| | Joined: Oct 2007 Posts: 83 Supporting Member (50+ posts) |  Supporting Member (50+ posts)
Joined: Oct 2007 Posts: 83 | [quote=johnny47]Yes, but did your taste buds all burn off as well? The Nurses and Nurse pract. seemed surprised. They had not seen that before.[/quote]
I'm with you on this one....everyone that has seen my tongue goes" Dang look at that..its as smooth as a (fill in the blank)"
To me in looks like a piece of liver. I'm almost 8 months post TX and yes I've gotten some taste back...but...as a guy that LOVES to cook and used to run the KCBS BBQ circut as a judge its killin' me not to be able to taste. All levity aside it is better BUT nothing with ANY spice will work..tomato sauce feels like its pure jalape�o and lord help me if I forget and put some hot sauce on something...YEOW! This all from a guy that would consume 4-6 peppers with a meal and looked at habenero's as only a little spicy....sigh. Hopefully it will come back, maybe not all of it but I keep hoping.
Stage 4b BOT and node on right of throat. did 38 trips of TOMO PEG tube,Cysplatin,Taxotere & 5fu 1st 4th and 7th week, changed to Erbitux for the last 4 weeks. 1st PETS since end of TX..CLEAR 6mos out and 2 nodes are hot. Bilateral neck dissection on 10/31/08. Clear Scan 3/31/09 & 8/02/2010
| | | | | Joined: Jun 2008 Posts: 148 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Jun 2008 Posts: 148 | Johnny . . . Have yet to see the first person say on this site that they didn't have this issue. . . just a matter of degree. My mouth was messed up badly after 2 weeks of radiaton - food tasted metallic or like paper mache ( sp? ). Now 7 months out, I can taste most foods but lots of room for improvement and particulary in the swallowing department. Seems like you have to be 12 to 18 months out from treatment to figure out where the "new" you is likely to be. I am encouraged to see that 100% recovery of taste buds posted. Best of luck to all on this matter.
Bill . . . SCC - originated in right tonsil, drifted into neck ( 28 lymph nodes removed - one positive ). Radical neck dissection in September 07, completed 34 radiation tx on January 4, 2008. Used Peg. Non smoker, 61, good shape, no previous health issues. Second year PET scan - "all clear".
| | | | | Joined: Feb 2007 Posts: 176 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Feb 2007 Posts: 176 | Johnny,
I too lost all my taste. My RO and my nutritionist recommended 150mg of zinc daily. Within 6 months all my taste was back. I also took l-Glutamine. Try it and keep up the hope of tasting "normally" again.
Rob J.
6-05, Left Tonsil-T1N2bM0 stageIVA, chemo(Cisplatin), radiation(6660cGy), neck disection, no PEG. HPV negative. (Doc suspects posit)
3-9-09 last of 30 HBO treatments.
| | | | | Joined: Aug 2008 Posts: 9 Member | | Member
Joined: Aug 2008 Posts: 9 | I recently read zinc is good to help your immune system against warts. Does anyone know anything about this. Or if it might help against HPV? Just wondering? Joe | | | | | Joined: Feb 2005 Posts: 2,019 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Feb 2005 Posts: 2,019 | There's all sorts of stuff zinc is supposed to help with but I don't know that there's good research on much of it.
My dental hygenist says my tongue is very smooth--looks kind of like scar tissue, not the nornal bumps people have on their tongue. But I think I pretty miuch have most of my sense of taste back (I am over three years out from radiation) so somehow, even if my tongue looks different, there are still working taste buds there somewhere. Go figure!
SCC(T2N0M0) part.glossectomy & neck dissect 2/9/05 & 2/25/05.33 IMRT(66 Gy),2 Cisplatin ended 06/03/05.Stage I breast cancer treated 2/05-11/05.Surgery to remove esophageal stricture 07/06, still having dilatations to keep esophagus open.Dysphagia. "When you're going through hell, keep going"
| | | | | Joined: May 2007 Posts: 666 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: May 2007 Posts: 666 | For all of you who did not take zinc to regain/protect taste read on: here is a study (2007) Zinc Doesn't Help Head And Neck Cancer Patients - Study Shows Previous academic studies have suggested that the use of zinc sulfate could help patients regain their sense of taste more quickly after radiation therapy. Doctors in this phase three, multi-institutional, double-blind, placebo-controlled study found that giving patients a zinc sulfate vitamin supplement had little to no effect on the sense of taste for the patients in the study. International Journal for Radiation Oncology*Biology*Physics, the official journal of The American Society for Therapeutic Radiology and Oncology (ASTRO). http://www.medicalnewstoday.com/articles/66869.phpM
Partial glossectomy (25%) anterior tongue. 4/6/07/. IMRT start @5/24/07 (3x) Erbitux start/end@ 5/24/07. IMRT wider field (30x) start 6/5/07. Weekly cisplatin (2x30mg/m2), then weekly carbo- (5x180mg/m2). End of Tx 19 July 07.
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