#83196 10-29-2008 07:51 PM | Joined: Aug 2007 Posts: 42 Contributing Member (25+ posts) | OP  Contributing Member (25+ posts)
Joined: Aug 2007 Posts: 42 | Hi everyone,
At around 4pm today mom passed away. She had been sleeping most of the day but woke up with all of us girls, our dad, her mom and her brother in the room and said "you're all here." She talked for a little while and then just passed instantly. There was no pain or fear, she was just ready.
Now I have a favor to ask of all of you who knew a side of her that not many did. Mom asked each of us girls to say something at her memorial. Instead of a personal memory I would like to share with our friends and family the things she did on this board. If anyone can write something or even everyone contribute something for me to share I would really appreciate it. You guys were such a strength to her even in the end.
With love from our entire family,
Amy
Lost my mother, Minnie, to Oral Cancer October 29th, 2008. I am so thankful she had the OCF to help her through her five year struggle.
| | | | | Joined: May 2007 Posts: 666 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: May 2007 Posts: 666 | So sorry,
I am sure you will get a host of shared memories from the members here.
Markus
Partial glossectomy (25%) anterior tongue. 4/6/07/. IMRT start @5/24/07 (3x) Erbitux start/end@ 5/24/07. IMRT wider field (30x) start 6/5/07. Weekly cisplatin (2x30mg/m2), then weekly carbo- (5x180mg/m2). End of Tx 19 July 07.
| | | | | Joined: Jun 2007 Posts: 221 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Jun 2007 Posts: 221 | Amy,
Please know that I am thinking of you and your family and keeping you close in my prayers.
With love and my deepest sympathy,
Joy
CG to Father, 75 yo with SCC of the mouth; upper maxillectomy and neck diss. performed on 5/23/07. Father also suffered heart attack during surgery and now has CHF. RT complete on 8/28/07. Cancer back 11/27/07. RT and Chemo to start on 12/17. Cancer back 6/17/08. Finally at rest 08/08/08.
| | | | | Joined: Jan 2006 Posts: 756 Likes: 1 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jan 2006 Posts: 756 Likes: 1 | Amy,
I'm new to the OCF board, and didn't "know" your mother. But I read so many messages regarding her that made me realize that she was a very special and caring women. Please accept my deepest sympathy.
Susan
SCC R-Lateral tongue, T1N0M0
Age 47 at Dx, non-smoker, casual drinker, HPV-
Surgery: June 2005
RT: Feb-Apr 2006
HBOT: 45 in 2008; 30 in 2013; 30 in 2022 -> Total 105!
Recurrence/Surgeries: Jan & Apr 2010
Biopsy 2/2011: Moderate dysplasia
Surgery 4/2011: Mild dysplasia
Dental issues: 2013-2022 (ORN)
| | | | | Joined: Sep 2008 Posts: 250 Platinum Member (200+ posts) | | Platinum Member (200+ posts)
Joined: Sep 2008 Posts: 250 | Amy,
I'm so sorry. I only joined this site a month ago, so I never "knew" her, but I do know that she was loved by many here, as seen in the many posts about her over the last few weeks. She will be missed.
Lani
SCC part glossectomy 3/06, recur 8/06 glossectomy, floor of mouth, part of jaw removed, RT/chemo thru 10/12/06, PET clear 7/08
"A bend in the road is not the end of the road, unless you fail to make the turn"
Passed away 12/14/08
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 |
Amy
I am so very very sorry. Your mother was a wonderful woman who will be missed greatly. I will post something soon to honor her. Right now, its a shock to read this. Im very sorry for your loss.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | | | | Joined: Mar 2002 Posts: 4,918 Likes: 64 OCF Founder Patient Advocate (old timer, 2000 posts) | | OCF Founder Patient Advocate (old timer, 2000 posts)
Joined: Mar 2002 Posts: 4,918 Likes: 64 | I am crushed by the loss of your mom. She was the FIRST to want to do something to support OCF from the board. She and all of your family organized he first OCF walk event and more. She was universally loved by everyone here, and gave back to others around her so readily, with an open, compassionate manner and heart. She was a sweet soul, and friend to many. Her posts here will continue to help people for many years to come since they contained so much really good and useful information. I wish you a quick passing of the pain associated with this loss, and a lifetime of remembering the good times.
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
| | | | | Joined: Mar 2005 Posts: 58 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Mar 2005 Posts: 58 | Amy,
My deepest sympathy to you and your family. She was an inspiration to me with her posts. I would often see her on my buddy list for e-mail late at night in your part of the country. She and I shared similuar type of oral cancer and surgery. She was always positive in her posts and encouraging to all. She was extremely proud of her "girls". She loved to share her experiences and fond memories of time spent on the beach with her family. We had planned to meet when I traveled to Virginia, but I haven't gone yet. She was really interested about life "in the West" (Arizona) and I was about life in Virginia. I will miss her. My best to all of you.
Hacklene
Hacklene
| | | | | Joined: Jul 2008 Posts: 56 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Jul 2008 Posts: 56 | Wow. I'm sorry to hear, but happy to know she passed peacefully with everyone by her side. That's very fortunate. I can only hope to pass away under similar circumstances.
She is now in a better place. | | | | | Joined: Sep 2006 Posts: 1,357 Likes: 5 "OCF Canuck" Patient Advocate (1000+ posts) | | "OCF Canuck" Patient Advocate (1000+ posts)
Joined: Sep 2006 Posts: 1,357 Likes: 5 | Amy
I am sitting here just gutted by your news. I didn't see this coming. Your mom was a huge source of strength and inspiration to me. We were both diagnosed with a recurrance at about the same time and I rooted for her every step of the way as I know she did for me and so very many others.
Her love of her family was paramount in her life. She was so very proud of all of you and I know she fought so hard to make everything as normal as possible for all around her.
I wish I had some magic words for your family, and for her OCF family. She will be missed by us all.
Donna
Donna,69, SCC L Tongue T2N1MO Stg IV 4/04 w/partial gloss;32 radtx; T2N2M0 Stg IV; R tongue-2nd partial gloss w/graft 10/07; 30 radtx/2 cispl 2/08. 3rd Oral Cancer surgery 1/22 - Stage 1. 2022 surgery eliminated swallowing and bottom left jaw. Now a “Tubie for Life”.no food envy - Thank God! Surviving isn't easy!!!! .Proudly Canadian - YES, UNIVERSAL HEALTH CARE IS WONDERFUL! (Not perfect but definitely WONDERFUL)
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