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EzJim #81071 09-24-2008 05:48 PM
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Jim, is your real name Steve Austin, the 6 million dollar man? lol


Tom
SCC T4N1M0 left side tongue & 1 node
Dx 05/21/07 42 yrs old
40 Tx IMRT @ 70 Gy started 06/25/07
Cysplatin & 5fu 1st & 4th wks
treatment ended 08/23/07
TomK #81088 09-25-2008 06:29 AM
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I sometimes feel like it Tom. This has been my thoughts since 1972 when it was either get crushed by riding a railroad car and getting crushed or bailing off. LOL needless to say I bailed but when I hit the ground, down I went and it tore the bicept tendon loose from my shoulder. I guess all things have a beginning. That was mine.


Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
EzJim #81378 10-01-2008 05:14 PM
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Saw my surgeon today for scope results. He told me it is red where it was clear , the biopsies show displasia and now we have to go back to scoping every 6 months. It was a year since the last one. He checked my stomache where my PCP thinks there's a hernia. This dr thinks so too so on the 16th of Oct i get a cat scan qith IVP dye. This raises my heart rate to the high 90s so for it I will use the prep kit starting 3 days before the scan.Have a good day all.


Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
EzJim #81387 10-01-2008 06:02 PM
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Jim,

Well we already knew you were going to have to take care of the hernia - all except you. YOU needed some convincing. The scope results - well I'm sure you and your Doc will watch it carefully and jump right on it if or when something needs to be done.

I would ask, but I know you'll let us know the CT results. You just keep taking really good care of yourself.

Lani


SCC part glossectomy 3/06, recur 8/06 glossectomy, floor of mouth, part of jaw removed, RT/chemo thru 10/12/06, PET clear 7/08
"A bend in the road is not the end of the road, unless you fail to make the turn"
Passed away 12/14/08
Lani G #81394 10-01-2008 08:53 PM
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Hi Jim

Thinking of you - Take care,

Karen



46 yrs:
Apr 07-SCC 80% entire tongue removed,T4N1M0
Neck/D,Jaw Split, Trache 2 ops,PEG 3.5yrs
30 x rad,6 x Cisplatin,
30 x HBO
Apr'08- flap Recon + ORN Mandibulectomy
(hip bone to reconstruct jaw)
Oct'08 1 Plate out-jaw
Mar'09 Debulk flap
Sep'09/Jan&Nov'10/Feb&Jun'11/Jan&Jul'12/Oct'13/April'14-More surgery
Karen Rose #81397 10-01-2008 09:56 PM
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Jim

Hope you are getting some rest. Im sorry to hear about your latest challenge.

Wishing you well.


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
ChristineB #81405 10-02-2008 03:45 AM
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Jim- Keep on hanging in there! You are one tough fellow.

Sue


cg to husband, 48 Stage 1V head and neck SCC. First surgery 9/07. Radiation and several rounds of chemo followed. Mets to chest and lungs. "Life isn't about waiting for the storm to pass, it's about learning to dance in the rain." Went home to God on February 22, 2009.
suemarie #81407 10-02-2008 04:22 AM
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Jim,

With your history I'm really surprised that you were on a yearly scope schedule? I just got downgraded to a 6 month schedule.

Hang in there and lets hope for the best.


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
davidcpa #81414 10-02-2008 06:08 AM
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David,

I think the scope this time was for the reflux and repair that Jim had, IOW, the esophageal stuff, not the OC stuff. Is this correct Jim??

Brian and Website administrator...could we please give Jim a full page for his signature???? He needs more room for all his medical history - we stay confused. LOL


Deb..caregiver to husband, age 63 at diagnosis, former smoker who quit in 1997.
DIAGNOSIS: 6/26/07 SCC right tonsil/BOT T4N0M0
TREATMENT START: 8/9/07 cisplatin/taxol X 7..IMRT twice daily X 31.5.
TREATMENT END: 10/1/07
PEG OUT: 1/08
PORT OUT: 4/09
FOLLOWUP: Now only annual exams. ALL CLEAR!

Passed away 1/7/17 RIP Bill
debandbill #81417 10-02-2008 07:03 AM
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Hey Jim,
You sure need a break, but you are like us all-what are we
going to do but face it? We have no choice-it's just how we
face it that counts. Me, I face it like a coward!HAHA

My ENT has made me come back every 2 months for almost 2 years now and just this last visit he made it 3 months. My husband jumped for joy and I grinned, then I just looked at my doctor because I am scared not to come back every 2 months? Who woulda thought? The dr's have brainwashed me!

I feel for you and just wanted you to know I'll be pulling for you!
Debbie


Partial mandibulectomy and neck dissection 2/3/07. T2NOMO.
Had 14 hour operation which included reconstruction of jaw.
Reconstruction failed. Some radiation, no chemo.
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