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Joined: Jul 2008
Posts: 228
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Gold Member (200+ posts)

Joined: Jul 2008
Posts: 228
My ENT and RO both scope me every time I see them - even if I see them on the same day, which happened once. My ENT usually tries to use the mirrors to spare me the scope, but they always make me gag so we go with the scope. They both feel around in my mouth with their fingers and look at it as well. They both feel my neck and I love that part because it's like getting a mini-massage! My MO is the one who schedules and reads my PET scans, listens to my breathing, and does a quick exam of my mouth. He is also the one that does my blood work (or at least looks at the results from it). I think that's about everything that gets done during exams.


Stephanie, 23, SCC on the right side of my tongue, surgery on 5-19-08, over half my tongue removed, free flap constructed from my forearm, bilateral neck dissection, one positive node. Radiation (32) and chemo (carboplatin) started on 6-16-08. Recurrence 4/09 in lungs.

**** Stephanie passed away 12.15.09.... RIP our dear friend****


Joined: Jul 2008
Posts: 507
"Above & Beyond" Member (500+ posts)
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"Above & Beyond" Member (500+ posts)

Joined: Jul 2008
Posts: 507
Andrew,
I saw my ENT today and asked about the scope and mirrors. Like Gary and Stephanie say, he said it depends on the patient.

He said some patient gag or have constriction so he has to use a scope. On others like me he said when he pulls my tongue out he can see everything to well below the vocal cords.

He has me make a hi pitched sound, I guess to keep my vocal cords open.

On another issue, my MO seldom checks my mouth or throat either. He just does the meds, orders lab and stuff. He does review everything entered in the computer system by the other doctors and techs and if something unusual shows up in their notes he takes a look.

The MO plans to release me soon.

Last edited by DonB; 11-19-2008 05:56 PM. Reason: typo

Don
TXN2bM0 Stage IVa SCC-Occult Primary
FNA 6/6/08-SCC in node<2cm
PET/CT 6/19/08-SCC in 2nd node<1cm
HiRes CT 6/21/08
Exploratory,Tonsillectomy(benign),Right SND 6/23/08
PEG 7/3/08-11/6/08
35 TomoTherapy 7/16/08-9/04/08 No Chemo
Clear PET/CT 11/15/08, 5/15/09, 5/28/10, 7/8/11

Joined: Apr 2008
Posts: 117
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Joined: Apr 2008
Posts: 117
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I saw my oncologist yesterday, and it looks like this might be straightened out. He told me he wants me back in four weeks, another PET/CT in January, and after that, see the ENT. I asked if I should see the radiation oncologist, and he said it is not necessary. He and the ENT can cover the tests and exams, etc.


Squamous cell carcinoma base of tongue. Lymph involvement unclear; staging placed at "2 or 3." Biopsy 4/18/2008. Treatment: IMRT every day for 7 weeks. Cisplaten once a week to sensitize cancer to radiation. Treatment ended 7/16/08. PET/CT shows no more cancer.
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