| | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) |  Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | So sad that this cancer is so cruel and I'm so sorry for your loss.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Nov 2005 Posts: 1,128 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Nov 2005 Posts: 1,128 | Lucy, it's best that you start a new thread so answers to you aren't mixed with answers to the original thread. My single piece of advice is to get her case to a Comprehensive Cancer Center designated such by the National Cancer Institute (If she's not already consulting one) where it will be reviewed by all the various cancer-fighting disciplines for the best course of treatment. Here's a list: http://www.oralcancerfoundation.org/resources/cancer_centers.htm
Age 67 1/2
Ventral Tongue SCC T2N0M0G1 10/05
Anterior Tongue SCC T2N0M0G2 6/08
Base of Tongue SCC T2N0M0G2 12/08
Three partial glossectomy (10/05,11/05,6/08), PEG, 37 XRT 66.6 Gy 1/06
Neck dissection, trach, PEG & forearm free flap (6/08)
Total glossectomy, trach, PEG & thigh free flap (12/08)
On August 21, 2010 at 9:20 am, Pete went off to play with the ratties in the sky.
| | | | | Joined: Jan 2008 Posts: 41 Contributing Member (25+ posts) | | OP Contributing Member (25+ posts)
Joined: Jan 2008 Posts: 41 | thank you all very much for your support.
i just keep wondering all the time how sth like that could happen. i only knew the possibility of mets to another place but not haemorrhage. it is realyy important for me to understand why this happened. Was it due to chemo or because of the disease? and is this the case to happen all of a sudden?please if you have some input i would like to know. she was still fighting, i can't understand what happened.
thank you,
sophia's daughter
sophia
| | | | | Joined: Jan 2008 Posts: 706 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jan 2008 Posts: 706 | Sophia- My husband and I were told about the possibility of hemorrage by his doctor. He also had him sign a DNR in case that happened. It is rare but it happens with head and neck cancer-as you are well aware. The neck had so many veins, blood vessels, and is a very active area. I'm so very sorry this happened to you but there is nothing you could have done. Nobody could have done anything as it happens quickly and without warning. Try to remember you mom with love and happiness. Those of us who communicated with her do.
Sue
cg to husband, 48 Stage 1V head and neck SCC. First surgery 9/07. Radiation and several rounds of chemo followed. Mets to chest and lungs. "Life isn't about waiting for the storm to pass, it's about learning to dance in the rain." Went home to God on February 22, 2009.
| | | | | Joined: Aug 2008 Posts: 531 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Aug 2008 Posts: 531 | Sophia seems like a repeat of what everyone else has said but God bless you for taking care of your mom and being there for her. I am sorry that she lost her battle but at least she won't have to battle anymore...
Dianne..treatment at cc at Victoria Hospital, London, Ontario...insulin dependant, Surgery Sept 8/08 Tracheotomy,composite resection and bilateral neck dissection, left radial forearm free flap... T2N0 squamous cell carcinoma. No radiation A little over 2 yrs clear YAY
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