#8388 10-02-2006 03:03 AM | Joined: Apr 2006 Posts: 36 Contributing Member (25+ posts) |  Contributing Member (25+ posts)
Joined: Apr 2006 Posts: 36 | Bonnie, I had some fairly extensive surgery in Decenber. 37 nodes, part of jaw, 3 teeth, gum and cheek liner all removed from a "small" spot of Squamous Cell Carcinoma. I got all the worst cases scenarios from the doctors at M.D. Anderson. All said and done, I now do speeches on giving up smokeless tobacco. The right side of my bottom lip is "dead", no muscle control. The numbness in tongue is gone (found this out hard way by biting on it). None of this has affected my ability to lead a normal life.
I did end up getting 2 opinions on mine. First from an oral surgeon, then I went to the cancer experts at M.D.
Whatever you decide, please know I wish y'all the best. God bless and take care.
Curtis
The Outdoor Texan
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#8389 10-03-2006 05:43 PM | Joined: Aug 2003 Posts: 1,627 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Aug 2003 Posts: 1,627 | I had the same experience as Joanna. I went to the first doctor and when he walked in the door I simply KNEW he was my choice. I didn't get a second opinion. Didn't feel I needed it.
SCC Left Mandible. Jaw replaced with bone from leg. Neck disection, 37 radiation treatments. Recurrence 8-28-07, stage 2, tongue. One third of tongue removed 10-4-07. 5-23-08 chemo started for tumor behind swallowing passage, Our good friend and much loved OCF member Minnie has been lost to the disease (RIP 10-29-08). We will all miss her greatly.
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#8390 01-21-2007 06:53 AM | Joined: Jan 2007 Posts: 346 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Jan 2007 Posts: 346 | I also have a 'small" squamous cell carcinoma of cheek but it seems like they are going to take everything they can out. Jaw and all. What is it like to breathe with a trach-what if you have to cough? Does everyone usuaulyy get one? Scared of all procedures but I just have never been around medicine and am a whimp,.
Partial mandibulectomy and neck dissection 2/3/07. T2NOMO.
Had 14 hour operation which included reconstruction of jaw.
Reconstruction failed. Some radiation, no chemo.
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#8391 01-21-2007 04:07 PM | Joined: Sep 2006 Posts: 49 Contributing Member (25+ posts) | | OP Contributing Member (25+ posts)
Joined: Sep 2006 Posts: 49 | Dear Peace,
Fortunately my daughter did not have to have that radical of a surgery - she only lost 1/4 of her tongue & did not have a trach. She did have a nasogastric tube for almost 2 weeks which drove her absolutely crazy!.
Best of luck for your upcoming surgery - you'll be in our prayers.
Bonnie | | |
#8392 01-21-2007 06:45 PM | Joined: Apr 2006 Posts: 794 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Apr 2006 Posts: 794 | Dear Peace....I know I have asked you before, but I can't find your answer: Is your upper or lower jaw involved? I have had a maxillectomy (upper jaw removal) and I have made several acquaintances on this board with similar surgery. There are also several on this board who have had mandibulectomies.....lower jaw removal. We all seem to be doing well. Why not post again in a separate topic, so that we can respond to you personally?
Colleen--T-2N0M0 SCC dx'd 12/28/05...Hemi-maxillectomy, partial palatectomy, neck dissection 1/4/06....clear margins, neg. nodes....no radiation, no chemo....Cancer-free at 4 years!
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#8393 01-22-2007 01:26 PM | Joined: Apr 2005 Posts: 2,676 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Apr 2005 Posts: 2,676 | Dear Peace, my husband had a temporary trach- for about a month. It was scary to think about, but not that scary to deal with. Please let us know whether your is going to be temporary ? Amy
CGtoJohn:SCC Flr of Mouth.Dx 3\05. Surg.4\05.T3NOMO.IMRTx30. Recur Dx 1\06.Surg 2\06. Chemo: 4 Cycles of Carbo\Taxol:on Erbitux for 7 mo. Lost our battle 2-23-07- But not the will to fight this disease
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#8394 01-22-2007 02:14 PM | Joined: Jan 2007 Posts: 346 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Jan 2007 Posts: 346 | Thanks to you all-They tell me they are going to remove the entire jawbone. I don't know what that is called. They have not even looked at my ct scan yet, i have that in the morning. What do you think? Still, what if you have to cough and stuff? Thanks to you all
Partial mandibulectomy and neck dissection 2/3/07. T2NOMO.
Had 14 hour operation which included reconstruction of jaw.
Reconstruction failed. Some radiation, no chemo.
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