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#83929 11-10-2008 09:52 PM
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Okay, has anyone heard of radiation recall? Is it only caused by chemo? The reason I'm asking is, I started a medication this weekend to raise my blood pressure and I had what I think is an allerigic reaction but the more I research it, the more I'm not totally convinced. Basically, the lower half of my face, and my neck and the top of my chest - the radiated areas - are bright red and itchy, a little swollen, and they are really tender to the touch. I did not know if radiation recall could be caused by other medications or if I really was just allergic to the meds. I stopped taking the meds and talked to my endocrinologist today and then I was just googling stuff tonight because I thought it was weird that the reaction was only in the radiated area. Any input would be greatly appreciated.


Stephanie, 23, SCC on the right side of my tongue, surgery on 5-19-08, over half my tongue removed, free flap constructed from my forearm, bilateral neck dissection, one positive node. Radiation (32) and chemo (carboplatin) started on 6-16-08. Recurrence 4/09 in lungs.

**** Stephanie passed away 12.15.09.... RIP our dear friend****


sobradley #83931 11-10-2008 10:37 PM
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Stephanie, This is exactly what happened to me. My neck has broken out all the way around and it goes a little down my back and a little down on the front of chest are but not far down, as well as a few places on my lower face on sides. If you hear any other information on that please let me know. Congrats on being on the healing part and I wish you well. Thanks a lot, Angel


SCC left tonsil, tonsillectomy with additional tissue removed 06/10/08, a few teeth on top left side removed 09/05/08,recurrence before treatment started at BOT and tonsil area, 35 IMRT treatments began 10/15/08, and Cisplatin IV (began10/16/08) weekly for duration of radiation.
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hmmm, when i had a similar reaction to a medicine, went to emergency and they had me take benedryl. since it is over the counter and mild, you could ask if safe to take after tx and then try taking it - if it helps then you would know it was an allergic reaction??? or speak to docs and have them figure it out.

Kinda important to know if it is an allergy to the meds because if it is, the first reaction will be mild like this and next time can cause much more severe reaction, so you want to get to the bottom of it. i have had similar with rocephin, which is an antibiotic. i looked like a tomato in the lower face, neck and chest area and the rest of me was fine. ... so do find out hon, it is important...


Rita - Age 44
wife, mother of 4 - ages 3,16,21,24 & grandma to 1
(R upper) Maxillectomy 8/8/08 - UW / Seattle, WA.

===============================

"Those who think by the inch and speak by the yard, should be kicked by the foot."


azcallin #83940 11-11-2008 04:18 AM
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Stephanie,
The RO nurse recommended a cream to me before I began radiation for BC. She had me use it twice a day (but not in the 4 hours before radiation). I had redness and sunburn type reaction from the radiation and small warts on my chest area turned dark but not much skin damage. Some spots were redder and more sensative than others, especially by the sutured area and where the beam was more concentrated.
The cream is Skin Repair by Medline. Walgreen's has it on line.
I asked about using it more often and she said it was OK. She also told me to be very careful not to wash with hot water and to wash the radiated area very gently. I bought baby washcloths and used the smooth side.


SCC stage II Partial mandibulectomy w. neck dissection- July 2005. Renal cancer w. partial nephrectomy-Jan 2004. Breast cancer discovered in routine mammogram. Successful lumpectomy, sentinal nodes clear, RT only-2008 Reconstruction of mandible w fibula free flap-Jan 09. TORS removal of begnin pappiloma from esophagus-2010. Masectomy,rt breast 2013.
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Malka #83943 11-11-2008 05:20 AM
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Rita, I have shown this to 2 Dr.'s and neither one seems concerned, only me, the one that is is itching and spreading. The only new medicine I have taken is Anzemet which is for nausea. I was told to use aloe on it which I have been doing and it has stopped the itching a lot of the time but it hasn't cleared up. Before the aloe I was using the benedryl cream and that seemed to help but it didn't clear it up either, so I will just have to give it a few more days and see if it gets any worse. Thanks, Angel



SCC left tonsil, tonsillectomy with additional tissue removed 06/10/08, a few teeth on top left side removed 09/05/08,recurrence before treatment started at BOT and tonsil area, 35 IMRT treatments began 10/15/08, and Cisplatin IV (began10/16/08) weekly for duration of radiation.
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Stephanie,

The big difference between you and the others who just posted is that their reaction was during the radiation and your's is several months after your radiation was finished and long after the chemo should be in your body. My guess is an allergic reaction to the new meds and it's affecting the radiated skin more because it's still sensitive and in a state of repair.


