#82639 10-23-2008 06:08 AM | Joined: Mar 2008 Posts: 3,082 Patient Advocate (old timer, 2000 posts) | OP Patient Advocate (old timer, 2000 posts) Joined: Mar 2008 Posts: 3,082 | First: I am biased and believe that "alternative" therapies rely upon the human predilection to confuse coincidence with causality. Adjunctive is a different story with accupunture etc, but some of the posts on this board cross that line IMO. To those reading the OCF board for guidance when well meaning friends and relatives tout web sites on miracle cures in Mexico or secret herbal remedies, here is an alternative that is as good or better than a Mexican clinic. Just an opinion, but I worry that even having links to delusional sites on this forum would add some patina of respectability. Seriously, this "llama therapy" felt great to me. llama therapy Bear in mind that I also used a toy ray gun with flashing colored lights to help visualization of killing the cancer cells. Since I am now cancer free, under the fringe web sites, it must be a cure. But trust me, it wasn't: the conventional radiation and chemo did the work.
Last edited by Charm2017; 10-23-2008 06:13 AM. Reason: url glitch
65 yr Old Frack Stage IV BOT T3N2M0 HPV 16+ 2007:72GY IMRT(40) 8 ERBITUX No PEG 2008:CANCER BACK Salvage Surgery 25GY-CyberKnife(5) 3 Carboplatin Apaghia /G button 2012: CANCER BACK -left tonsilar fossa 40GY-CyberKnife(5) 3 Carboplatin Passed away 4-29-13
| | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | Senior Patient Advocate Patient Advocate (old timer, 2000 posts) Joined: Sep 2006 Posts: 8,311 | My wife wants a LLama but then again she wants every non insect, non reptile pet in the world. She (we) have 8 cats, 1 rabbit, 1 BIG puppy and a seasonal mated pair of Florida Mallards.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | Joined: Aug 2008 Posts: 716 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Aug 2008 Posts: 716 | David,
Get an Alpaca, they're smaller then ILama's, plus you can shave and sell the Alpaca hair--I saw it done on that show "Dirty Jobs"...Now we know what your wife did with the insurance money
7-16-08 age 37@Dx, T3N0M0 SCC 4.778cm tumor, left side of oral tongue, non smoker, casual drinker, I am the 4th in my family to have H&N cancer 8-13-08 left neck dissection and 40% of tongue removed, submandibular salivary gland & 14 nodes clean, no chemo, IMRTx35 11-4-08 Recovering & feeling better | | | | Joined: Mar 2008 Posts: 3,082 Patient Advocate (old timer, 2000 posts) | OP Patient Advocate (old timer, 2000 posts) Joined: Mar 2008 Posts: 3,082 | David and Ray
You can also sell the llama hair - as mentioned in the article. The man in the picture showed us a very warm vest he made with a felting technique - no sewing - out of llama hair, boiling water, liquid soap and a hand sander (yes no typo - it agitates the fibers and turns it into felt).
To get back on point: OCF members note: while I have taken a very light hearted approach, this is a serious subject. It was very tempting to believe all the "cures" that co-workers, friends, and relatives sent me. Adjunctive therapy is great, provided you also do the surgery, radiation and chemo. Plus any reasonable adjunctive therapy is offered in the USA. I've been rereading my journal from last year, so that's why I'm suddenly on my high horse about this. 65 yr Old Frack Stage IV BOT T3N2M0 HPV 16+ 2007:72GY IMRT(40) 8 ERBITUX No PEG 2008:CANCER BACK Salvage Surgery 25GY-CyberKnife(5) 3 Carboplatin Apaghia /G button 2012: CANCER BACK -left tonsilar fossa 40GY-CyberKnife(5) 3 Carboplatin Passed away 4-29-13
| | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | Senior Patient Advocate Patient Advocate (old timer, 2000 posts) Joined: Sep 2006 Posts: 8,311 | Rather, on your high Llama.
So I didn't read the whole article but what is the LLama therapy anyway?
