| Joined: Aug 2007 Posts: 1,301 "OCF Down Under" Patient Advocate (1000+ posts) | "OCF Down Under" Patient Advocate (1000+ posts) Joined: Aug 2007 Posts: 1,301 | A Welcome to OCF from me as well. I have only ever had biopsies from my first visit to oral surgeon in 2006 to now. (No CT/PET.) I remember having to wait for at least a week before I got the result. Phone call while I was at work  Hope your results brings only good news. Good luck. Cheers Gabriele
History Leukoplakia bx 8/2006 SCC floor mouth T3N0M0- Verrucous Carcinoma. 14 hour 0p SCC-Right ND/excision/marginal mandibulectomy 9/2006, 4 teeth removed, flap from wrist, trach-ng 6 days- no chemo/rad. 6 ops and debulking (flap/tongue join) + bx's 2006-2012. bx Jan 2012 Hyperkeratosis-Epithelial Dysplasia 24cm GIST tumour removed 8/2013. Indefinite Oral Chemo.
1/31/16 passed away peacefully surrounded by family
| | | | Joined: May 2008 Posts: 551 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: May 2008 Posts: 551 | Like others here, I'm not a doctor or medical professional, but I am a very experienced cancer patient... the thing is, the CT scan machine can't diagnose anything! All it can show is where any tissue abnormalities are but it cannot show any more than that. As others have said, the only definitive way to diagnose cancer is for a pathologist to look at cells under a microscope.
My pathology results took a week after my biopsy.
- Margaret
Stage IV SCC lt lateral tongue, surgery 5/19/08 (partial gloss/upper neck dissection left side/radial free flap reconstruction) IMRT w/weekly Cisplatin & Erbitux 6/30/08, PEG 1 6/12/08 - out 7/14 (in abdominal wall, not stomach), PEG 2 7/23/08 - out 11/20/08, Tx done 8/18/08 Second SCC tumor, Stage 1, rt mobile tongue, removed 10/18/2016, right neck dissection 12/9/2016 Third SCC tumor, diagnosed, 4/19/2108, rt submandibular mass, HPV-, IMRT w/ weekly Cisplatin, 5/9 - 6/25/2018, PEG 3 5/31/2018
| | | | Joined: Jul 2008 Posts: 507 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Jul 2008 Posts: 507 | My symptom was a swollen lymph node, so I had a biopsy the same day I first saw the ENT. It took about a week for the results to come back and then in short order he schedule a CT, followed by a PET/CT, then surgery
Regarding your local CoC Cancer Center's light caseload for oropharynx cancer, you should be able to add Tonsil cases since they group these separately. Some of the tongue cases are probably Base-of-Tongue which is also the oropharynx region. I would also recommend you ask since just one case makes me uncomfortable.
For reference the CoC Comprehensive Cancer Center I went to has capacity for 60 H&N cases a year at the Center and another 40 (using standard IMRT) at their hospital based satellite centers.
Several of the NCI Centers report a H&N caseload two to three times that amount.
