| Joined: Feb 2007 Posts: 1,940 "OCF across the pond" Patient Advocate (1000+ posts) | "OCF across the pond" Patient Advocate (1000+ posts) Joined: Feb 2007 Posts: 1,940 | Every once in a while someone enters your life and touches it with their simple and straightforward love and optimism.Minnie was such a person. she never gave up hope,and castigated those of us slipping into despair with her kindness and wisdom.The love she held for her family shone through every word she spoke.She accepted every curve ball this disease threw at her with fortitude and always saw the positives.An example to all who shared the journey with her,and will follow after her.
Rest in peace minnie,and say hi to robin for me.
love always
liz
Liz in the UK
Husband Robin aged 44 years Dx 8th Dec 2006 poorly differentiated SCC tongue with met to neck T1N2cM0 Surgery and Radiation.Finished TX April 2007 Recurrence June/07 died July 29th/07.
Never take your eye off the ball, it may just smack you in the mouth.
| | | | Joined: Jan 2008 Posts: 706 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Jan 2008 Posts: 706 | Amy- Your wonderful Mom was such a caring person. She never hesitated to respond to a new member. In a club noone wants to be in she welcomed you and made you feel understood and hopeful. Her pride in her family was evident as well and she shared her good times as well as the bad. She will be sorely missed.
Sue
cg to husband, 48 Stage 1V head and neck SCC. First surgery 9/07. Radiation and several rounds of chemo followed. Mets to chest and lungs. "Life isn't about waiting for the storm to pass, it's about learning to dance in the rain." Went home to God on February 22, 2009.
| | | | Joined: Nov 2007 Posts: 681 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Nov 2007 Posts: 681 | Amy, For Minnie "Why me?" was not complaining but introspective. She accepted the uncertainty, afflictions and discomforts of this horrid invasion with grace and wisdom. Her words from the heart, always pure and filled with love of her family, will continue to help and inspire others. Her posts will be there in probably every topic searched on the forum, informing and inspiring the frightened and inquiring who share our fate. Minnie's passsing was a reflction of a life filled with love her of family. In our prayers, we were there with you and send our appreciation for all that she contributed to this forum. For the past few months we have missed hearing from her as you know from the many inquiries. Her special spirit was reflected in the updates you posted and we thank you for staying in touch.
SCC stage II Partial mandibulectomy w. neck dissection- July 2005. Renal cancer w. partial nephrectomy-Jan 2004. Breast cancer discovered in routine mammogram. Successful lumpectomy, sentinal nodes clear, RT only-2008 Reconstruction of mandible w fibula free flap-Jan 09. TORS removal of begnin pappiloma from esophagus-2010. Masectomy,rt breast 2013. Support OCF
| | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | Senior Patient Advocate Patient Advocate (old timer, 2000 posts) Joined: Sep 2006 Posts: 8,311 | Amy,
I remember to this day how much a PM she sent me when I first joined this site affected me. She basically said what we all say, "everything will be OK" but she was the first to go out of her way and PM me which made me feel welcomed and almost safe since it was coming from someone who had been around for a while.
I am so sorry and this is a reminder of how horrible this cancer is. To us that shared posts with her she will never be forgotten.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | Joined: Jul 2006 Posts: 446 "OCF Canuck" Platinum Member (300+ posts) | "OCF Canuck" Platinum Member (300+ posts) Joined: Jul 2006 Posts: 446 | Amy and the family,
The world's glow is a little dimmer today from your Mom's passing. Throughout my journey with the beast, I often found inspiration, hope and optimism in your Mom's upbeat, pragmatic and realistic outlook on this disease. I can't begin to tell you how saddened I was to hear of her recurrence, and the news of her passing has left an empty place in my heart and those of the many, many friends she has made here at OCF.
