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#78923 08-18-2008 06:05 PM
Joined: Sep 2007
Posts: 61
liz26 Offline OP
Supporting Member (50+ posts)
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Supporting Member (50+ posts)

Joined: Sep 2007
Posts: 61
Hi Everyone,

Just wanted to give a quick update on Mary-with the kids home for the summer I never seem to get any time on the computer!
Mary is doing really well over the past 6 weeks. She recovered very well from her MRND, just as everyone here said- the "easiest" part of this whole thing. Her PEG tube was removed one month ago, and trying to maintain her weight has become a part-time job-but she is doing it!! It takes her sooo long to eat, and everything still gets stuck in her teeth and cheeks-but it is going down well. As with most of you, the dry mouth is annoying but tolerable she says.
In late June we had gone on a "girls weekend" and she was able to meet up with someone that she had gone through radiation with, and he was light years ahead of her even though they finished RAD at the same time. I swear, it put the fire back in her- she was so mad his tube was out and he was going out to eat, that she came home and was a very determined woman! We even played our first game of raquetball last week, and as usual I lost!
Next week she returns for her 3 month checkup, and I think a PET Scan and CT will be lined up soon, so I will continue to pray all comes back clear. She prefers not to think about all that right now, but I am sure there will be a lot of anxiety waiting for those results-just as there is for most people here.

Once again, I thank all of you from the bottom of my heart. You all helped me help her since she couldn't bring herself to use this site.

Liz


CG to friend Mary. SCC Stage IV-A of rt. tonsil, mets. to lymph node on rt. DX 06/07,tonsillectomy 08/07, Chemo Cisplatin, Taxotere and 5FU X3 cycles; RAD completed 1/20/08 RND scheduled for 3/08. 54yr.old, NS, social drinker.
Joined: Nov 2007
Posts: 212
Gold Member (200+ posts)
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Gold Member (200+ posts)

Joined: Nov 2007
Posts: 212
wow, go Mary!!!!


Cancer of Tongue, SCC early Stage 1, Dx 3/13/07, partial glossectomy 4/14/07 found no residual carcinoma and a granular cell tumor with pseudo epitheliomatous hyperplasia.
Joined: Sep 2006
Posts: 8,311
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Patient Advocate (old timer, 2000 posts)
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Senior Patient Advocate
Patient Advocate (old timer, 2000 posts)

Joined: Sep 2006
Posts: 8,311
Tell Mary that everyone recovers at their own pace and try not to "keep up with the Joneses". Just be patient. Think in terms of a couple of years as opposed to months and she won't be disappointed.


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.

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