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#86490 12-21-2008 10:12 AM
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Ray1971 Offline OP
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I have a question for you guys...At night time I sweat profusely, it's like I took a shower in my PJ's and came back to bed. It's like catch-22, I'm covered up then I sweat then I kick the covers off then catch the chills, cover myself up again then start sweating all over again. My hair is completely wet, I'm soaked...It gets me a little worried because when I was having issues with my tongue before diagnosis I was sweating a lot during the night. After my surgery and during radiation the night sweats subsided..they're now back. Could it be the goose feathered filled blankets and pillows that come out during the winter months?

Do any of you have a problem with night sweats?


7-16-08 age 37@Dx, T3N0M0 SCC 4.778cm tumor, left side of oral tongue, non smoker, casual drinker, I am the 4th in my family to have H&N cancer
8-13-08 left neck dissection and 40% of tongue removed, submandibular salivary gland & 14 nodes clean, no chemo, IMRTx35
11-4-08 Recovering & feeling better
Ray1971 #86492 12-21-2008 10:23 AM
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Are you taking salagen or such to stimulate saliva production. If so that is likely the reason and you might want to lower the dose.
(as always consult your physician)

M



Partial glossectomy (25%) anterior tongue. 4/6/07/. IMRT start @5/24/07 (3x) Erbitux start/end@ 5/24/07. IMRT wider field (30x) start 6/5/07. Weekly cisplatin (2x30mg/m2), then weekly carbo- (5x180mg/m2). End of Tx 19 July 07.
Markus #86516 12-21-2008 11:40 PM
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Ray, I have sweats once and a while. I have an electric blanket which feels great at first but by the middle of the night is too hot even on the lowest setting. You might just have too good a blanket. Be aware that night sweats can be a symptom of illness. I know that my sweats seem to be related to thyroid med. issues.


Mark, 21 Year survivor, SCC right tonsil, 3 nodes positive, one with extra-capsular spread. I never asked what stage (would have scared me anyway) Right side tonsillectomy, radical neck dissection right side, maximum radiation to both sides, no chemo, no PEG, age 40 when diagnosed.
Mark #86518 12-22-2008 12:55 AM
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I did too while I was on medication and for awhile after coming off of them. Its your body readjusting itself... k


Tongue Cancer T2 N0 M0 /
Total Glossectomy Due to Location of Tumor

Finished all treatments May 25 2007
Surviving!!!
misskate #86521 12-22-2008 06:29 AM
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Get your thyroid checked or at least your TSH levels. I had the same exact identical (get my point) symptoms and my thyroid had taken a tank so now I just take a daily pill that makes a difference.


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
davidcpa #86530 12-22-2008 08:48 AM
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Ray1971 Offline OP
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Thank you guys...I see my RO on December 31st and I'll bring it up to him. I didn't use the down blanket just the sheet last night and everything seemed okay. But, guess what? I woke up today with probably the worst case of lymphedema, primarily on the side of my neck dissection. I don't know if it's a coincidence or not with not sweating. I look like I'm storing nuts on my left side of my face/neck like a chipmunk...just not as cute.

Btw, food doesn't taste putrid anymore...the flavors are not great but at least they don't seem rancid.


7-16-08 age 37@Dx, T3N0M0 SCC 4.778cm tumor, left side of oral tongue, non smoker, casual drinker, I am the 4th in my family to have H&N cancer
8-13-08 left neck dissection and 40% of tongue removed, submandibular salivary gland & 14 nodes clean, no chemo, IMRTx35
11-4-08 Recovering & feeling better
Ray1971 #86556 12-22-2008 04:57 PM
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Hi Ray,
I've been having sweats too (day and night), but they seem to be easing off now. I had put it down to Menopause but this thread has me thinking that there may be more to it. I don't think I've had my thyroid function tested all. Perhaps I should. I've also been getting increasingly lethargic - but I've put that down to a combination of being back at work and Christmas. I will see how I feel in the New Year.
I finished treatment in late July and there are some foods that still do not taste 'normal' - but apart from spicy stuff I'm now enjoying everything that I did before my treatment. Your taste will continue to improve for sure.

Sue G


55 y/o
SCC LL Tongue 3/27/07
Part. mandibulectomy 9/2/07
Left ND 5/12/08
RT/Chemo
Rec LL Tongue 07/09
Part gloss 8/5 & 8/25
Surg 10/28/09 re mets to R neck & L jaw
RT & Chemo finished 12/22/09
PEG fitted 05/06/10
L buccal SCC 10/10
freeflap (forearm)surgery 2/28/11 L buccal and gingiva
Sue G #87348 01-05-2009 07:52 PM
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Just wondering Ray if you got any response about your sweats at your appointment...I don't necessarily sweat but get real hot I too Sue am contributing it to Menopause but I was just curious cause I never had radiation...my treatment was strictly sugical...


Dianne..treatment at cc at Victoria Hospital, London, Ontario...insulin dependant, Surgery Sept 8/08 Tracheotomy,composite resection and bilateral neck dissection, left radial forearm free flap... T2N0 squamous cell carcinoma. No radiation A little over 2 yrs clear YAY
darkeyedlady0 #87364 01-06-2009 06:39 AM
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Ray1971 Offline OP
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Dianne,

I stopped using the down comforter and the sweats disappeared. I use a sheet and a regular blanket and I seem to be fine. I also stopped using a down pillow and my head stopped sweating. I suppose I can't use down. Since the night sweats are gone my RO is not concerned.


7-16-08 age 37@Dx, T3N0M0 SCC 4.778cm tumor, left side of oral tongue, non smoker, casual drinker, I am the 4th in my family to have H&N cancer
8-13-08 left neck dissection and 40% of tongue removed, submandibular salivary gland & 14 nodes clean, no chemo, IMRTx35
11-4-08 Recovering & feeling better
Ray1971 #87402 01-06-2009 05:02 PM
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Oh ....I thought you would have some profound explanation for me to help me understand my night "hot flashes" as I refuse to believe it is an age thing lol lol lol...Who me ...menopause...yeah right but maybe.....


Dianne..treatment at cc at Victoria Hospital, London, Ontario...insulin dependant, Surgery Sept 8/08 Tracheotomy,composite resection and bilateral neck dissection, left radial forearm free flap... T2N0 squamous cell carcinoma. No radiation A little over 2 yrs clear YAY

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