| | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) |  Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 |
Amy:
Hows your mom? Is she doing any better?
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | | | | Joined: Jan 2007 Posts: 346 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Jan 2007 Posts: 346 | Hello Amy,
I hope you will please keep us informed about your Mom.
I think about her all the time. I pray she is holding
her own. She is a strong woman. Please let her know
we are thinking of her.
Debbie
Partial mandibulectomy and neck dissection 2/3/07. T2NOMO.
Had 14 hour operation which included reconstruction of jaw.
Reconstruction failed. Some radiation, no chemo.
| | | | | Joined: Feb 2005 Posts: 2,019 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Feb 2005 Posts: 2,019 | I've been thinking of her everyday too. Hoping the worst of the sickness from the chemo is over and maybe she is gaining back some strength.
Thinking of you and your sisters too, Amy. How diffiult it must be to see your mother go through this at such a young age.
Nelie
SCC(T2N0M0) part.glossectomy & neck dissect 2/9/05 & 2/25/05.33 IMRT(66 Gy),2 Cisplatin ended 06/03/05.Stage I breast cancer treated 2/05-11/05.Surgery to remove esophageal stricture 07/06, still having dilatations to keep esophagus open.Dysphagia. "When you're going through hell, keep going"
| | | | | Joined: Aug 2007 Posts: 42 Contributing Member (25+ posts) | | OP Contributing Member (25+ posts)
Joined: Aug 2007 Posts: 42 | Mom is doing good. She is three weeks out from her last treatment.Her energy level is up. She still gets a little dizzy but the vomiting has stopped. The heat here is keeping her inside. It is about 95 everyday with incredibly levels of humidity. Mom has a lot of stuff going on next week so I hope she will be feeling even better. She still coaches the high school's cheer team and she has try-outs, camp and the t-shirt tie dying party.
She is supposed to have another on aug. 8th. She had a ct today to check and see how the chemo is working. We are going to see what it says then make some decisions. I have tried to get mom in with her old ent but he won't see her because she went to hopkins for her surgery. She says she doesn't trust the doc at hopkins now because he obviously didn't treat her as aggressivly as he should have (not doing the neck disection or doing chemo back in october didn't even do the free flap).
I'll let you guys know when we get the results and where we are going to go from there.
Lost my mother, Minnie, to Oral Cancer October 29th, 2008. I am so thankful she had the OCF to help her through her five year struggle.
| | | | | Joined: Feb 2005 Posts: 2,019 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Feb 2005 Posts: 2,019 | Hi Amy, I am so glad your mom is feeling better. That kind of heat would keep me inside too! This is the time of year when I'm happy I no longer live in the South. A hot day here is in the 80s and it always gets cool at night.
I'm disturbed to read she doesn't want to see the doc at Hopkins now, though I can see why she would feel that way given everything that happened since October. I hope she finds a doctor somewhere she can feel comfortable with in terms of getting advice about how to continue treatment.
And I am REALLY hoping the CT scan shows that the area that the chemo was supposed to get rid of is gone gone GONE--or at least well on it's way to being gone so there's some hope if she does more chemo. But whatever the results are, Minnie is in my prayers and I know in the prayers and thoughts of so many people here. Please do let us know what she decides to do when she gets the results.
Nelie
SCC(T2N0M0) part.glossectomy & neck dissect 2/9/05 & 2/25/05.33 IMRT(66 Gy),2 Cisplatin ended 06/03/05.Stage I breast cancer treated 2/05-11/05.Surgery to remove esophageal stricture 07/06, still having dilatations to keep esophagus open.Dysphagia. "When you're going through hell, keep going"
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 |
Amy:
Thanks for the update, its great to hear positive news about your mom. She is such a trooper, dont know how she is able to manage the cheering. Its really wonderful to know she has the energy to still be so involved. Minnie is really an amazing person, hope she continues to improve.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | | Joined: Aug 2003 Posts: 1,627 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Aug 2003 Posts: 1,627 | Hello Everyone,
First, sorry I haven't been posting but the chemo is really kicking my you know what. I don't want to post when I'm feeling so negative but I see that Amy has kept everyone up to date. I don't know what I'd do without Amy. I have plenty of people to care for me but it's Amy that I trust the most. She's always here for me. My husband has to work so much and the other girls do what they can but it's Amy that has taken on the role of main caregiver. I worry about her doing it but she insists. She just graduated from college, she should be out there making her dreams come true. Plus I hate having her hear bad news from the doctors. She's trying to take care of me and I'm trying to protect her from the reality of this disease.
I'm feeling stronger every day but still get dizzy when I stand up to quick. I also get tired alot easier but I sleep when I'm tired so I am listening to my body. I'm working on my swallowing each day and can swallow water really well now, even though I don't love water. The water helps keep the extra saliva under control, I'm so sick of that part. I always have a tissue with me, afraid I'm going to drool and not know I'm doing it!
My cheer team starts back up for the new school year on the 1st of August, then they have camp on the 4th and 5th. I'm excited that the timing is right when I'll be strong enough to be a part of it. Those girls are so important to me and have been with me through this illness so no worries about how I look or talk with them. This year all three of my youngest girls will be on the squad and we'll compete in Florida the beginning of January so I'm very excited about that. God willing my scans will be good news and I'll be here in January.
Hope all of you are doing great and having a nice summer. Love to all.
Minnie
SCC Left Mandible. Jaw replaced with bone from leg. Neck disection, 37 radiation treatments. Recurrence 8-28-07, stage 2, tongue. One third of tongue removed 10-4-07. 5-23-08 chemo started for tumor behind swallowing passage, Our good friend and much loved OCF member Minnie has been lost to the disease (RIP 10-29-08). We will all miss her greatly.
| | | | | Joined: Nov 2007 Posts: 681 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Nov 2007 Posts: 681 | Yea Minnie,
Welcome back. Slow healing is frustrating, but then you realize how much better you are than a few days or weeks before. It is good to hear that you are getting back to normal routine.
You are indeed fortunate to have Amy to help. We have appreciated her updates.
SCC stage II Partial mandibulectomy w. neck dissection- July 2005. Renal cancer w. partial nephrectomy-Jan 2004. Breast cancer discovered in routine mammogram. Successful lumpectomy, sentinal nodes clear, RT only-2008 Reconstruction of mandible w fibula free flap-Jan 09. TORS removal of begnin pappiloma from esophagus-2010. Masectomy,rt breast 2013.
Support OCF
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 |
Minnie:
Its nice to see you feeling well enough to post. You are very fortunate to have such a wonderful daughter by your side thru this. Hope your scan comes back showing improvement. Keeping you in my prayers.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | | Joined: Jul 2006 Posts: 388 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Jul 2006 Posts: 388 | Hi Minnie - You always have the unending support of OCF folks AND that wonderful family of yours! That's a lot of good thoughts and prayers for your knock-this-cancer-out-for-good team! Where will you be in Florida in January? We would love to come and cheer your girls on! We are on the west coast of FL.
CLEAR SCANS! Warmly, JaneP.
Husband: 3 SCC gum and cheek cancers 2002, 2005, 2006: surgery only. Scans clear after removal of small, well differentiated, non-invasive cancers. No radiation. 4th SCC lip diagnosed 4/13/07 - in situ, removed in biopsy. More lip removed 2/8/08 - dysplasia. 2 Biopsies 3/17/09 no cancer (lichenoids)
| | |
| Forums23 Topics18,168 Posts196,925 Members13,103 | | Most Online458
Jan 16th, 2020 | | |
|
