| Joined: Jan 2007 Posts: 346 Platinum Member (300+ posts) | Platinum Member (300+ posts) Joined: Jan 2007 Posts: 346 | I seem to be in the boat with Gabe. I had a partial mandibulectomy with a reconstruction of the bone, but it failed and they took the fake jawbone out. I too have teeth on the top that have nothin on the bottom because of the flap. I had a bad case of biting my cheek but a dentist has now given me a mouthquard that helps somewhat. I think I look awful, but am OK with it as long as I get to live. My husband says that I don't look that bad. I think my new dentist summed it up when she said the inside of my mouth must feel so bad and different- that that is how I perceive myself on the outside. She also said I did not look bad, just a scar. BIG one though and also neck disection and trach. It will just become the new normal for you. I am trying to live with it for now. Gabe, did you have reconstruction? Take care, Debbie
Partial mandibulectomy and neck dissection 2/3/07. T2NOMO. Had 14 hour operation which included reconstruction of jaw. Reconstruction failed. Some radiation, no chemo. | | | | Joined: Aug 2007 Posts: 1,301 "OCF Down Under" Patient Advocate (1000+ posts) | "OCF Down Under" Patient Advocate (1000+ posts) Joined: Aug 2007 Posts: 1,301 | Just replied to your PM before I saw this post. As you can see I did not even realise about the marginal mandibulectomy till I saw my own signature again. I got this information from either the Dr�s or Pathology reports - I have copies. No reconstruction if I understand the question and can you or someone let me know the difference between marginal and partial. From what I remember being told at the time a small amount of jaw bone was taken to be ground down and tested for cancer during the surgery. Cheers Gabriele
History Leukoplakia bx 8/2006 SCC floor mouth T3N0M0- Verrucous Carcinoma. 14 hour 0p SCC-Right ND/excision/marginal mandibulectomy 9/2006, 4 teeth removed, flap from wrist, trach-ng 6 days- no chemo/rad. 6 ops and debulking (flap/tongue join) + bx's 2006-2012. bx Jan 2012 Hyperkeratosis-Epithelial Dysplasia 24cm GIST tumour removed 8/2013. Indefinite Oral Chemo.
1/31/16 passed away peacefully surrounded by family
| | | | Joined: Nov 2005 Posts: 1,128 Patient Advocate (1000+ posts) | Patient Advocate (1000+ posts) Joined: Nov 2005 Posts: 1,128 | Debbie, the only one who counts about the way you look is your Hubby! The rest are just dogs barking in the night.
Age 67 1/2 Ventral Tongue SCC T2N0M0G1 10/05 Anterior Tongue SCC T2N0M0G2 6/08 Base of Tongue SCC T2N0M0G2 12/08 Three partial glossectomy (10/05,11/05,6/08), PEG, 37 XRT 66.6 Gy 1/06 Neck dissection, trach, PEG & forearm free flap (6/08) Total glossectomy, trach, PEG & thigh free flap (12/08) On August 21, 2010 at 9:20 am, Pete went off to play with the ratties in the sky.
| | | | Joined: Jan 2007 Posts: 346 Platinum Member (300+ posts) | Platinum Member (300+ posts) Joined: Jan 2007 Posts: 346 | Pete, You are so sweet with your comment. I am just thankful to be here on this earth today. That is how I deal with it. The worst part about this is that none of us have had the same thing exactly happen to us. There are so many variations of the same operation that none of us seem to know what lies ahead. At least I don't. But I am proud of today and of this site and meeting good people like you! Thanks so much! You're the best Debbie
Partial mandibulectomy and neck dissection 2/3/07. T2NOMO. Had 14 hour operation which included reconstruction of jaw. Reconstruction failed. Some radiation, no chemo. | | | | Joined: Aug 2007 Posts: 580 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Aug 2007 Posts: 580 | In the words of Pete: Bark....BARRRRKKKK!!
Howling at the moon for you Debbie.
(I kill myself ...I really do...Sorry folks)
Dentist since 1995, 12 year Cancer Survivor, Father, Husband, Thankful to so many who supported me on my journey so far, and more than happy to comfort a friend. Live, Laugh, Love & Learn.
| | | | Joined: Aug 2007 Posts: 1,301 "OCF Down Under" Patient Advocate (1000+ posts) | "OCF Down Under" Patient Advocate (1000+ posts) Joined: Aug 2007 Posts: 1,301 | Told you that you would get some good replys Talk soon..Gabriele
History Leukoplakia bx 8/2006 SCC floor mouth T3N0M0- Verrucous Carcinoma. 14 hour 0p SCC-Right ND/excision/marginal mandibulectomy 9/2006, 4 teeth removed, flap from wrist, trach-ng 6 days- no chemo/rad. 6 ops and debulking (flap/tongue join) + bx's 2006-2012. bx Jan 2012 Hyperkeratosis-Epithelial Dysplasia 24cm GIST tumour removed 8/2013. Indefinite Oral Chemo.
1/31/16 passed away peacefully surrounded by family
| | | | Joined: Sep 2008 Posts: 489 Platinum Member (300+ posts) | OP Platinum Member (300+ posts) Joined: Sep 2008 Posts: 489 | Everyone has been very helpful with this. I like the way Dr Mike put it - I have the same options as others. I had not thught of it that way. I also appreciate the post about people who know me as myself mattering, to heck with the rest of them.
I don't know what I will do when the time comes. I am a manager at a retail store. A lot of public contact. At this time I'm not sure if I will be able to speak well enough to return to my job or not. I'm trying not to worry about it until January. I will search the older posts - I probably should get in the habit of doing that first anyway. Thanks to all - and the barking made me laugh!
48 SCC Floor of Mouth 7/06 9/06 Surgery, bilateral neck dissection, 58 nodes clear PT2pN0pMx 35 rad 2006 Recurred 6/08, 1 Carboplatin, 1 Cisplatin Surgery 9/08 - Total glossectomy, free flap from pectoral muscle, left mandible replaced using fibula 35 IMRT & Erbitux 11/08 4/15/09 recurrence 6/1/09 passed away, rest in peace
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