Don TXN2bM0 Stage IVa SCC-Occult Primary FNA 6/6/08-SCC in node<2cm PET/CT 6/19/08-SCC in 2nd node<1cm HiRes CT 6/21/08 Exploratory,Tonsillectomy(benign),Right SND 6/23/08 PEG 7/3/08-11/6/08 35 TomoTherapy 7/16/08-9/04/08 No Chemo Clear PET/CT 11/15/08, 5/15/09, 5/28/10, 7/8/11
| | | | Joined: Oct 2008 Posts: 9 Member | OP Member Joined: Oct 2008 Posts: 9 | I think with the symptoms I had and with the first CT scan that did show swollen lymph nods, they could've saved me sometime and did the biopsy much earlier. The first visit to the ENT after the first scan, I was seen by his assistant, she looked through the endoscopy and she said that there is some fullness at the base of the tongue repeating waht the first CT scan report indecated and she said that the whole area was irritaed and gave antibiotics and told me to this could be related to Acide reflux as well and asked to repeate the scan after 4 weeks. so if I think the ENT DR not his assistant saw me that day he could've orderd the Biopsy much earlier at least 3 weeks earlier. so I'm not sure if that assistant missed seeing the Mass or there was no mass at that time and now I wonder couldit be possible that the mass got larger that fast that became 2.5x2 cm? | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | Senior Patient Advocate Patient Advocate (old timer, 2000 posts) Joined: Sep 2006 Posts: 8,311 | Don't know the actual comparison numbers but Primaries (cancer starting point) involving the Tonsils and Base of Tongue, the Oropharynx region, are not that uncommon and more often than not test positive for HPV, especially if tobacco use is not in the patients history. But again you need to get the biopsy to confirm cancer in the first place.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | Joined: Mar 2008 Posts: 3,082 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Mar 2008 Posts: 3,082 | My ENT gave my wife the her interpretation of the biopsy right afterwards while I was still unconscious in the recovery room as Cancer tumor. Stage IV etc. That was based on her experience and the CT scan. The formal pathology reports confirming cancer came in later next week. Good luck. For what it is worth, it took a year for my cancer to get diagnosed after antibiotics, sinus, eardrops, etc. 65 yr Old Frack Stage IV BOT T3N2M0 HPV 16+ 2007:72GY IMRT(40) 8 ERBITUX No PEG 2008:CANCER BACK Salvage Surgery 25GY-CyberKnife(5) 3 Carboplatin Apaghia /G button 2012: CANCER BACK -left tonsilar fossa 40GY-CyberKnife(5) 3 Carboplatin Passed away 4-29-13
| | | | Joined: Jun 2008 Posts: 309 Platinum Member (300+ posts) | Platinum Member (300+ posts) Joined: Jun 2008 Posts: 309 | ct is open to interpretation by the one reading it, thus one of the reasons a biopsy is so important and reported as the only sure tell way of knowing. a mass showing on a scan can be from multiple factors. the cancer theory may be correct but never accept that diagnosis until you have to (ie: have it confirmed by biopsy). Best wishes and keep us posted 
Rita - Age 44 wife, mother of 4 - ages 3,16,21,24 & grandma to 1 (R upper) Maxillectomy 8/8/08 - UW / Seattle, WA.
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"Those who think by the inch and speak by the yard, should be kicked by the foot."
| | | | Joined: Oct 2008 Posts: 9 Member | OP Member Joined: Oct 2008 Posts: 9 | Had the biopsy this morning, for some reason did not freeze it and will not know the result until my next appoitement in 2 weeks. so basicly I have another 2 weeks to wait.
Shouldnt they looked at it under the microscope today? why did nt they do that?
| | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 5,260 | I must have been lucky, Surgeon confirmed what I had thought, and within a week, it was confirmed and I was moving like I was just shot out of a cannon. Just had a 3rd CtScan in less than 3 weeks today. This has me wondering what is going on in this stomach to cause so much pain and a nice size lump that seems to be causing it.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April. --- Passed away 5/14/14, will be greatly missed by everyone here
| | | | Joined: Jun 2008 Posts: 309 Platinum Member (300+ posts) | Platinum Member (300+ posts) Joined: Jun 2008 Posts: 309 | maherC they most likely send it to the lab rather than having someone on site to look at it... and even when they took samplings at time of my surgery it took about 10 days to get report back and that lab was in the same hospital ... i know it is hard to wait - the unknown is the hardest part but hang in there and keep your mind busy on other things as much as possible so time passes faster. fingers crossed for good report!
Rita - Age 44 wife, mother of 4 - ages 3,16,21,24 & grandma to 1 (R upper) Maxillectomy 8/8/08 - UW / Seattle, WA.
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"Those who think by the inch and speak by the yard, should be kicked by the foot."
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