| | Joined: Jul 2008 Posts: 507 "Above & Beyond" Member (500+ posts) |  "Above & Beyond" Member (500+ posts)
Joined: Jul 2008 Posts: 507 | David,
Just curious as to which product you are using with your trays and where you find it.
The Prosthodontics gave me a bottle of Omni Gel by 3M (.4%) and said I should be able to get it at most drug stores, but the ones I have checked don't seem to have that brand and I am not sure if what they have will work OK with the trays.
While being treated at the CCC, I can just walk over to the Prosthodontics office and buy a bottle, but afterwards it would be nice to have a closer source of supply even if it is a different brand.
Don
TXN2bM0 Stage IVa SCC-Occult Primary
FNA 6/6/08-SCC in node<2cm
PET/CT 6/19/08-SCC in 2nd node<1cm
HiRes CT 6/21/08
Exploratory,Tonsillectomy(benign),Right SND 6/23/08
PEG 7/3/08-11/6/08
35 TomoTherapy 7/16/08-9/04/08 No Chemo
Clear PET/CT 11/15/08, 5/15/09, 5/28/10, 7/8/11
| | | | | Joined: Aug 2007 Posts: 580 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Aug 2007 Posts: 580 | Don,
If you have custom fluoride trays you want a gel fluoride. The brand name doesn't matter as long as ; "for daily use you use a 0.05 concentration of a neutral sodium fluoride gel and for weekly use you use a concentration of a 0.025 neutral sodium fluoride gel."
Ask your pharmacist if they don't stock one, they can get it and if it's not available over the counter get a prescription from one of your docs.
I hope this is useful.
Cheers,
Mike
Dentist since 1995, 12 year Cancer Survivor, Father, Husband, Thankful to so many who supported me on my journey so far, and more than happy to comfort a friend.
Live, Laugh, Love & Learn.
| | | | | Joined: Nov 2005 Posts: 1,128 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Nov 2005 Posts: 1,128 | I still have good teeth. Went through the full XRT course in 2005-6 and have had no problems yet except a root canal a few months ago. I use Colgate Prevident in the fluoride trays nightly, by prescription from dentist, who I visit twice a year.
Age 67 1/2
Ventral Tongue SCC T2N0M0G1 10/05
Anterior Tongue SCC T2N0M0G2 6/08
Base of Tongue SCC T2N0M0G2 12/08
Three partial glossectomy (10/05,11/05,6/08), PEG, 37 XRT 66.6 Gy 1/06
Neck dissection, trach, PEG & forearm free flap (6/08)
Total glossectomy, trach, PEG & thigh free flap (12/08)
On August 21, 2010 at 9:20 am, Pete went off to play with the ratties in the sky.
| | | | | Joined: May 2008 Posts: 219 Platinum Member (200+ posts) | | OP Platinum Member (200+ posts)
Joined: May 2008 Posts: 219 | Thank you all for your reply. I have found a good Dentist that will work with me. So far I have to see the Dentist before radiation begins as I have 2 teeth I know has to be pulled. My oncologist will start radiation at the first of Sept. I had surgery to remove tonsil and still have problems swallowing. Thanks for the information. Angel
SCC left tonsil, tonsillectomy with additional tissue removed 06/10/08, a few teeth on top left side removed 09/05/08,recurrence before treatment started at BOT and tonsil area, 35 IMRT treatments began 10/15/08, and Cisplatin IV (began10/16/08) weekly for duration of radiation.
| | | | | Joined: Mar 2008 Posts: 3,082 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Mar 2008 Posts: 3,082 | Angel
Find a way to have those "teeth that should be removed" REMOVED prior to radiation. If money is a problem for you now, it will ONLY BE WORSE and MORE EXPENSIVE later. To answer your question, it is possible but not a good idea. HBO treatment is very expensive and even regular insurance fights you about it. I took good care of my teeth, had not had a cavity in twenty years, and passed a through review by a dentist who specializes in oral cancer patients (1 out of only two recommended in the handouts from Lombardi CCC) prior to radiation. I had regular and panoramic X rays taken as an extra precaution yet the radiation fried the nerves and jaw on my left side in order to get the cancer that had spread to those lymph nodes. Despite all precautions, so far I have had to have 3 root canals, 3 crowns and am currently hoping that this last root canal on an old wisdom tooth that otherwise would have been extracted because it suddenly cracked works out. At least the fluoride trays and teeth cleaning are working as I still remain cavity free. If that can happen to "good" teeth, then you do NOT want to find out what happens to "bad" teeth. Just google "Osteoradionecrosis" to see why this is so urgent.
Good luck and best wishes
65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin
Passed away 4-29-13
| | | | | Joined: Mar 2008 Posts: 3,082 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Mar 2008 Posts: 3,082 | My browser stuck and I did not see page two. Sorry Angel.
(But very glad you did find a dentist) Just in case you have second thoughts, you can be sure that you made the right call.
65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin
Passed away 4-29-13
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | Charm, your post was good reading and I enjoyed it. Very informative article you wrote.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
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