| | Joined: Feb 2004 Posts: 598 "Above & Beyond" Member (500+ posts) |  "Above & Beyond" Member (500+ posts)
Joined: Feb 2004 Posts: 598 | I had the weekly infusion at the James Cancer Hospital at Ohio State University. It was explained to me that there testing showed a slight increase in efficacy over the larger doses, and a decrease in morbidity. He said the efficacy increase was small, but certainly no less effective than the larger doses. Thus, the decrease in morbidity prompts them to use the weekly in most cases.
Jeff
SCC Right BOT Dx 3/28/2007
T2N2a M0G1,Stage IVa
Bilateral Neck Dissection 4/11/2007
39 x IMRT, 8 x Cisplatin Ended 7/11/07
Complete response to treatment so far!!
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | Bill, the blender will be your friend at most meal times. I lost 70 lbs from my weight of 218. The blender at least has me stabilized at this weight. One day I hope to hear, Jim go get some dentures and start eating food again. LOL Oh yea!!
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Nov 2005 Posts: 1,128 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Nov 2005 Posts: 1,128 | Just like the bears gulping it all down in late Fall to prepare for the long sleep over Winter -- Big difference is that when Spring comes, the same bears are out on the roadside, gulping down plenty of grass, etc., to offset the effects of stomach acid sitting around for months -- I haven't noticed any OCF folks chewing on roadside grass...
Age 67 1/2
Ventral Tongue SCC T2N0M0G1 10/05
Anterior Tongue SCC T2N0M0G2 6/08
Base of Tongue SCC T2N0M0G2 12/08
Three partial glossectomy (10/05,11/05,6/08), PEG, 37 XRT 66.6 Gy 1/06
Neck dissection, trach, PEG & forearm free flap (6/08)
Total glossectomy, trach, PEG & thigh free flap (12/08)
On August 21, 2010 at 9:20 am, Pete went off to play with the ratties in the sky.
| | | | | Joined: Aug 2008 Posts: 38 Contributing Member (25+ posts) | | OP Contributing Member (25+ posts)
Joined: Aug 2008 Posts: 38 | Team,
Week one done (4x rads, 1 x cisplatin). I am feeling pretty gimpy. Doing my best to stay ahead of nausea and dry mouth from the drugs. Thanks all for the advice.
My wife is an angel.
Bill
Bill age 47 at Dx, non-smoker
1st DIAG: 8/06/2008 SCC BOT T4N1M0
2nd Diag 10/14/09 Mets in lungs
3rd diag 06/23/2010 Primary Site malignant
Hemi-glossectomy July 2
In surveillance post re-IMRT and Carbo. Lots of scar tissue, hi-FDG Uptake on PET, no lump. Feel Fine, CLEAR for now.
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 |
Bill:
Hang in there. I had cisplatin like that in 3 big doses, the doc actually took off the 3rd dose. For me, the end of week 2 was when reality really kicked in and I realized cancer was a fight. Try to always take the anti nasuea pills especially next week. I wish you strength in your battle. It can be done and you have a strong support system pulling for you.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | | | | Joined: Jul 2007 Posts: 939 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jul 2007 Posts: 939 | Hang in there Bill...climb that mountain one day/one hour at a time. Keep your hydration and nutrition at optimal levels, not an easy task. Your wife is an angel and your best ally in this battle. I resorted to charting my Bill's feedings to make sure he was getting enough every day. Make sure you are swallowing something everyday even when it hurts like heck. I would put a small bottle of Gatorade Rain beside Bill everyday and that way I could monitor what he was getting down...he fussed BUT he was off the PEG within a week and 1/2 of ending treatment.
My thoughts are with you....stay strong.
Deb..caregiver to husband, age 63 at diagnosis, former smoker who quit in 1997.
DIAGNOSIS: 6/26/07 SCC right tonsil/BOT T4N0M0
TREATMENT START: 8/9/07 cisplatin/taxol X 7..IMRT twice daily X 31.5.
TREATMENT END: 10/1/07
PEG OUT: 1/08
PORT OUT: 4/09
FOLLOWUP: Now only annual exams. ALL CLEAR!
Passed away 1/7/17 RIP Bill
| | | | | Joined: Aug 2008 Posts: 38 Contributing Member (25+ posts) | | OP Contributing Member (25+ posts)
Joined: Aug 2008 Posts: 38 | Thanks all.
8 radiations complete. 5 days of rads this coming week. Next chemo is 16 September. I am on the 3 bag track.
Bill age 47 at Dx, non-smoker
1st DIAG: 8/06/2008 SCC BOT T4N1M0
2nd Diag 10/14/09 Mets in lungs
3rd diag 06/23/2010 Primary Site malignant
Hemi-glossectomy July 2
In surveillance post re-IMRT and Carbo. Lots of scar tissue, hi-FDG Uptake on PET, no lump. Feel Fine, CLEAR for now.
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Bill,
I'm sure we've mentioned this before but please watch out for the "ringing" in the ears, which I wouldn't call it ringing more like a ever so slight not constant hum for me anyway with the Cisplatin. I maybe didn't recognize it soon enough and I am left with permanent high frequency hearing loss which, at my stage of recovery, I might rank it #1 in remaining adverse side effects.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | Awe you younguns David. Gonna have to take you under my wing and teach you some tricks. LOL
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Aug 2008 Posts: 38 Contributing Member (25+ posts) | | OP Contributing Member (25+ posts)
Joined: Aug 2008 Posts: 38 | Folks,
13 Rads complete. My mouth hurts. Tongue has been scalded and skewered. In lidocaine I trust.
Bill
Bill age 47 at Dx, non-smoker
1st DIAG: 8/06/2008 SCC BOT T4N1M0
2nd Diag 10/14/09 Mets in lungs
3rd diag 06/23/2010 Primary Site malignant
Hemi-glossectomy July 2
In surveillance post re-IMRT and Carbo. Lots of scar tissue, hi-FDG Uptake on PET, no lump. Feel Fine, CLEAR for now.
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