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
davidcpa #83957 11-11-2008 08:17 AM
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David-

That's what I was thinking. I haven't had chemo or radiation since July so I know it's not that. I just didn't know if other meds could cause a reaction and maybe it's not an allergic reaction but just my body being overly sensitive? I guess I was wonering if this would happen every time I start a new medication. Benadryl hasn't done much to help yet (the reaction started Saturday) I'm still quite red and itchy! I'm not too concerned about it but I definitely look kind of goofy and I don't want to start the new med I'll be taking in place of the one I was taking until this clears up in case the same thing happens again! ARG! I get all the crazy problems!


Stephanie, 23, SCC on the right side of my tongue, surgery on 5-19-08, over half my tongue removed, free flap constructed from my forearm, bilateral neck dissection, one positive node. Radiation (32) and chemo (carboplatin) started on 6-16-08. Recurrence 4/09 in lungs.

**** Stephanie passed away 12.15.09.... RIP our dear friend****


sobradley #83966 11-11-2008 09:34 AM
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Stephanie,

When I was in Aruba I forgot to put sunscreen lotion on my feet and they were horrendously burnt. For the rest of the year I had to take care of them because my feet would dry out and react differently to the sun. Since radiation does burn...do you think that maybe your radiated parts are more sensitive to the environment? In other words, more sensitive to the air, the sun, temperature change..anything different. My RO's team told me to stay away from certain soaps because it will dry out the areas of the skin that were radiated. Hopefully this helps some.


7-16-08 age 37@Dx, T3N0M0 SCC 4.778cm tumor, left side of oral tongue, non smoker, casual drinker, I am the 4th in my family to have H&N cancer
8-13-08 left neck dissection and 40% of tongue removed, submandibular salivary gland & 14 nodes clean, no chemo, IMRTx35
11-4-08 Recovering & feeling better
Ray1971 #83968 11-11-2008 10:35 AM
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One of my RO's told me the radiated skin is normally hyper reactive for about a year and to avoid other than moderate sun exposure among other things for the first year. She also told me not to use lotions containing sunblock for at least two months.

She was not explicit about the other things, but lotions, chemicals and medications seem possible.


Don
TXN2bM0 Stage IVa SCC-Occult Primary
FNA 6/6/08-SCC in node<2cm
PET/CT 6/19/08-SCC in 2nd node<1cm
HiRes CT 6/21/08
Exploratory,Tonsillectomy(benign),Right SND 6/23/08
PEG 7/3/08-11/6/08
35 TomoTherapy 7/16/08-9/04/08 No Chemo
Clear PET/CT 11/15/08, 5/15/09, 5/28/10, 7/8/11

DonB #83986 11-11-2008 04:09 PM
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I know it's related to the medication (and it was a pill, not a lotion or anything topical) because that was the only thing that changed was that I started taking the medication. I wasn't out in the sun that day, and I've been out in the sun since treatment and didn't react. So, the only cause could be the medication. Basically I was just wondering if I would react this way with all new medications for a little while because of the radiation or if it was really just an allergic reaction. I'm not too worried about it though because this afternoon the redness started going away. I'll start a new medication on Thursday so we will see what happens!


Stephanie, 23, SCC on the right side of my tongue, surgery on 5-19-08, over half my tongue removed, free flap constructed from my forearm, bilateral neck dissection, one positive node. Radiation (32) and chemo (carboplatin) started on 6-16-08. Recurrence 4/09 in lungs.

**** Stephanie passed away 12.15.09.... RIP our dear friend****


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