I wish you and your family peace and healing from your huge loss. Your memories will be many, and I pray you will cherish them always as a testament of your Mother's strength of character and compassion. She will be deeply missed Wayne
SCC left mandible TIVN0M0 40% of jaw removed, rebuilt using fibula, titanium and tissue from forearm.June 06. 30 IMRT Aug.-Oct. 06
| | | | Joined: May 2007 Posts: 104 Senior Member (100+ posts) | Senior Member (100+ posts) Joined: May 2007 Posts: 104 | Heartfelt sympathy to you and your family. Minnie was always someone I would look for on the boards to read.....she always spoke from her heart and with such courage, and inner faith and strength. May she be at peace now from the evil Oral Cancer. She is still with you.....God Bless. Linda
Jordan's Mom. Linda She fought the fight with courage, hope and dedication. Ten months of battling tongue cancer. They thought they had it after each treatment. Not to be. Christa died at 32 y/o in Nov. '07.
| | | | Joined: Feb 2004 Posts: 598 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Feb 2004 Posts: 598 | Amy -- Your mom was one of those rare people who could rise above the slings and arrows of outrageous fortune to which she had been subjected. She developed a wisdom and insight that comes only from such transcendent experiences, and shared those freely with compassion and genuine understanding. She was a constant source of support and reassurance for me, and her passing will be truly mourned by all whose lives she touched. My deepest condolences for your loss. Jeff SCC Right BOT Dx 3/28/2007 T2N2a M0G1,Stage IVa Bilateral Neck Dissection 4/11/2007 39 x IMRT, 8 x Cisplatin Ended 7/11/07 Complete response to treatment so far!!
| | | | Joined: Apr 2006 Posts: 794 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Apr 2006 Posts: 794 | Dear Amy....and the rest of your family....I can only add my agreement to what others have said, that your mom was one of the most generous, HONEST, and positive persons I've met on this board.....or ever, for that matter. She never failed to answer my emails (except for one time when you, Amy, answered for her..You are obviously just as thoughtful as your mother!) My chief memory of your mom is that in the midst of her trials, she remained positive, accepted her fate, and didn't lose her faith. Her chief concern was not for herself, but for how her illness and her ultimate death would affect you girls. Her thoughts were never for herself, but for others, primarily her precious girls. I can't imagine your family without her, but having watched her courageous battle, I know that you wouldn't want her to suffer any more, and I am certain that you have learned from her how to be strong, loving and faith-filled. Take good care of each other now, and your dad. You will all need each other, but I know that she taught you how to do that, and if you look, you will see her in each of you always.
XO--Colleen
Colleen--T-2N0M0 SCC dx'd 12/28/05...Hemi-maxillectomy, partial palatectomy, neck dissection 1/4/06....clear margins, neg. nodes....no radiation, no chemo....Cancer-free at 4 years!
| | | | Joined: Mar 2007 Posts: 163 Senior Member (100+ posts) | Senior Member (100+ posts) Joined: Mar 2007 Posts: 163 | Dear Amy and Family.... We are all little poorer today for the loss of this fabulous lady and a little richer for having known her at all. My Favourite memory is of when she shared with us the clip of her grand daughter singing a song fron Little mermaid... she loved you all so much. I am so sorry. Marica
Caregiver to husband (Pete) Stage IV Base of Tongue. Dx 04 2003 Chemo/Radiation no surgery.. doing great!
| | | | Joined: Jun 2008 Posts: 475 Platinum Member (300+ posts) | Platinum Member (300+ posts) Joined: Jun 2008 Posts: 475 | Amy,
Even though I never "spoke" with your mom on these boards, I read her messages since I registered. She was an inspiration and was amazed how much she was loved and respected by everyone at OCF. I want to express my sincere sympathies to you and your family. Knowing how much she has helped people with her caring and thoughtful words should comfort you.
Susan
Susan Lauria - OCF Director of Events - Always looking for volunteers to help spread the word about early detection! Contact me if you can help!
*Brother passed away from tongue cancer in 2006 at age 47, was co-caregiver, he was non-smoker/casual drinker
LETS MAKE ORAL CANCER HISTORY!
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