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Deb,
At my appointment today with my Nutrition RN and Dietitian, I asked about the higher calorie Nutren 2.0 w/fiber, but my Dietitian said her patient often have digestive problems with it so she only uses it for long term users and even then moves them to it gradually.

So I guess for me it will be nine cans of 1.0.

Thanks


Don
TXN2bM0 Stage IVa SCC-Occult Primary
FNA 6/6/08-SCC in node<2cm
PET/CT 6/19/08-SCC in 2nd node<1cm
HiRes CT 6/21/08
Exploratory,Tonsillectomy(benign),Right SND 6/23/08
PEG 7/3/08-11/6/08
35 TomoTherapy 7/16/08-9/04/08 No Chemo
Clear PET/CT 11/15/08, 5/15/09, 5/28/10, 7/8/11

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Christine,
thanks -- went over this with my Nutrition RN and Dietitian today. They explained the Robitussin to me. They also checked my two prescription meds, a pill and a capsule and told me I can grind up the pill, and empty the capsule into slightly warm water and send them down the tube.


Don
TXN2bM0 Stage IVa SCC-Occult Primary
FNA 6/6/08-SCC in node<2cm
PET/CT 6/19/08-SCC in 2nd node<1cm
HiRes CT 6/21/08
Exploratory,Tonsillectomy(benign),Right SND 6/23/08
PEG 7/3/08-11/6/08
35 TomoTherapy 7/16/08-9/04/08 No Chemo
Clear PET/CT 11/15/08, 5/15/09, 5/28/10, 7/8/11

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Don:

Glad I could help you with the medicine info using the tube. For me, I really dislike having it at all but at least I have found a way around taking yucky medicine. I dont grind pills, I just dissolve them in warm water. Just make sure you flush the tube good. It also gives you extra water which will help you with staying hydrated.



Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
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Don,

So glad you were able to address the Nutren issue with the nutritionist...sounds like she has your best interest at heart. I will say, that if, and I am praying that you don't, have to go to tube feedings only...getting 9 cans of supplement in a day is not exactly easy. It takes being very regimented to do it. I would definitely suggest having someone chart it for you along with your water intake. Some here used an overnight pump or a gravity feed bag to get enough in.

The main thing is to always get the prescribed calories and fluids in each day...think of it as a major player in allowing the body to withstand and heal from the onslaught of your treatments. It will make all the difference.

Deb


Deb..caregiver to husband, age 63 at diagnosis, former smoker who quit in 1997.
DIAGNOSIS: 6/26/07 SCC right tonsil/BOT T4N0M0
TREATMENT START: 8/9/07 cisplatin/taxol X 7..IMRT twice daily X 31.5.
TREATMENT END: 10/1/07
PEG OUT: 1/08
PORT OUT: 4/09
FOLLOWUP: Now only annual exams. ALL CLEAR!

Passed away 1/7/17 RIP Bill
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Hey Don

If you take nothing else from this thread, the advice of protein, protein, protein and calories, calories, calories is very good advice. As Deb say, it will make a difference, believe it, because it really does.

I was able to do 9 cans of Glucerna a day, 3 cans a meal, 3 times a day, and there were days that I also did a couple of cans of V8 juice as well. Even the chemo nurses were amazed at my blood work and I firmly believe that it is one reason I did as well as I did.

Kevin


9 YEAR SURVIVOR
SCC Tongue (T3N0M0) diag 06/2006.
No evidence of disease 2010
Another PET 12-2014 pre-HBO, still N.E.D.


�Remember to look up at the stars and not down at your feet. It matters that you don't just give up.�
Stephen Hawking
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Well I guess if Kevin could handle nine cans of Glucera I will just have to do manage nine cans of Nutren(somehow! -- boy do I dread this).

I wonder how many cans of Jevity Margret has to use?


