| | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | OP  Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | I did learn,, that once you feel it working,, no further tha a few feet from the bathroom .. that's mighy dangerous no matter the feeling of relief LOL even tried that kind too suzanne.. WHEW
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Dec 2008 Posts: 1,004 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Dec 2008 Posts: 1,004 | That constipation is such a bugger!!! Why don't tell you that?!?!? I found out the hard way. It was worse than the tongue pain.
How's it goin Jim...you seem to be in better spirits. I've been thinking about you. I go to the doc on Monday. Ray says my tongue looks better:) I'm still planning on asking for the biopsy.
Suzanne
***********
T1 SCC on right side of tongue
Age 31...27 when diagnosed
4 partial glossectomies
No chemo or radiation
Biopsy on 2/2/10-Clear
Surgery needed again...no later than April 2011
Loving life and just became a mother on 11/25/10
It's not what we CAN'T do..it's what we CAN do:)
| | | | | Joined: Dec 2008 Posts: 1,004 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Dec 2008 Posts: 1,004 | That constipation is such a bugger!!! Why don't tell you that?!?!? I found out the hard way. It was worse than the tongue pain.
How's it goin Jim...you seem to be in better spirits. I've been thinking about you. I go to the doc on Monday. Ray says my tongue looks better:) I'm still planning on asking for the biopsy.
Suzanne
***********
T1 SCC on right side of tongue
Age 31...27 when diagnosed
4 partial glossectomies
No chemo or radiation
Biopsy on 2/2/10-Clear
Surgery needed again...no later than April 2011
Loving life and just became a mother on 11/25/10
It's not what we CAN'T do..it's what we CAN do:)
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | OP Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | Really I feel lousy like that crap today. Just one of those days or subconsiouly I might be thinking about the pain where the anneurysm is. How are you and everyone else today??
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | OP Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | I am gonna holler one of these days and talk to whoever is handy when I need number to dial. It feels cold here , well It is in the 20s. LOL DUH JIM
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Dec 2008 Posts: 1,004 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Dec 2008 Posts: 1,004 | LOL....I'm doing pretty good day. Just happy it's Friday:) The work week is over and it's time for Christmas shopping tomorrow. Ray and I usually have some mojitos before we start..it makes the crowd easier:)
Do you have family near by Jim?
I liked your duh jim comment..LOL
Suzanne
***********
T1 SCC on right side of tongue
Age 31...27 when diagnosed
4 partial glossectomies
No chemo or radiation
Biopsy on 2/2/10-Clear
Surgery needed again...no later than April 2011
Loving life and just became a mother on 11/25/10
It's not what we CAN'T do..it's what we CAN do:)
| | | | | Joined: Nov 2005 Posts: 1,128 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Nov 2005 Posts: 1,128 | Be sure you keep on spelling it Duh, not Doh like the Simpsons do -- I believe that is an "expletive deleted" word in Russian -- Dunno if the producers knew that!
Age 67 1/2
Ventral Tongue SCC T2N0M0G1 10/05
Anterior Tongue SCC T2N0M0G2 6/08
Base of Tongue SCC T2N0M0G2 12/08
Three partial glossectomy (10/05,11/05,6/08), PEG, 37 XRT 66.6 Gy 1/06
Neck dissection, trach, PEG & forearm free flap (6/08)
Total glossectomy, trach, PEG & thigh free flap (12/08)
On August 21, 2010 at 9:20 am, Pete went off to play with the ratties in the sky.
| | | | | Joined: May 2007 Posts: 104 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: May 2007 Posts: 104 | EZJIM, I am sad you must go thru more....sometimes it just seems some are 'hit' w/ so much to bear. YOU will come thru this just fine, I believe after all you have been thru w/ the Oral Cancer pain/treatmentu you will just fly thru this. Sincerely. What happened that even caused them to check it? You certainly are cared about so much.....there is support/strength coming to you.
Linda
Jordan's Mom. Linda
She fought the fight with courage, hope and dedication. Ten months of battling tongue cancer. They thought they had it after each treatment. Not to be. Christa died at 32 y/o in Nov. '07.
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | OP Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | THey were checking for a hernia and did 3 ctScans in less than 3 weeks to make sure that it is what it lloked like. No hernia but antoer anneurysm. I guess we are all out thru the tests of life. The Dr that did the 1st repair is very good, but wants me to be where there are a number of specialsts just in case.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Aug 2008 Posts: 531 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Aug 2008 Posts: 531 | Well Jim you are still hanging in impressive!!! Guess I am on my way to battle the numbers. I love Christmas hate the crowds...People can get so sensitive. A friend wants to go out and do a few things me driving I am well lets just say not real fond of it since ND have driven a few times. This time of year I must be crazy...Anyway just giving you something else to think about distract you...Just think of me dodging other cars in parking lots full of frustrated angry people and just stopping and yelling out my window....Merry Christmas to all...Peace on earth...and Enjoyh LIFE you are lucky to have one!!! (Said lovingly) I am going to try to convert everyone with LOVE...wish me luck...
Dianne..treatment at cc at Victoria Hospital, London, Ontario...insulin dependant, Surgery Sept 8/08 Tracheotomy,composite resection and bilateral neck dissection, left radial forearm free flap... T2N0 squamous cell carcinoma. No radiation A little over 2 yrs clear YAY
| | |
| Forums23 Topics18,252 Posts197,147 Members13,332 | | Most Online1,788
Jan 23rd, 2025 | | |
|
