| | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) |  Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | Prayers from world wide and local, sure made my journey much easier and I never had a doubt that I would pull thru. I made it big time and am still smiling. Keep the faith. Of course great Drs had a lot to do with being cured also.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Aug 2007 Posts: 580 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Aug 2007 Posts: 580 | I would have to say that when it comes to all types of cancer; if you find it on the internet or your oncologist doesn't present it to you as a treatment adjunct or alternative it probably has little to no merit and as Brian stated will only separate you from your hard earned dollars and leave a whole lot of disappointment.
If ever anyone is in doubt about a possible treatment they should discuss it with their doctors.
As for the green tea and prayers they are all part of a healthy lifestyle and will certainly not harm you and studies have shown that prayer, meditation and humor all reduce stress and strengthen the immune system.
Cheers,
Mike
Dentist since 1995, 12 year Cancer Survivor, Father, Husband, Thankful to so many who supported me on my journey so far, and more than happy to comfort a friend.
Live, Laugh, Love & Learn.
| | | | | Joined: Aug 2008 Posts: 531 "Above & Beyond" Member (500+ posts) | | OP "Above & Beyond" Member (500+ posts)
Joined: Aug 2008 Posts: 531 | Thanks folks for the sound advice...I have always been one to get caught up in and believe what I read or hear...very trusting and some would say gullible. This experience though has seemed to make me more leary. Even with doctors....won't believe it is gone until after surgery and get all clear...that seems so far away
Thanks again for imput
Dianne
Dianne..treatment at cc at Victoria Hospital, London, Ontario...insulin dependant, Surgery Sept 8/08 Tracheotomy,composite resection and bilateral neck dissection, left radial forearm free flap... T2N0 squamous cell carcinoma. No radiation A little over 2 yrs clear YAY
| | | | | Joined: May 2006 Posts: 69 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: May 2006 Posts: 69 | Its good to look at all the options, but you can only trust whats proven ..
the world brought me to my knees...
Update: Feb 10/08: Mom passed away on Jan 31,08 - infection (unknown) in her lungs with her weakened immune system resulted in cardiac arrest - T2NO SCC of tongue surgery 6/30/06, SCC left neck and lungs detected Sept 07, 7 weeks rad/3 rounds chemo had no effect.
| | | | | Joined: Jan 2008 Posts: 29 Contributing Member (25+ posts) | | Contributing Member (25+ posts)
Joined: Jan 2008 Posts: 29 | Well I saw my Holy Grail cure for my throat that has problems from delayed radiation and has turned to scar tissue on the inside.It's a stem cell study from your own blood marrow that can regrow a new esphogus.They have already done this for a 30 y/o woman and the operation was a success.This is my best hope for a cure for me before I chock to death on a bite of food.Does anybody know about this procedure or more info on it?
32 Year Oral Cancer Survivor.CURED!!Right neck dissection.5000 rads plus radium needle implants in the tongue.Also had alternative treatment in Germany from Dr. Hans Neiper in 1982.The combination of ALL the treatments cured me.
| | | | | Joined: Jun 2008 Posts: 309 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Jun 2008 Posts: 309 | has it only worked for one person?
how many has it not worked for?
what are the side effects or long term ramifications?
i would want more solid stats to feel comfortable with it if it is surgery ... and would want to know they are reputable (alternative fine - but have to be reputable)
Rita - Age 44
wife, mother of 4 - ages 3,16,21,24 & grandma to 1
(R upper) Maxillectomy 8/8/08 - UW / Seattle, WA.
===============================
"Those who think by the inch and speak by the yard, should be kicked by the foot."
| | | | | Joined: Nov 2005 Posts: 1,128 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Nov 2005 Posts: 1,128 | Have you already looked into having your throat dilated?
Age 67 1/2
Ventral Tongue SCC T2N0M0G1 10/05
Anterior Tongue SCC T2N0M0G2 6/08
Base of Tongue SCC T2N0M0G2 12/08
Three partial glossectomy (10/05,11/05,6/08), PEG, 37 XRT 66.6 Gy 1/06
Neck dissection, trach, PEG & forearm free flap (6/08)
Total glossectomy, trach, PEG & thigh free flap (12/08)
On August 21, 2010 at 9:20 am, Pete went off to play with the ratties in the sky.
| | | | | Joined: Aug 2008 Posts: 531 "Above & Beyond" Member (500+ posts) | | OP "Above & Beyond" Member (500+ posts)
Joined: Aug 2008 Posts: 531 | I saw that stem cell reproduction too. It is absolutely amazing I know I will be overwhelmed and amazed by the price tag too!!! It was a you tube connection from this site. I am at a loss now as to who posted the connection and where or when for that matter I just remember watching it and wow it is the holly grail and probably as costly...
Dianne..treatment at cc at Victoria Hospital, London, Ontario...insulin dependant, Surgery Sept 8/08 Tracheotomy,composite resection and bilateral neck dissection, left radial forearm free flap... T2N0 squamous cell carcinoma. No radiation A little over 2 yrs clear YAY
| | | | | Joined: May 2008 Posts: 219 Platinum Member (200+ posts) | | Platinum Member (200+ posts)
Joined: May 2008 Posts: 219 | fogelbergfan, What is delayed radiation? I saw your post and was not sure what you meant. Thanks, Angel
SCC left tonsil, tonsillectomy with additional tissue removed 06/10/08, a few teeth on top left side removed 09/05/08,recurrence before treatment started at BOT and tonsil area, 35 IMRT treatments began 10/15/08, and Cisplatin IV (began10/16/08) weekly for duration of radiation.
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