Don
TXN2bM0 Stage IVa SCC-Occult Primary
FNA 6/6/08-SCC in node<2cm
PET/CT 6/19/08-SCC in 2nd node<1cm
HiRes CT 6/21/08
Exploratory,Tonsillectomy(benign),Right SND 6/23/08
PEG 7/3/08-11/6/08
35 TomoTherapy 7/16/08-9/04/08 No Chemo
Clear PET/CT 11/15/08, 5/15/09, 5/28/10, 7/8/11

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Only six! I also add a lot of water and some fruit juice. My nurse practitioner also suggested sports drinks or broths to keep my sodium and electrolyte levels up.


Stage IV SCC lt lateral tongue, surgery 5/19/08 (partial gloss/upper neck dissection left side/radial free flap reconstruction) IMRT w/weekly Cisplatin & Erbitux 6/30/08, PEG 1 6/12/08 - out 7/14 (in abdominal wall, not stomach), PEG 2 7/23/08 - out 11/20/08, Tx done 8/18/08
Second SCC tumor, Stage 1, rt mobile tongue, removed 10/18/2016, right neck dissection 12/9/2016
Third SCC tumor, diagnosed, 4/19/2108, rt submandibular mass, HPV-, IMRT w/ weekly Cisplatin, 5/9 - 6/25/2018, PEG 3 5/31/2018
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Don,

Try not to dread the feedings if you need them...just take it on like a very important job and think of it as a life saver.

I would like to encourage you as well as anyone reading this thread by saying that my Bill finished treatment on October 1 and by October 10th was eating and drinking easily by mouth and feeling fairly well. He didn't seem to get worse at all after treatments end and was able to eat enough to be off the PEG feedings very quickly - less than two weeks. I actually was able to donate several cases of the Nutren and other PEG supplies to a deserving person at our RO's office. Not everyone has this quick a recovery but Bill did and the fact that you are having no chemo may make your time on the PEG shorter.

No false hopes here...just encouragement. Right now is a good time to take one day at a time...put your head down and take care of yourself.



Deb..caregiver to husband, age 63 at diagnosis, former smoker who quit in 1997.
DIAGNOSIS: 6/26/07 SCC right tonsil/BOT T4N0M0
TREATMENT START: 8/9/07 cisplatin/taxol X 7..IMRT twice daily X 31.5.
TREATMENT END: 10/1/07
PEG OUT: 1/08
PORT OUT: 4/09
FOLLOWUP: Now only annual exams. ALL CLEAR!

Passed away 1/7/17 RIP Bill
Joined: May 2008
Posts: 551
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Deb-

You have no idea how encouraging your post is! Well, I'm guessing you do smile

Thank you.

- Margaret


Stage IV SCC lt lateral tongue, surgery 5/19/08 (partial gloss/upper neck dissection left side/radial free flap reconstruction) IMRT w/weekly Cisplatin & Erbitux 6/30/08, PEG 1 6/12/08 - out 7/14 (in abdominal wall, not stomach), PEG 2 7/23/08 - out 11/20/08, Tx done 8/18/08
Second SCC tumor, Stage 1, rt mobile tongue, removed 10/18/2016, right neck dissection 12/9/2016
Third SCC tumor, diagnosed, 4/19/2108, rt submandibular mass, HPV-, IMRT w/ weekly Cisplatin, 5/9 - 6/25/2018, PEG 3 5/31/2018
Joined: May 2007
Posts: 621
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[quote=DonB]Well I guess if Kevin could handle nine cans of Glucera I will just have to do manage nine cans of Nutren(somehow! -- boy do I dread this). [/quote]

Hey Don.. Try not to dread it, it's Breakfast, Lunch and Dinner. When my wife would cook I'd go in the kitchen for my feedings, take a big whiff of what ever she was cooking, and in my head, played the game that it was what was for dinner. Then down the tube with the goo smile

Whatever it takes man!!

Kevin


9 YEAR SURVIVOR
SCC Tongue (T3N0M0) diag 06/2006.
No evidence of disease 2010
Another PET 12-2014 pre-HBO, still N.E.D.


�Remember to look up at the stars and not down at your feet. It matters that you don't just give up.�
Stephen Hawking
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