| | Joined: Mar 2005 Posts: 58 Supporting Member (50+ posts) |  Supporting Member (50+ posts)
Joined: Mar 2005 Posts: 58 | I had my peg tube removed after a year and all I felt was a prick like I had just received a flu shot. I was ot given any instructions of caution after the removal. The healing was fast as others have described, but I thought I was very careful not to lift anything heavy , yet I know have a hyrnia where the Peg tube was. I plan to have it taken of this winter. Has anyone else gotten a hyrnia and what have you done about it?
Hacklene
Hacklene
| | | | | Joined: Jun 2008 Posts: 309 Platinum Member (300+ posts) | | OP Platinum Member (300+ posts)
Joined: Jun 2008 Posts: 309 | had it removed yesterday. my experience was a strong pressure sensation and then a very strong sting sensation that lasted longer than I expected - about 3 minutes I would say. Once that stopped all was well but I thought it would just sting when being pulled thru but it wasn't too bad and very bearable. One of those things that make ya wanna go grrrrrrrrrrrrrrrr as you are experiencing it, but not even close to making you want to cry...
mine was not a balloon type but a disk about the size of a nickel at the end to be pulled through the hole.
was still bleeding last night when i changed the gauze, but not too bad so suspect all is well and should be healed up before I know it.
thanks for all the input so i knew what i was going to face ... the unknown is always so creepy ... i think that is the worst part about facing anything in life, esp health issues - the unknown. Thanks to Brian, and this forum, we do not have to face it blindly, we just have to ask those who have been there, done that.
You are all awesome and I hope you have an amazing week! Thanks again.
Rita - Age 44
wife, mother of 4 - ages 3,16,21,24 & grandma to 1
(R upper) Maxillectomy 8/8/08 - UW / Seattle, WA.
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"Those who think by the inch and speak by the yard, should be kicked by the foot."
| | | | | Joined: Nov 2005 Posts: 1,128 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Nov 2005 Posts: 1,128 | I've had a ventral hernia repair, but it was prior to my PEG tubes (I now have a longer scar with two dimples in it from the PEGs).
Age 67 1/2
Ventral Tongue SCC T2N0M0G1 10/05
Anterior Tongue SCC T2N0M0G2 6/08
Base of Tongue SCC T2N0M0G2 12/08
Three partial glossectomy (10/05,11/05,6/08), PEG, 37 XRT 66.6 Gy 1/06
Neck dissection, trach, PEG & forearm free flap (6/08)
Total glossectomy, trach, PEG & thigh free flap (12/08)
On August 21, 2010 at 9:20 am, Pete went off to play with the ratties in the sky.
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Great job Rita!!!!!!!! Congrats on being free of the tube 
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | | Joined: Jun 2008 Posts: 148 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Jun 2008 Posts: 148 | Awesome that you are tubeless Rita. Now onward and upward.
Bill . . . SCC - originated in right tonsil, drifted into neck ( 28 lymph nodes removed - one positive ). Radical neck dissection in September 07, completed 34 radiation tx on January 4, 2008. Used Peg. Non smoker, 61, good shape, no previous health issues. Second year PET scan - "all clear".
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 |
Rita:
Its been almost a week since they removed the tube. How do you feel? Any soreness or leaking?
I have my consult appointment in 2 weeks for the PEG and port to be removed. Ive had them almost 16 months and had removal scheduled twice before and cancelled it. Once was due to the recurrance, the other time I wasnt ready yet. I was able to get thru being sick off and on for the past month and still managed to avoid using the peg, so now I know Im ready.
I wont have to go thru what you did with yanking it out. I will be knocked out so that both the port and peg can be removed at the same time. Did you have a port?
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | | Joined: Jun 2008 Posts: 309 Platinum Member (300+ posts) | | OP Platinum Member (300+ posts)
Joined: Jun 2008 Posts: 309 | Hi ya Christine I did not have a port, just the peg. At one week post removal I can report all is well. It has pretty much all healed over, and is very tiny now compared to how big it was a week ago ... Still a dimple in the skin there, kinda like another belly button look, not sure if that goes away or not but it feels good and looks good for a healing scar... I am a happy camper I took it easy on lifting this past week, just to be sure all would be okay but did lift my 33 lb daughter yesterday and had no problems from it, nor pain so i think it was okay. It is so nice to not have the tube there ... Best wishes on your removal! I am sure all will be great with it and trust me it is a very "freeing" feeling to have it gone though it is a GODSEND for what it is needed / used for. Lemme know how it goes for u - I am sure it will all be fine! and you are lucky you do not have to experience the ouch factor on having it yanked out LOL ... though it was bearable it was not pleasant! Have a good one.
Rita - Age 44
wife, mother of 4 - ages 3,16,21,24 & grandma to 1
(R upper) Maxillectomy 8/8/08 - UW / Seattle, WA.
===============================
"Those who think by the inch and speak by the yard, should be kicked by the foot."
| | | | | Joined: Jul 2008 Posts: 507 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jul 2008 Posts: 507 | I am scheduled to have my PEG removed this Thursday.
I have always had off and on problems with the PEG site getting irritated, bleeding and infection. Mine just never seemed to fully heal properly, so in many ways I will be glad to be rid of it.
Never-the-less, I can't imagine going through TX without it and I am concerned once it is gone about maintaining a good weight since my appetite is still so poor and most foods still taste rather strange, including chocolate ensure.
Don
TXN2bM0 Stage IVa SCC-Occult Primary
FNA 6/6/08-SCC in node<2cm
PET/CT 6/19/08-SCC in 2nd node<1cm
HiRes CT 6/21/08
Exploratory,Tonsillectomy(benign),Right SND 6/23/08
PEG 7/3/08-11/6/08
35 TomoTherapy 7/16/08-9/04/08 No Chemo
Clear PET/CT 11/15/08, 5/15/09, 5/28/10, 7/8/11
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Yeah Don!!!!!!! Congrats on the big news. If you need any food ideas, let me know. I have tons of them since I dont eat very well either. Im really good at soup Thanks for the info Rita. Im looking forward to being appliance free, its been a very long time Ive had these things.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | | Joined: Jul 2008 Posts: 228 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Jul 2008 Posts: 228 | Don- that's so exciting! Chocolate was one thing that tasted weird for a little while after treatment, but I've never been a big chocolate fan anyway. Now I drink the Vanilla Carnation Instant Breakfasts in the mornings - I can't bring myself to even look at an ensure or boost or whatever anymore.
Stephanie, 23, SCC on the right side of my tongue, surgery on 5-19-08, over half my tongue removed, free flap constructed from my forearm, bilateral neck dissection, one positive node. Radiation (32) and chemo (carboplatin) started on 6-16-08. Recurrence 4/09 in lungs.
**** Stephanie passed away 12.15.09.... RIP our dear friend****
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