| | Joined: Jun 2008 Posts: 28 Contributing Member (25+ posts) |  Contributing Member (25+ posts)
Joined: Jun 2008 Posts: 28 | Liz,
I haven't been on for several days. A lot has been going on but nothing compared to what you and Paul's family are going thru. My thoughts and prayers are with you all.
Karen
Karen-age 47 5/07stage 1 tongue right side partial glossectomy 3nodes removed on right. 6/07 didn't get it all-2nd partial glossectomy. 11/07 stage 3(?) partial glossectomy,flap.all nodes removed on right side. 1/08 peg tube. IMRT 39tx,chemo-cisplatin. 5/08 left side 1 lymph node w/cancer - removed
| | | | | Joined: Jan 2008 Posts: 706 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jan 2008 Posts: 706 | Liz- How are you holding up? I think about you every day and send good thoughts your way.
Sue
cg to husband, 48 Stage 1V head and neck SCC. First surgery 9/07. Radiation and several rounds of chemo followed. Mets to chest and lungs. "Life isn't about waiting for the storm to pass, it's about learning to dance in the rain." Went home to God on February 22, 2009.
| | | | | Joined: Feb 2007 Posts: 1,940 "OCF across the pond" Patient Advocate (1000+ posts) | | OP "OCF across the pond" Patient Advocate (1000+ posts)
Joined: Feb 2007 Posts: 1,940 | Hi Sue
thanks for thinking about me when you have so much going on in your own life.I have a feeling i am slowly unravelling !!! I have not slept properly for a long time but at the moment i am awake in the early hours reading posts and watching telly.Today for the first time i feel out of control and i keep shaking.I have just had a phone call saying that the police are taking the search national.We think they are going to put it out on all the southern regional news stations as well.As far as family are concerned,the only adults he has are me and his sister,and of course his poor mother who is completely out of it with alzheimers.I keep trying to think what Robin would want me to do,and i just don't know.
Liz in the UK
Husband Robin aged 44 years Dx 8th Dec 2006 poorly differentiated SCC tongue with met to neck T1N2cM0 Surgery and Radiation.Finished TX April 2007
Recurrence June/07 died July 29th/07.
Never take your eye off the ball, it may just smack you in the mouth.
| | | | | Joined: Nov 2007 Posts: 681 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Nov 2007 Posts: 681 | Liz,
Please take comfort in knowing that many people around the world are praying for Paul to be found. Not everyone who reads the boards replies so add them to the list of OCF forum members who have responded publicly and privately, the local people and now people in your region and nationally.
Your reactions and feelings are perfectly normal. Approaching the 29th would be difficult by itself.
From what you have written before, it would seem that
Robin would expect you to continue calling on your inner strength until Paul is found and then deal with whatever situation arises. For now you can only trust that the searchers are diligent and that whatever the outcome, some good will result.
SCC stage II Partial mandibulectomy w. neck dissection- July 2005. Renal cancer w. partial nephrectomy-Jan 2004. Breast cancer discovered in routine mammogram. Successful lumpectomy, sentinal nodes clear, RT only-2008 Reconstruction of mandible w fibula free flap-Jan 09. TORS removal of begnin pappiloma from esophagus-2010. Masectomy,rt breast 2013.
Support OCF
| | | | | Joined: Nov 2007 Posts: 681 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Nov 2007 Posts: 681 | Liz,
My heart goes out to you as you live through these difficult days.
There is a custom to "say" the chapter of Psalms corresponding to the next year of a person's age. If some one is 5 years old, read chapter 6,etc. Some people do this on a daily basis. I don't understand why, but I know that the Book of Psalms is particularly effective in praying in times of trouble, for expressing gratitude and on many special occasions, both good and unpleasant. It is also good to give charity. This can be any amount, even the smallest coin can be set aside.
I hope that these ideas give you comfort. | | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Liz,
You are a very intelligent woman who has been put thru the ringer in the past year or so but I don't want you to get down on yourself. You were the very best wife and caregiver that Robin or anyone could have had. You are not responsible for, nor in control, of what happened to Robin or his brother so please just take a deep breath and lets see how this plays out. It is unfortunate to say the least but lets keep this latest tragedy in perspective until the whole story unfoils.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Dec 2003 Posts: 528 "OCF Down Under" "Above & Beyond" Member (500+ posts) | | "OCF Down Under" "Above & Beyond" Member (500+ posts)
Joined: Dec 2003 Posts: 528 | Dear Liz
I am so sad to read what you are going through at present. I hope there will be a positive outcome for your family.
Love and light from Helen
RHTonsil SCC Stage IV tx completed May 03
| | | | | Joined: Sep 2006 Posts: 1,357 Likes: 5 "OCF Canuck" Patient Advocate (1000+ posts) | | "OCF Canuck" Patient Advocate (1000+ posts)
Joined: Sep 2006 Posts: 1,357 Likes: 5 | My thoughts and prayers are with you, Paul and his family for his safe return. I echo the sentiments of those before me, you are doing all you can with prayers and good thoughts for Paul's safe return - that would be what Robin would want you to do.
Donna
Donna,69, SCC L Tongue T2N1MO Stg IV 4/04 w/partial gloss;32 radtx; T2N2M0 Stg IV; R tongue-2nd partial gloss w/graft 10/07; 30 radtx/2 cispl 2/08. 3rd Oral Cancer surgery 1/22 - Stage 1. 2022 surgery eliminated swallowing and bottom left jaw. Now a “Tubie for Life”.no food envy - Thank God! Surviving isn't easy!!!! .Proudly Canadian - YES, UNIVERSAL HEALTH CARE IS WONDERFUL! (Not perfect but definitely WONDERFUL)
| | | | | Joined: Feb 2005 Posts: 2,019 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Feb 2005 Posts: 2,019 | Liz, The frustrating thing has to be that there really isn't much that you CAN do other than wait for any news and try to support his other family members (sounds like really just his sister in this case). That lack of any control has to be incredibly hard, especially with everything else you have been through in the last year. Just know that many people are holding you in their prayers as you go through this.
Nelie
SCC(T2N0M0) part.glossectomy & neck dissect 2/9/05 & 2/25/05.33 IMRT(66 Gy),2 Cisplatin ended 06/03/05.Stage I breast cancer treated 2/05-11/05.Surgery to remove esophageal stricture 07/06, still having dilatations to keep esophagus open.Dysphagia. "When you're going through hell, keep going"
| | | | | Joined: Nov 2006 Posts: 166 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Nov 2006 Posts: 166 | Liz, How are things going over there? Have you heard anything else on your brother in law? BB 
Bill B. Dx 10-16-06 Stage 4 T2N2bM0 SCC Left Tonsil,3 nodes. 1st tx 11-28-06, last tx 1-8-07. 3x Cisplatlin, 5fu pump, and Doxetaxel. Modified neck dissection,20 Nodes removed, all clear 02-21-07. HPV+,33 IMRT start 3-22-07 70GY,Completed 05-04-07 | | |
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