandmothers hearing aide...Technology has come a long way...LOL...JK
7-16-08 age 37@Dx, T3N0M0 SCC 4.778cm tumor, left side of oral tongue, non smoker, casual drinker, I am the 4th in my family to have H&N cancer
8-13-08 left neck dissection and 40% of tongue removed, submandibular salivary gland & 14 nodes clean, no chemo, IMRTx35
11-4-08 Recovering & feeling better
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Thanks for posting about your Nanny. I love to hear stories of survivors. She is one lucky lady.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | | | | Joined: Jul 2006 Posts: 388 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Jul 2006 Posts: 388 | Christine said what I was going to say - wish her a BIG HAPPY on her 91st in March! Warmly, JaneP
Husband: 3 SCC gum and cheek cancers 2002, 2005, 2006: surgery only. Scans clear after removal of small, well differentiated, non-invasive cancers. No radiation. 4th SCC lip diagnosed 4/13/07 - in situ, removed in biopsy. More lip removed 2/8/08 - dysplasia. 2 Biopsies 3/17/09 no cancer (lichenoids)
| | | | | Joined: Aug 2008 Posts: 7 Member | | Member
Joined: Aug 2008 Posts: 7 | Loved reading all the grandmother stories. My husband came home from hospital today after total glossectomy with flap replacement and jaw bone removed with no replacement to make swallowing easier. The doctor said all margins clear. He will not have rad since this is his second bout and he had the max rad 6 years ago. My hope is that he will be well and live to 106. Next step will be to remove trach and n/g tube after swallow eval and get him talking. I would love to hear success stories. Happy New Year. elem | | | | | Joined: Apr 2005 Posts: 2,219 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Apr 2005 Posts: 2,219 | Ray,
Thanks for sharing your story about your grandmother.
I'm sure your will set a new record in your family for survivorship.
Have a Happy New Year.
Jerry
Jerry
Retired Dentist, 59 years old at diagnosis. SCC of the left lateral border of the tongue (Stage I). Partial glossectomy and 30 nodes removed, 4/6/05. Nodes all clear. No chemo no radiation 18 year survivor.
"Whatever doesn't kill me, makes me stronger"
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