| | Joined: May 2008 Posts: 219 Platinum Member (200+ posts) | OP  Platinum Member (200+ posts)
Joined: May 2008 Posts: 219 | Jim, Nice to hear from you. I brush 3 to 4 times a day, use the baking soda and salt to rinse with and use mouth wash and today realized I am getting thrush again! I had a little of the Nystatin swish and swallow so I have started on that as the Dr.'s office are closed. Dang, if it's not one thing it's another. I may have to start using the oil of oregano to keep this at bay.
My ENT told me he took out all the tissue he could when he removed the tonsil back in June so I don't know what's keeping my pills from going down. I asked him about it and he said to just crush my meds (ones that can be crushed). I only have 2 more weeks of treatment to go. Yea Angel
SCC left tonsil, tonsillectomy with additional tissue removed 06/10/08, a few teeth on top left side removed 09/05/08,recurrence before treatment started at BOT and tonsil area, 35 IMRT treatments began 10/15/08, and Cisplatin IV (began10/16/08) weekly for duration of radiation.
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | I feel for you angel. WE are all tough people and will win this battle. I am about to start Valvoline 10W40. I bet that will smooth out in the throat. At least much easier going to the basement floor for whatever is making the journey.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Nov 2007 Posts: 681 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Nov 2007 Posts: 681 | Gee Whiz Jim,
Who would have thought that you would go for alternative medicine! Where have you found the best price - Pep Boys or Walmart? Is it cheaper by the case?
SCC stage II Partial mandibulectomy w. neck dissection- July 2005. Renal cancer w. partial nephrectomy-Jan 2004. Breast cancer discovered in routine mammogram. Successful lumpectomy, sentinal nodes clear, RT only-2008 Reconstruction of mandible w fibula free flap-Jan 09. TORS removal of begnin pappiloma from esophagus-2010. Masectomy,rt breast 2013.
Support OCF
| | | | | Joined: Aug 2008 Posts: 531 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Aug 2008 Posts: 531 | tell you what Jim I wish you could see my reaction to your post just shaking my head in disbelief lmao!!!!!
Dianne..treatment at cc at Victoria Hospital, London, Ontario...insulin dependant, Surgery Sept 8/08 Tracheotomy,composite resection and bilateral neck dissection, left radial forearm free flap... T2N0 squamous cell carcinoma. No radiation A little over 2 yrs clear YAY
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | The cheapest Ihave found is an oil change facility about a quarter mile from here. LOL Of course you have to strain the dirt out. I'm glad I gave you a smile. Gave me one reading the replies you 2 posted.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: May 2008 Posts: 219 Platinum Member (200+ posts) | | OP Platinum Member (200+ posts)
Joined: May 2008 Posts: 219 | I had forgotten how to laugh. Good ones ya'll. Angel
SCC left tonsil, tonsillectomy with additional tissue removed 06/10/08, a few teeth on top left side removed 09/05/08,recurrence before treatment started at BOT and tonsil area, 35 IMRT treatments began 10/15/08, and Cisplatin IV (began10/16/08) weekly for duration of radiation.
| | | | | Joined: Nov 2005 Posts: 1,128 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Nov 2005 Posts: 1,128 | I believe it's safer to swallow with head level or tilted forward because tilting back tends to disrupt the epiglottis' seal over the trachea, potentially allowing aspiration of liquids and/or solids (which leads to pneumonia). Forward tilt aids the epiglottis in making a good seal of the windpipe! http://psychology.wikia.com/wiki/SwallowingIf you look at the following animation, you can see that by tilting head back, the larynx flap, just below the epiglottis, may protrude and guide the first part of the food into the trachea.... http://hopkins-gi.org/multimedia/database/intro_250_Swallow.swfWhat I do is sip some water, place or fling the pill(s) to the back, sip some more water, tilt head slightly back to let water flow there, then go level and swallow several times. If I can sense a pill still there, I sip more water and swallow some more.
Age 67 1/2
Ventral Tongue SCC T2N0M0G1 10/05
Anterior Tongue SCC T2N0M0G2 6/08
Base of Tongue SCC T2N0M0G2 12/08
Three partial glossectomy (10/05,11/05,6/08), PEG, 37 XRT 66.6 Gy 1/06
Neck dissection, trach, PEG & forearm free flap (6/08)
Total glossectomy, trach, PEG & thigh free flap (12/08)
On August 21, 2010 at 9:20 am, Pete went off to play with the ratties in the sky.
| | | | | Joined: Sep 2008 Posts: 250 Platinum Member (200+ posts) | | Platinum Member (200+ posts)
Joined: Sep 2008 Posts: 250 | I HAVE to tuck my chin down to swallow, or it WILL go into my trachea/lungs. I'm two years out and have had my throat dilated three times, but this is still an issue with me. Even with my chin tucked, I still have droplets of liquid trickling into my trachea and foods still get stuck there often. It also happens if I get distracted and look to the left or right, even with my chin tucked.
I also have to cut pills up very small and take them with applesauce or ice cream. I know the dryness is part of the problem, but water is to thin to help me.
Lani
SCC part glossectomy 3/06, recur 8/06 glossectomy, floor of mouth, part of jaw removed, RT/chemo thru 10/12/06, PET clear 7/08
"A bend in the road is not the end of the road, unless you fail to make the turn"
Passed away 12/14/08
| | | | | Joined: Nov 2005 Posts: 1,128 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Nov 2005 Posts: 1,128 | Lani, have you tried a pill crusher? You can mix the pills with water or whatever and drink them. However, one shouldn't do that with time-release meds because of overdose potential up front and no meds later. http://www.ocelco.com/products/aids...ent_c385/?src=yahoo&ag=pill+crushers
Age 67 1/2
Ventral Tongue SCC T2N0M0G1 10/05
Anterior Tongue SCC T2N0M0G2 6/08
Base of Tongue SCC T2N0M0G2 12/08
Three partial glossectomy (10/05,11/05,6/08), PEG, 37 XRT 66.6 Gy 1/06
Neck dissection, trach, PEG & forearm free flap (6/08)
Total glossectomy, trach, PEG & thigh free flap (12/08)
On August 21, 2010 at 9:20 am, Pete went off to play with the ratties in the sky.
| | | | | Joined: Aug 2008 Posts: 531 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Aug 2008 Posts: 531 | I'm sorry Pete I didn't realize you were serious till later in your post I pictured Jim doing this with oil cans... sorry but I just had to laugh....
Dianne..treatment at cc at Victoria Hospital, London, Ontario...insulin dependant, Surgery Sept 8/08 Tracheotomy,composite resection and bilateral neck dissection, left radial forearm free flap... T2N0 squamous cell carcinoma. No radiation A little over 2 yrs clear YAY
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