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | Joined: Nov 2005 Posts: 1,128 Patient Advocate (1000+ posts) | Patient Advocate (1000+ posts) Joined: Nov 2005 Posts: 1,128 | David, tell your wife that Long-Tailed Norwegian Hamsters make great pets and you can get the little ones at the pet stores from the snake food tanks for peanuts -- They are very intelligent and don't bite! The big drawback is that they only live about two and a half years, so there is some heartbreak involved, but their replacements only cost peanuts.
BTW, some people refer to them as norway rats...
Age 67 1/2 Ventral Tongue SCC T2N0M0G1 10/05 Anterior Tongue SCC T2N0M0G2 6/08 Base of Tongue SCC T2N0M0G2 12/08 Three partial glossectomy (10/05,11/05,6/08), PEG, 37 XRT 66.6 Gy 1/06 Neck dissection, trach, PEG & forearm free flap (6/08) Total glossectomy, trach, PEG & thigh free flap (12/08) On August 21, 2010 at 9:20 am, Pete went off to play with the ratties in the sky.
| | | | Joined: Aug 2008 Posts: 531 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Aug 2008 Posts: 531 | I have a pet some think I am excentric... that would really love one of those rats....lol...I have a ball python...african grass snake...he is a wonderful masseusse...I used to do data imputting and when I got home put him around my neck and voila no more tense muscules...he is very tame even got loose a couple of times and my dogs and cat walked right by him and he did nothing didn't even move.. when he is hungry though I am afraid the rats wouldn't last too long
Dianne..treatment at cc at Victoria Hospital, London, Ontario...insulin dependant, Surgery Sept 8/08 Tracheotomy,composite resection and bilateral neck dissection, left radial forearm free flap... T2N0 squamous cell carcinoma. No radiation A little over 2 yrs clear YAY
| | | | Joined: Aug 2008 Posts: 716 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Aug 2008 Posts: 716 | When I'm done with my traditional treatments I'm going to ride an Llama with a boa around my neck...I don't think Llama's are big enough to ride. I might have to get a camel. The adjudicative tx probably had nothing to do with riding..I'll go back and read the article. I hope leeches are not involved! Can you picture that...riding a camel with boa around neck covered in leeches...and Llama in tow. Doesn't sound right...Sorry for not taking it serious...I'm on the patch!!
Btw, there are two spas in Israel that have snake massages...they lay you down and cover one with snakes...you lay under a big apple tree...the apples are delicious. I was told not to eat the apples....but snuck one....What could happen?!?!
Last edited by Ray1971; 10-23-2008 09:41 PM.
7-16-08 age 37@Dx, T3N0M0 SCC 4.778cm tumor, left side of oral tongue, non smoker, casual drinker, I am the 4th in my family to have H&N cancer 8-13-08 left neck dissection and 40% of tongue removed, submandibular salivary gland & 14 nodes clean, no chemo, IMRTx35 11-4-08 Recovering & feeling better | | | | Joined: Jan 2006 Posts: 756 Likes: 1 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Jan 2006 Posts: 756 Likes: 1 | Ray, I love your sense of humor. There have been a few benefits of having cancer for me � got out of jury duty (federal court in Philly), overcame my fear of needles, and blaming a lot of things on the medications I taking! However, still don't like snakes or leeches.
Susan
SCC R-Lateral tongue, T1N0M0 Age 47 at Dx, non-smoker, casual drinker, HPV- Surgery: June 2005 RT: Feb-Apr 2006 HBOT: 45 in 2008; 30 in 2013; 30 in 2022 -> Total 105! Recurrence/Surgeries: Jan & Apr 2010 Biopsy 2/2011: Moderate dysplasia Surgery 4/2011: Mild dysplasia Dental issues: 2013-2022 (ORN)
| | | | Joined: Aug 2008 Posts: 531 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Aug 2008 Posts: 531 | Ray I don't think there is a patch big enough for some of your ideas and stories...lmao...but it works....take credit where credit is due a very humourous visionary
Dianne..treatment at cc at Victoria Hospital, London, Ontario...insulin dependant, Surgery Sept 8/08 Tracheotomy,composite resection and bilateral neck dissection, left radial forearm free flap... T2N0 squamous cell carcinoma. No radiation A little over 2 yrs clear YAY
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