| | Joined: Sep 2008 Posts: 489 Platinum Member (300+ posts) |  Platinum Member (300+ posts)
Joined: Sep 2008 Posts: 489 | I only hope that someday the PEG will be removed. Today I was able to swallow normal pudding (as opposed to thinned down pudding) at therapy. When I got home I made a Carnation and banana in the blender and drank all 8 oz and I just made a pudding for one and ate all of it. I have been trying creamed soups, but they taste salty to me. This is strange since the 20% of the tongue that I have is way in the back. Maybe I am tasting bitter. I still have a lot of trouble with residual and how to get rid of it. Sometimes a drink of milk will help, but mostly I end up having to "wash" my mouth.
Today I wondered how a custard filled donut with chocolate icing would fare in the blender. There are so many things that I want that do not seem like they would be good in semi-liquid form.
I am only 5 1/2 weeks post surgery so I feel that I should be happy with the progess that I am making. I am not the most patient person. I am very encouraged by the fact that others have returned to whole foods and are not dependent on the PEG anymore. It gives me hope.
48
SCC Floor of Mouth 7/06
9/06 Surgery, bilateral neck dissection, 58 nodes clear PT2pN0pMx
35 rad 2006
Recurred 6/08, 1 Carboplatin, 1 Cisplatin
Surgery 9/08 - Total glossectomy, free flap from pectoral muscle, left mandible replaced using fibula
35 IMRT & Erbitux 11/08
4/15/09 recurrence
6/1/09 passed away, rest in peace
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Pete,
Just because stores have put out Christmas stuff and are playing Christmas music (yes I heard my first carol yesterday) doesn't mean it's Eggnog Season!!
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: May 2008 Posts: 551 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: May 2008 Posts: 551 | David,
Starbucks is already selling their Christmas, uh, I mean, Holiday (!), lattes...
Stage IV SCC lt lateral tongue, surgery 5/19/08 (partial gloss/upper neck dissection left side/radial free flap reconstruction) IMRT w/weekly Cisplatin & Erbitux 6/30/08, PEG 1 6/12/08 - out 7/14 (in abdominal wall, not stomach), PEG 2 7/23/08 - out 11/20/08, Tx done 8/18/08
Second SCC tumor, Stage 1, rt mobile tongue, removed 10/18/2016, right neck dissection 12/9/2016
Third SCC tumor, diagnosed, 4/19/2108, rt submandibular mass, HPV-, IMRT w/ weekly Cisplatin, 5/9 - 6/25/2018, PEG 3 5/31/2018
| | | | | Joined: Nov 2005 Posts: 1,128 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Nov 2005 Posts: 1,128 | When they start selling Eggnog in the stores (My local Safeway started a couple of weeks ago) then it IS Eggnog season! The containers have a snowman on them but we haven't seen any of that here except on the mountain peaks.
Age 67 1/2
Ventral Tongue SCC T2N0M0G1 10/05
Anterior Tongue SCC T2N0M0G2 6/08
Base of Tongue SCC T2N0M0G2 12/08
Three partial glossectomy (10/05,11/05,6/08), PEG, 37 XRT 66.6 Gy 1/06
Neck dissection, trach, PEG & forearm free flap (6/08)
Total glossectomy, trach, PEG & thigh free flap (12/08)
On August 21, 2010 at 9:20 am, Pete went off to play with the ratties in the sky.
| | | | | Joined: Jun 2008 Posts: 309 Platinum Member (300+ posts) | | OP Platinum Member (300+ posts)
Joined: Jun 2008 Posts: 309 | LOL ... one of the radio stations here played Christmas Music all day on Halloween ... was so strange feelign hearing it so soon but kinda get into it after a while if you let yourself  I LOVE Christmas! My favorite day of the year, eventhough I do not like winter weather in WA
Rita - Age 44
wife, mother of 4 - ages 3,16,21,24 & grandma to 1
(R upper) Maxillectomy 8/8/08 - UW / Seattle, WA.
===============================
"Those who think by the inch and speak by the yard, should be kicked by the foot."
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | I heard Christmas music in Home Depot today. Unbelievable but I guess retail stores are desperate to pump up sales. It's always hard to get into the Christmas spirit here in Central Florida but trying to be sold on it the first week of November is down right ridiculous. What happened to Thanksgiving? Was it canceled this year?
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Jul 2008 Posts: 228 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Jul 2008 Posts: 228 | Walmart has been playing Christmas music for quite some time now in their Christmas shop area. I asked the lady at the check out back there if she was sick of hearing it yet, and she said she blocked it out a long time ago. I try to wait until after Thanksgiving before even looking at Christmas stuff. That way I don't get tired of it before Christmas even gets here! And, it's hard to be in a Christmas-y mood when it's in the 80s outside!!!
Stephanie, 23, SCC on the right side of my tongue, surgery on 5-19-08, over half my tongue removed, free flap constructed from my forearm, bilateral neck dissection, one positive node. Radiation (32) and chemo (carboplatin) started on 6-16-08. Recurrence 4/09 in lungs.
**** Stephanie passed away 12.15.09.... RIP our dear friend****
| | | | | Joined: Sep 2008 Posts: 250 Platinum Member (200+ posts) | | Platinum Member (200+ posts)
Joined: Sep 2008 Posts: 250 | Actually, I started my Christmas shopping today - on line. And I've been having a great time.
It's a new thing (vice?) I've picked up since OC and having been home-bound for so long post treatment, and so attached to this computer. I just love to shop on-line catalogue sites. Order one thing from just one of them and the catalogues start coming in the mail from lots more. I glance through them and before you know it I'm on their site putting things in wish lists and shopping carts. I get all my Christmas shopping done this way and never have to leave the house! I've always avoided crowded malls and Walmarts whenever possible anyway and it always took so long to find just the "right" gift. This isn't just easy, it's fun.
Lani
SCC part glossectomy 3/06, recur 8/06 glossectomy, floor of mouth, part of jaw removed, RT/chemo thru 10/12/06, PET clear 7/08
"A bend in the road is not the end of the road, unless you fail to make the turn"
Passed away 12/14/08
| | | | | Joined: Aug 2008 Posts: 531 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Aug 2008 Posts: 531 | Well it takes a long time to get in the christmas spirit when you live with GRINCH!!!! Not gonna steel it from me this year!!!!lol I am gonna have it my way....I am having christmas dinner at burger king
Dianne..treatment at cc at Victoria Hospital, London, Ontario...insulin dependant, Surgery Sept 8/08 Tracheotomy,composite resection and bilateral neck dissection, left radial forearm free flap... T2N0 squamous cell carcinoma. No radiation A little over 2 yrs clear YAY
| | | | | Joined: Sep 2008 Posts: 250 Platinum Member (200+ posts) | | Platinum Member (200+ posts)
Joined: Sep 2008 Posts: 250 | I just ignore my Grinch. He doesn't notice anyway. I'm already looking forward to decorating the outside of the house and yard. I do love Christmas!
SCC part glossectomy 3/06, recur 8/06 glossectomy, floor of mouth, part of jaw removed, RT/chemo thru 10/12/06, PET clear 7/08
"A bend in the road is not the end of the road, unless you fail to make the turn"
Passed away 12/14/08
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