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Pete D #83234 10-30-2008 03:10 PM
Joined: Aug 2008
Posts: 531
"Above & Beyond" Member (500+ posts)
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"Above & Beyond" Member (500+ posts)

Joined: Aug 2008
Posts: 531
Pete...

Thanks I think part of my problem is yes one tension and another is the fact that I am a side sleeper just love curling up it is comforting unfortunately since this surgery I have to sleep on my back proped up cause when I sleep on my side it hurts my face and I wake up extremely swollen and sore...Meditation works but I find I have to have quiet to do this and last night I got a chance to try it and actually slept...I took some graval too helped to make me sleepy...

I am amazed at the number of people who have had trouble sleep post surgery I understand pre surgery cause of anxieties and such.


Dianne..treatment at cc at Victoria Hospital, London, Ontario...insulin dependant, Surgery Sept 8/08 Tracheotomy,composite resection and bilateral neck dissection, left radial forearm free flap... T2N0 squamous cell carcinoma. No radiation A little over 2 yrs clear YAY
Joined: Nov 2005
Posts: 1,128
Patient Advocate (1000+ posts)
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Patient Advocate (1000+ posts)

Joined: Nov 2005
Posts: 1,128
Early post-surgery, I was having trouble getting to sleep, but once there, I was sleeping 10-12-14 hours -- Sleep is curative!


Age 67 1/2
Ventral Tongue SCC T2N0M0G1 10/05
Anterior Tongue SCC T2N0M0G2 6/08
Base of Tongue SCC T2N0M0G2 12/08
Three partial glossectomy (10/05,11/05,6/08), PEG, 37 XRT 66.6 Gy 1/06
Neck dissection, trach, PEG & forearm free flap (6/08)
Total glossectomy, trach, PEG & thigh free flap (12/08)
On August 21, 2010 at 9:20 am, Pete went off to play with the ratties in the sky.
Pete D #83287 10-31-2008 05:41 PM
Joined: Jun 2007
Posts: 5,260
Patient Advocate (old timer, 2000 posts)
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Patient Advocate (old timer, 2000 posts)

Joined: Jun 2007
Posts: 5,260
I get about an hour at a time. I sleep in the fetal position too darkeyes. I still wake up with my throat hurting from the center to the left side. Adams apple feels like someone is peeling it. LOL I will take you on that guided tour where ever and whenever you feel brave .


Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
EzJim #83315 11-01-2008 01:01 AM
Joined: Aug 2008
Posts: 531
"Above & Beyond" Member (500+ posts)
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"Above & Beyond" Member (500+ posts)

Joined: Aug 2008
Posts: 531
For all u nite hawks again and still champion...I am still awake and I seriously not impressed... GRRRRR.... I think I am contacting whatever doctor I have to on Monday...I have no idea how people go with little or no sleep...I guess that's why there are forums like this...Can I say thank you enough...I doubt it


Dianne..treatment at cc at Victoria Hospital, London, Ontario...insulin dependant, Surgery Sept 8/08 Tracheotomy,composite resection and bilateral neck dissection, left radial forearm free flap... T2N0 squamous cell carcinoma. No radiation A little over 2 yrs clear YAY
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